Really really struggling with my ds.....

[pucca]

I don't really know where to start i am getting to the point where i can't cope with him and would really appreciate someones ear to bend or some advice.

Ds is 3.5, he has always had diffcult behaviour, but the past year has been pretty terrible. He displays OCD type tendencies, socks have to be a certain way, so do gloves, if buttons are undone it freak him out, he will break toys then over and over demand you fix them things like that.

He is hyper all day, never sits, very destructive, eats strange things, sudocrem, washing powder, perfume. He still smears and will eat his poo. (sorry i know tmi)

He is agressive, bites, kicks etc, his sleep is terrible, it takes an hour to get him asleep for him to wake up 2/3 times except he wanders and will go downstairs so i am always on edge. He is a danger to himself, and has no fear of anything. Last night for eg, he woke an hour after i finally got him asleep and was trying to kick me, punch me, was throwing things at me and screaming needless to say i tried to comfort him but he didn't want that and after he finally calmed down and went back to sleep i cried my heart out.

His speech is awful too, even i find it very hard to understand him, he has a hearing aid due to glue ear.

He was assessed back in June, but they said that he couldn't have autism or behavioural issue as his eye contact is good (although the hearing prob was not picked up on then so i think his eye contact had to be good due to poor hearing).

If he meets someone new or someone he hasn't seen for a while he will hide, or not look at them (pretend they not there).

He starts school in Sept, and the HT has been really good, she has filled a CAF form in, and organised a TAC meeting for 27th Jan as he does need help. He struggles in pre-school with 10 children so god help when he is in a class of 30. Atm i cannot even imagine him sitting to eat lunch nevermind anything else.

So i guess i am looking for someone to let off steam to, who can maybe sympathise as they have been through the same with their dc.

Thankyou.

Carrotfly...it is a big unknown isn't it? i took ds to a appointment at ENT on Monday, his hearing loss is 40-50Db, so worse than first though and they also think he has sleep apnea, so he has to have a sleep study to see if he has it. The problem is...is if he does treatment is removing the tonsils and adenoids which of cause if there is a submucous cleft it is a problem.

I find the SALT not very helpful, they just keep assessing ds and are not doing much with him at all.

What a worry. I would be very worried about removing them if I was uncertain about the cleft.

I know what you means about the SALTs just assessing them. Mines even changing jobs so we will have a new one to start all over again with in a few months. The way I look at it, at this age its going to be really really hard to get them to sit down and do the exercises, hopefully they will he happier to perform in a couple of years.

There was a mum on Netmums who I spoke to whose daughter had hers removed as you described. I'm not sure it solved the problem, but you might be able to track her down and see if there is an improvement now.