how many of your children with ASD passed development checks??

[lisad123wantsherquoteinDM]

Just wondering really. DD2 has her indepth developmental assessment today. A lot of focus on physical development which is fine for her now although late milestones early on. She is below "normal age range" for speech and language. She can chat away and speech itself is clear but her understanding isnt. Like yesterday the door bell went and she said "I'll get it" but didnt go to get it or move at all, iyswim.

DD1 failed hearing checks 3 times when they used to do distraction test, but passed everything else.

Are these tests the reason why so many ASD children without the language difficulties are missed??

Did make me laugh that everytime the lady built the blocks into a tower she took them down and lined them up though

We now wait 3 months for another appointment but if its the same ones as this lot, i dont think we will get far.

ds1 didn't, but then he was diagnosed at 2.5 ds2 was diagnosed at 3. Neither of them talked until years after that. So it was pretty clear (even to a health visitor ) I would imagine if they do tick the boxes iyswim then it must be really hard to get the assessments needed.

For dd1, it would have depended very much o nthe way I answered things.

She would do a similar thing to your dd with blocks - she wouldn't stack them, but sorted them inot colours and tidied them away hv was very impressed until i told her to try again, and dd1 did the same. and again. and agin, etc. so if I had wanted to ignore dd1's issues, it would have been easy for me to do so, as the hv didn't pick anyhitng up.

dd1 used to fail, then borderline pass, then fail, then borderline pass distraction tests - it drove everyone potty and so they referred her on, as it got to the point where she knew what was going to happen next (eg sudden noise form behind) and no matter how subtle the hv tried to be, dd1 would look round to see when it was going to happen...

physically she was ont he late side of "normal", so sat a little late (8 months), walked a little late (16 months) etc etc.

she was very behind in language (and still is) but again, if I had been in denial I could have easily spun the "but she knows what is going on " line.

and dd1 is quite severely ASD. she is 5 now, still severely language delayed, and just started at an ABA school (intensive 1-1 tuition).

so it is frightening to think how many more supposedly borderline or higher functioning children might be missed.

Dd1 (as) passed all of hers and scored very high when assesed by SALT. Dd1 was a late walker and early talker. She's now got the reading, writing and maths age of a 8 year old (she's almost 6).

Dd2 passed hers up to 2 years, at the age of 3 she was 18 months behind, now after therapy SALT etc she's above average for some things and just 3 months behind on speech and understanding (almost 4). Dd2 walked at 9.2 months old but only started talking 5 months ago.

both my girls have been early talkers but late physical development. DD1 didnt walk till nearly 2 and dd2 was 19months.
shame really, maybe they should look at these screening tests more closely.

DD1 failed the hearing (distraction test) at 8 months and there was concern about her lack of babbling and vocalising.
However, at around 16 months she started to talk and quickly progressed to sentences.

DS2 didn't hit any milestones on target, he was always 3 or so months behind. He didn't start talking until Jan last year, so as about 3.4 years old.

J failed hearing cos of the distraction thing, but then crap HV services round here meant he didn't have offical test at 2.5/ 3. Had informal HV visit at age 2 where she said his speech was very unclear and he'd probably need SALT if it was still as bad on next visit. But never came back!

DS1 passed them all

DS3 was fine up to the one at @ 2 which was really late as we moved (about 3 IIRC). She said at the time that she knew he could do it if he wanted, I was very .She then wwent off and nothing ahppened until nursery raised concerns but she said that she ahd writtenmany letters. buggery did she.

DS4 hsn't sen anyone since he was 2 months old or so. I did a CHAT on him and he came out at borderline (just into ASD risk) but I don'teven know my HV's name as we have a new one. nothing scheduled.

ds2 never had any developmentla checks as he was 3 months prem & obv delayed from the start & then dx with mild CP & gdd.
Thankfully he has a wonderful paed who was able to look beyond the cp & delays & listened to me when i kept telling them there was something more going on.

If you child is not severe or if they have other previously dx conditions the Dr's seem very keen to take the "wait & see" approach... sod the early intevention, lets just watch & wait seems to be their mantra!

Luckily becuase of ds2's other dx he was already recieving soem in put from OT, salt, physio etc.

ds failed hearing twice and eventually had his tonsils and adenoids out age 4 and he was delayed with his speech and had one session with SALT age 4. apart from that he was an early walker and met all other targets. diagnosed age 8 suspicions at age 5.

HV didn't pick up any of the red flags apart from the speech delay (pretty obvious as DS only had one word back then "No!") at his 2 years check up.
He did stack the blocks she gave him straight away by himself, but then lining up and stacking things up were his fave pastime at the time!

I said to her, he is difficult and ignores us!!! I'd written 'he doesn't listen a lot! selective hearing?' on the parents pages at the back of his red book.
She laughs it off saying he was going through the terrible twos independance phase. (Or something like that.)

I said he takes ages to fall asleep, he is still awake at 11pm or later every night, she said we needed to introduce a soothing and calming routine in the evenings. No shit!!

When HV tried to approach him to take his shoes off for mesurings and weighing, he screamed the place down, she said something like 'oh! this is good it show his attachment to you!'

When i said i was a bit worried sometimes because he reacted strangely to people , noises, strong emotional reactions for not much,... her reply is ingraved in my mind forever "does he like cuddles?" she asked. I said 'well yes!' she said 'that's ok then! try not to worry it will pass.'

In all he passed his check-up with flying colours apart from SaL for which he got a referal.
What a waste of time! HV should have picked up something was not quite right or at the very least asked a few more detailed questions, but she didn't.
DS had been let down!

