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How much of YOU is left??

50 replies

lisad123wantsherquoteinDM · 15/01/2010 21:24

I have attended a few SN coffee mornings with some lovely ladies but one thing has hit me, and i dont mean this to sound horrible at all, but some of the mums I have met, their whole life is about their child, every word out of their mouths is SN and I just dont know what to think.

Is this what happens over time? Will this be me in a few years? I guess I was just a little worried for these lovely ladies, and would quite like to get to know "them", not their childs SN.

Does this make sense? Is this because Im new to this and just dont get it yet? Is this what the always fighting does?

Hope I havent offended anyone, especially as you ladies have bene such a great support.

OP posts:
StarlightMcKenzie · 16/01/2010 15:32

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lisad123wantsherquoteinDM · 16/01/2010 19:58

so what does that mean?? Im a hot yellow round thing??

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kettlechip · 16/01/2010 20:07

Starlight, how funny, am just reading something about this, it's fascinating. Any feeling on my colour?!!

Lisa, I'm clueless but I'd imagine being yellow-orange would be a good thing.

kettlechip · 16/01/2010 20:08

This thread has taken a turn for the bizarre

claw3 · 16/01/2010 20:11

I only just said on another thread, that my whole life seems to have been taken over by SN lately!

DP and ds have just got back from a visit and i stayed home writing complaint letters etc. DP is just cooking dinner, a bottle of wine, the last thing i want to do is talk about is ds or SN tonight. Although i can see if you have got a lot of sn stuff going on, it could be hard to think of anything else.

StarlightMcKenzie · 16/01/2010 20:15

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StarlightMcKenzie · 16/01/2010 20:16

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claw3 · 16/01/2010 20:37

Im liking blue, very calming

waitingforgodot · 16/01/2010 20:42

ooh what colour am I??

anonandlikeit · 16/01/2010 20:51

Sometimes i feel like I live in a SN world, it doesn't help when so much of your time is as acting as your childs voice & representative. So if you are seeing Dr's, therapista, LEA people you are there as X's mum.
I do have some SN friends & we do chat about our kids sn's & moan & cry BUT we also drink lots of wine & moan about other stuff & laugh alot too.
I also have 3 friends who I go out with occasionaly for a meal & drink, when the 4 of us are together we have a strict NO child talk rule.

It is very easy to become all absorbed but as my therapsit said, remember to have some You time

NorthernSky · 16/01/2010 21:55

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TotalChaos · 16/01/2010 21:58

do me, what colour am I?

NorthernSky · 16/01/2010 21:59

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linglette · 16/01/2010 22:03

what's with this colour thing? linglette and lingle would definitely be different colours which why linglette still doesn't feel like me.

have found a good word: "engrossed". I'm not "obsessed" with DS2's issues, I'm "engrossed" in them.

Sounds much healthier doesn't it?

NorthernSky · 16/01/2010 22:11

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feelingbetter · 16/01/2010 22:20

Well not much. And I'm glad.

The previous me was a hard drinking, chain smoking, partying idiot (I had a ball ) which changed when I grew up had DS.
NOT because of his SN, but because I became a Mother and he is now my priority.

Of course, his condition has changed me further - I think my personality has become a more extreme version of its previous self.
I am more demanding, more single minded and stubborn, waaayyyy more patient, more thoughtful, more calm (coz nothing really matters) etc. etc.

But there are times, like now, when DSs condition is all I think of (his epilepsy is awful at the mo) and it is all consuming.
It isn't like that all the time though, most of the time he is my lovely little boy, and I am his Mum - who has a fulltime job and a social life (way less hectic than it used to be) - but both help, I think, in having a 'me' that isn't just DSs Mum.

kettlechip · 16/01/2010 23:02

lingle definitely suits you far better than linglette imo. You will always be lingle in my mind.

And starlight, I like royal blue. I was thinking of dark blue when I posted (probably because I'm dressed entirely in shades of blue though rather than anything else..!)

NorthernSky, will have to look up that book.

Apologies for sending this thread off on a complete tangent.. as you were!

CardyMow · 16/01/2010 23:03

Wetaugust I agree...12 years ago, I was so quiet, and shy, that it took a mutual friend to put me and a bloke I had liked for 4 months but was too scared to tell, and her to go "You like him don't you" (and all I did was nod and look at the floor), and then look at him and go "you like her don't you", for me and him to get together!...There isn't a TRACE of that person left. I lost her round about my DD's 2nd Birthday when her SN became more apparent and I realised how hard it was to get her the help she needed. BUT I did realise that 'friends' with NT DC's quickly get bored with hearing about what life is like with a SN DC, so try to keep it separate. I let rip on fora like here, and a couple of other SN fora.

CardyMow · 16/01/2010 23:05

Oh...and what colour am I??

lou031205 · 16/01/2010 23:52

I'd quite like to know my colour.

ThatVikRinA22 · 17/01/2010 00:15

i am having a bit of an opposite experience - now mine is 18 im just starting to find "me" again. and im rather liking it. the last 18 years have been about SEN, fighting the good fight. i guess im lucky in that DS looks as though he will survive whatever the circumstances. he doesnt worry. he just lives in the moment. he is doing ok at college (albeit he is having to do an extra year) and will probably be ok, he wont starve, on the other hand he will never iron his clothes but who cares! he is a nice person, with a talent for computers and has a part time job programming. i think he just might be ok. he wants independence. he is crap with money however....he may well be living with us for a long time! but i worry far less these days. im having a little me time now.

StarlightMcKenzie · 17/01/2010 05:36

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StarlightMcKenzie · 17/01/2010 05:49

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NorthernSky · 17/01/2010 10:52

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waitingforgodot · 17/01/2010 11:53

I used to have a flatmate who saw colour in everything. Hours of fun!
Thanks for letting me know my colour!

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