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SN children

Here are some suggested organisations that offer expert advice on special needs.

Can you help me find one of these???

14 replies

WavesTheWhiteFlag · 22/01/2010 22:58

Hi my son is 7mths and has global developmental delay, hypotonia and very little head control. He has started weaning but has to be fed in his car seat when at home and his buggy when out. But his buggy is not very suitable, just cant get him at the right angle, he just slides down. Anyway I was thinking if there was something that would help in be able to use a high chair it might make it easier.
I found this on an american site www.beyondplay.com/ITEMS/K053.HTM but I cant find anything similar over here.
Can anyone help or suggest an alternative, or if you happen to know someone very creative who could make one, I would really appreciate it.

OP posts:
LIZS · 23/01/2010 10:42

How about this or this

blossoming · 23/01/2010 15:29

I used the mamas and papas high chair Because of the pommel (the thing between the legs) it stopped my dd slipping down, and she fed in it for years actually, because the back also reclines.

yomellamoHelly · 23/01/2010 22:09

We have the fisher price rainforest high chair. Also has a pommel. Position of tray can be adjusted according to child. We tried a chicco highchair very similar to the mamas and papas, but the tray couldn't be slid close enough to him.
Tilt on the chair was what sold it to us originally since ds has fluctuating tone which meant he has no stability in his shoulder girdle to hold a bottle steadily when upright and it "cups" his shoulders in a helpful way iyswim. The bucket shape of the seat also provides support to the backs and sides of his arms helping his arm control so he can feed himself better too.

glittery · 24/01/2010 13:10

i ordered one of these wheelchair straps which i use if ds needs a bit of extra support on his toilet chair etc.
at its shortest length it is 23 inches long but expands to over 90 inches so you could use it on anything really, only thing is it shows a black one and they sent a bright red one!

glittery · 24/01/2010 19:57

theres also this trunk support or this chest strap both from Bodypoint, available in this country from BES Rehab in Bristol

WavesTheWhiteFlag · 24/01/2010 20:05

Thanks glittery, the wheelchair strap looks good. I know I can get a high chair to suit and there are those tumble forms, its more for when we arent at home thats the problem.

Dont know if you has this problem but what do you do about shopping trolleys? My DS is just over the weight limit for the bucket seats and there is no way he could sit upright in the normal kiddy seats. Assuming its a long time before he can sit I dont know what Im going to do as I have a toddler who stll needs to ride in the trolley as well.

OP posts:
Lauree · 24/01/2010 20:19

I'm sure you have, but have you asked your local occupational therapy dept for help?
My son got a great chair from them when he was about that age which supported him to sit up and eat, and also a corner seat to help him sit up. We got a referral to them from our portage worker. It was a great help.

But away from home's more difficult: we used the pushchair a lot for support, and sometime I used to strap him to a dining chair with my long scarf...

I tried a Bumbo seat but they're no good at all for wobbly heads.

HairyMaclary · 24/01/2010 20:23

God supermarket trollies - I had to start online shopping!I kept DS1 in the moulded seats until he was about 11kg and then I started to take multiple towels etc to pad them out and try to provide DS1 with some support. It worked for a bit and then I had DS2 and it was all too hard! Internet shopping is the way to go.

I used something similar to you link that was a travel 'highchair' thing that I found on ebay. have had look there and can't see it now, will try to look again when I have a bit more time.

HairyMaclary · 24/01/2010 20:26

Ps - with regards to the pushchair. If it is not suitable your OT should be able to give you a referral to the wheelchair services, there are all sorts of wheelcharis now that look like pushchairs but are much more supportive. It may be worth it. Your OT should also be providing a suitable seat at home for feeding. Ask for one, we got our first chair at home when DS was just over 8 months but it would have been earlier if we hadn't moved PCT's!

glittery · 24/01/2010 20:27

ds has no head control so he was always in his buggy when he was small and i had to just take a basket or take my mum with me when i went to the supermarket, now he is in his wheelchair which reclines and i pull it round behind me with one of the footplate support posts while i push the trolley with my other hand.....multi tasking!

HairyMaclary · 24/01/2010 20:29

Found it here it goes through the baby's legs and then around something, I quite often put it around my waist so that Ds could sit on my lap and I had hand's free. useful when at other peoples houses and he couldn't sit anywhere!

meltedmarsbars · 24/01/2010 21:08

I'd second the request for OT referral for supportive seating. We had a Giraffe chair and various things before that - and also bath seats!

Yes, supermarket shopping with a wheelchair!

WavesTheWhiteFlag · 25/01/2010 10:42

Thanks for all the suggestions. We have a jenx corner seat, but to be honest I havent tried feeding him in it. Its too big to go on top of my dining table and I would struggle to feed him in it on the floor. His doc did mention a tumble form chair when we saw her last week, but again I would need somewhere to put it.
Might just have to see what they suggest.
Its so hard to know what he will be ok in.
And the DLA knocked us back this morning so am pretty fed up now.
How disabled do you have to be to be disabled

OP posts:
HairyMaclary · 25/01/2010 11:23

Equipment takes over your house! Ask your OT if there is a chair that you could take to the table, specifically for eating? Although I seem to remember that we had a corner seat with a tray and DS ate snacks and played there and then out OT did a fix up job on our Stokke Tripp trapp high chair which is similar to one they offer for SN children. however that was padded out with towels, arm rests to help him keep his head up etc.

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