DD failed EVERY development check. Her distraction hearing test was put down to the fact that she had glue ear (she was proven to be partially deaf, almost no hearing in her left ear) when her glue ear finally cleared up when she was 9yo . She didn't support her own head until 9mo, roll over until 15mo, sit unaided at 17mo, crawled at 18mo, pulled herself up on the furniture/cruised at about 20mo, and took her first steps at 23mo. She had NO speech at 3yo. She saw physio and OT from the age of 7mo due to being unable to support her head etc, and SALT from the age of 2.5yo. She failed all her 2yr check, and all her pre-school check. (Yet there's obviously nothing really that wrong with her...)

DS1 (NT)passed every check with flying colours in fact the HV said when he had his 12mo check that he was able to pass the 2yo check...

DS2...much the same as DD except the ages he did everything were even later. Supported his head at 11mo, rolled over at 18mo, crawled at 2.1yo, pulled himself up on furniture/cruised...nope, never did that, took his first steps at 3.1yo, said first word at 3.6yo.

DS borderline fail hearing test when born (one ear) but met all DVT milestones, and passed all checks. We only noticed something was wrong when he started nursery and his behaviour was flagged up.

Ds failed hearing tests (did not respond to sounds) eye problems at 9 months.

HV referred to SALT, dietitian and paed at 2 year check after HV was concerned about his speech and i was concerned about his extremely limited diet.

He passed all other development checks. Sat at 6 months, walked at 12 months.

He is now 5.5 and we have no dx.

See the really furstarding thing is that these developement checks any consider physical developmental delay imo.

DS2 passed most tests waspicked up for eharing,spent 5 years being checked but nothing ever done. They were never sure.

Schoolsaid dyslexia,won'tever write well enough toread just accept it. IIRC DS3 was dx'dsame week so I did

By next IEP something wasn't ringing true and I looked at Dyspraxia and ADHD websites, as we werefiding him challenging in an energy, tantrums, coordination sort of way. The websites said you will probably only tick a few boxes at most; there were @ 20,weticked them all.

Mentioned at next IEP, his teacher said that whilst she hadnt thought of it, it rang totally true. SENCO said she wuld write a letter to Paed for us due to family history, as LEA assessment takes years upon yeras but they would start the ballrolling with SNAP assessment as well.

SNAP assessment came home with a note saying to only asnwer those I was sure about,school would test therest. I did it with DH who alwyas underestaimates things,deliberately.We did 3/4; at that point he had well exceeded most severe score.

Sent it back. have heard zero fromschool since, that was MArch.Chased, nothing. No letter, IEP review etc. I now go in to class weekly to help and it is obvious he has SEN, and also that dyslexia doesn't cut it: he's one of the best readers in the class,by my assessment of reading with all of them.

New Head has made all TA'snot attahced to a statement redundant so DS2 likely tolose all his SA support.

He ahsn't the same levelof need as the otehr 2- but he is being massively let down and the only way forwards I can see is to chat to DS3/1's Paed in March as she has asked us at every visit 'are you sure about ds2 being NT........' I don't hink she has met him but the genetics etc.

Ds passed them all
The only comments on his duplicate copies which i left in his read book are 'lovely boy' and ' very good speech'. Looking back I would have thought she might have picked up that his speech was a little unusual compared to other children (i had very little experience at the time)

My DS1 was referred to paediatric audiology at 8 months when he failed the HV hearing test, but passed the subsequent test with the paed. He passed all other developmental checks no problem (he is 5 now, DXed mild ASD just before 5th birthday). Like thederkinsddame, we didn't see that there was anything wrong until preschool and then school highlighted concerns - they requested another hearing test (which he passed) because he didn't always seem to be listening to them.

Developmentally, though, he met every single milestone other than the 'hold a pencil and copy a circle/cross' stuff (he had very poor fine motor skills which have since improved hugely with OT). School initiated his multiagency assessment at 4.5 years, but even his formal reports from the various therapists are peppered with comments like 'his communication skills are age appropriate' and 'within the normal range'. We have never had issues with language delay, behaviour, sleep, obsessiveness, poor eye contact or anything like that BUT watch him in his school environment and you can see he struggles to communicate appropriately with his peer group, and really struggles to concentrate effectively at school in the whole-classroom environment.

DS is definitely one of those children who could very easily not have been DXed - in fact even his paed said at his follow up that he is so borderline that some other paeds would have said no. He has, in reality, very few ASD 'traits' and at the moment, at 5, he can pass for NT - he just comes across as being a bit silly and immature, a bit of a dreamer, and as he's a summer born boy - and there are a fair few other 'silly' boys in his class - he kind of gets away with it. The gap may well widen as he gets older though and the others become more sophisticated in how they work and communicate.

I am trying ahrd to remember which boy was which with the tes6ts but think ds3faikled hishearing tests too, he ahd togo abck three times as they couldn'tmaintain his attention and use a specially kitted out room.

If that didn't have rung alarms with them goodness knows what would.

My older two failed hearing tests too, seems to be very common. It was always put down to a cold etc. and they were re-tested until they passed!

When i was about 10, I used to help my granny (who was a semi-retired doctor at the time) do development tests at the baby clinic, I had to rattle keys behind the babies heads etc. , I was quite good at it.

Did anyone see that research the other day that said children with ASD have a 'delay' in their hearing responding? I think it is a matter of milliseconds, but I do wonder if it is why from anecdotal reports on here whether that explains so many of our DC failing hearing tests? Think it mentioned that they hope it will be able to predict ASD at an even younger age, so that children can get early intervention.

I didn't see that piece but have read /experienced a processing delay in ASD so maybe it is that? I think the timecan vary though,certainly with my boys you have to give a fair gap (a fewminutes) before checking if they have heard, its as if something is being redirected IYSWIM

I did read that its something to do with the auditory senses being over-responsive (the kids who cover their ears) and trying to block out irrelevant stimuli (background noise) they often block out relevant stimuli too hence appearing to have hearing problems.