Just need a rant

[BeauticianNotMagician]

Ds1 asd is so hard to deal with at the moment.This morning he stood in a strop as he didnt want to go into school so i had to spend time trying to calm him down to no avail and then rush to work completely stressed out.Then when i collected him from school we had to walk which i dont often do as its a nightmare with him but i dont drive and cant keep affording taxis.He kept stopping and crying and saying 'i dont like you'and 'I run away from you'.So i had to hold his arm so tight to stop him bolting.So a walk that should take 20 minutes ending up tking us an hour and a half.Then when i collected his brother he kept hitting him aargh.I came home and cried i just dont know how to cope sometimes.I just needed to share that.

Sorry that sounds so selfish i know there are others who have to cope with so much more im just feeling really down at the moment.Ds was only diagnosed in august 09 and he just seems to take two steps forward and ten back all the time.

how olds your ds? are you seeing camhs or anyone to help with any behaviours etc?? my ds is 4 and has autism and definately know the feeling 2 steps forward hundreds back!!!! has something changed or been out of routine recently that could be upsetting him to make him worse?

jenny

Hi meerkats ds1 is five.Nothing has changed really though we were stuck in for quite some time with the snow.Ds became more difficult as soon as he started school.I see the word CAHMS alot on this board sorry to be stupid but what does that stand for.I reaaly dont feel ds is getting the best support available as i just dont know where to start.

Sorry things are difficult atm. I find with my DS1 when he gets into an oppositional funk it is v hard to get him out of it. Do you see a SALT at all? May be worth asking for help on putting a social story together about how he must stay with you when walking outside.

Hope things improve quickly for you all.

Thank you notfromaroundhere yes he sees salt we have an appointment on thursday actually so i will ask her for some advice.I have tried social stories but they dont seem to work very well for him.

Worth asking the SALT if they know of any other services you could access for help. The biggest help I've had is from the Sure Start Centre - a Family Support Worker came out over the summer holidays and with some help from her I managed to get DS1 to go from refusing to walk at all to walking to the park and back with no fuss (this was nothing short of a miracle!).

I found out about the Family Support Worker from the person who was organising the Team Around the Child meeting and she rang and got a referral sorted out for me. Didn't need a dx or anything to get on the list and could have self-referred had I known it existed.

btw I think CAMHS stands for Child & Adolescent Mental Health Service

Could you give me a bit more info on that? about the family support worker I mean? I myself am at the point where I am spending at least an hour a day in tears just trying to get through each day with my DD and my DS2.

Sorry you're having a rough time too Loudlass. I think, though not sure, that the Sure Start Centres offer help to parents with children under the age of 5. Are any of your DC under 5? If so, then you can just ring your local Sure Start Centre and ask for a referral for a Family Support Worker to come out and see you.