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1st night melatonin...OMG.

16 replies

Novacane · 06/01/2010 20:48

We finally got our diagnosis for ds yest of ASD and a script for Melatonin

Well within 20 mins he is fast asleep, cant believe it! Lovely relaxing bedtime routine instead of squabbling and arguments.

I'm just a bit worried that as he has fallen asleep about 4hrs before he usually does (its usually around midnight), is he going to wake up 4 hours earlier in the am?
I am panicking now!

Also, as it has worked so well, does it mean that he actually is deficient in this hormone.... dont really understand why it works..

I hope i stop feeling guilty soon! I feel like I have drugged him!

OP posts:
drloves8 · 07/01/2010 10:45

did your ds wake up mid night then?.
i love melatonin ....its saved my sanity !
btw its not a drug , its a hormone so dont feel guilty , youve just given him something he lacks .

Marne · 07/01/2010 11:05

Dd2 is waking earlier, we started using it last week. She used to fall asleep at 10.30pm so i started giving it to her at around 9pm and then earlier each night. She now has it a 7.30-8pm and wakes at 5am (too early).

sneezecake · 07/01/2010 11:11

you know if he wakes up in the night you can give him a second smaller dose as long as its 4 hours after the original dose.
how did it go last night?
i was a bit disappointed with it as it made ds groggy all the next day, but also started with a cold so that could have done it too.
will wait until he is on the mend before i give it again

Novacane · 07/01/2010 12:18

he slept from 8-8 last night, I can't believe it.
Long may this continue!
He is usually restless in the night as his sleep cycle goes round but nt usually troublesome.

I'm hoping this is a miracle cure but maybe he just really needed some sleep.

Will see how tonight goes!

OP posts:
drloves8 · 07/01/2010 14:08

can i just say that my dd4 has been on melatonin a while now and it took a few months to work out the right dose/type for her. it worked like a dream , then she started to get used to it so her doseage was uped to 6mg , we tried fast release and slow in combonation but she will only take the fast type, so have resorted back to fast only but have pushed back her bedtime to about 10 ish so she gets up at a decentish time instead of giving her melatonin at 7 (for 7;30) and waking up about 4 am.
tis marvelous stuff .

2snowshoes · 07/01/2010 15:09

threads like this make me

Novacane · 07/01/2010 21:44

in a good way 2shoes?

2nd night and hes gone off like a star... not as quick as last night (as he had 12hrs sleep last night), but he laid quietly with lights out no bother.

Keeping to a strict routine, he is not liking no dvd's after bathtime but it's a rule that is staying.

His TA said he was very focused this am and produced some super work. not so much this afternoon tho. She said 'well it's not rocket science is it- you know how distracted you feel if you have a rubbish night's sleep'.... so that sounds promising too.

I'm feeling encouraged for the first time in about 18mths.

OP posts:
Edmadel · 16/03/2010 18:11

Am so amazed to find out about this treatment. I met someone through work who mentioned it to me today so have been doing the research - can not believe not ONCE has any health care proff offered or even suggested it. We have seen consultants, paedatritions, private sleep clinic etc but no joy. My son is nearly 10 - so that is nearly 10 years of rubbish sleep! He has delayed sleep which seems to be the best sort of sleep problem for this treatment, if you know what I mean. Going to see the doc tomorrow and see if we can't have the treatment. Any tips from those who have been there and done that would be very welcome!!

pokhara · 16/03/2010 18:49

i stopped giving ds the slow release melatonin (3mg) because for one h still woke in the night, didnt try it for long because the days afterwards he seemed like he had a hangover erffect, headaches, laying on the floor in nirsery while everyone else played.
I would love to start it again, still got lots left but worried in case of the same effect.

2shoes · 16/03/2010 18:54

sorry I never cam back to answer you
I at the idea of you getting sleep

2shoes · 16/03/2010 18:55

it solved all our problems, dd has insomnia/sleep problems due to medication she is on to help with her extra movements.
she is asleep within 30 mins of taking 3 ml(she is 14)

mamazon · 16/03/2010 19:00

melatonin changed my life.

Ds has 6mg nightly and sleeps from about 8 till 6:30. It is amazing.

We have bathtime at 7. bed at 7:30 with a story. 3 chapters of a roald dahl and i leave him to drop off. i go back in around 8 and he is gone.
fabulous.

We have had a slight issue with bedwetting as he doesn't wake to use the toilet and a minor issue with sleep walking.
but on the whole it is a roaring success in our house.

I too worried that people would think i was drugging him. but i tell myself that i am merely helping him get the sleep his body needs which means that i can too.

Edmadel · 17/03/2010 13:27

Well... I would like the chance to try it BUT my GP today has been ULTRA un-helpful. Did a lot of asking me if we had a TV in DS room - er... NO if we did he would be up ALL night! Dr thinks one day it will all click and he will go to bed at a reasonable hour - er he is nearly 10, not likely??!!

Anyway I was firm and said I would like to be refered to consultant which he grudgingly agreed to do. This is a new Dr for us as we moved over the summer - don't think he can have even glanced at our notes or he would have been more unstanding.

He also said I should be firmer about bedtime - AM LIVID!

Is there any other route I can take or do I have to go via GP?

coppertop · 17/03/2010 14:19

Edmadel - Does your ds still see a Paed? If so, it might be worth contacting them and asking. My ds started taking melatonin after the Paed suggested it. For the first year or so the Paed used to write the prescription himself and I would take it to the hospital pharmacy. He then contacted the GP for us and arranged for it to be available on repeat prescription via the GP, which meant I could take the prescription to any pharmacy.

I love melatonin.

Edmadel · 17/03/2010 14:27

No.. we are discharged from paed so am begining to thing the only way is to get back into the system. We had given up as nobody seemed to be able to help so we had decided to learn to live with it. However, if there is something available that might help him I want to at least find out a bit more about it.

Have resolved to change Dr's today as this one has let me down 3 times now - enough it enough!!

I'd like to love Melatonin too!!!

claw3 · 17/03/2010 14:49

I still have the prescription for Melatonin in my bag, its been there since December. Havent had the courage to use it yet, after a bad experience with Vallergan.

I realise Vallergan and Melatonin are totally different. I might take the first step and actually go to the chemist after this thread

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