my baby is having..

[janmumto5]

Her gastromony done this afternoon YAY @no more ng tube which means nice healthy face and no more face sores! But i hate the general bit and am so nervous that she might become a more sicky baby than she was before she started reflux meds i so hope this helps her body to gain weight and become healthier Off to the hospital soon she having it done at mcr childrens hospital by a surgeon called miss Humprhies who seems lovely and friendly.

Good luck, we have gast too but because of aspiration and poor swallow muscles.

Hope it goes well - I know what you mean about the sore face bit.

Dd2 did keep trying to pull the gastro extension thingy off at first, to get it away from her - she did not understand that it was attached.

Have you thought about the follow-up - learning to change the peg yourself, when you get one? Its quite easy (really!) and saves a trip to hospital (I know Riven does not agree!!)

It been done she was down in theater/recovery for 2hrs they couldnt do it keyhole surgery had to cut her and do open surgery she settled bit now but keeps waking and crying

She doped up on morphine,paracetamol,dicolflormic(sp) and ibrufen xx

surgeon just been she said the peg will be replace din 6mths by a button and they couldnt do it via keyhole cos k-m has a large bowel and they were worried about damagin it she gonna write report to the paedatrician and mention the large bowel appartently it common in children with complex needs

glad shes out and ok, dd had hers oct 08 best thing we ever did( i didnt want it at first) but we had a fundo done at same time so no sick, dd still only takes 60ml on a good day every 3 hours so her weight still hit and miss, on a bad day only 20 ml every 3 hours.

Glad its all worked out well, hope she makes a speedy recovery.

wishing yr dd all the best. Glad it went well. Second others here, ours was best thing we did for dd. Wish she'd had it done sooner

Haven't been on here for yonks. Janmum - were you asking about throat stuff before? Does yr dd have laryngeal cleft?

Yes she has a leryngeal cleft type 1 also has a condition called broncomalcia and a twisted windpipe which also leans towards the right the cleft causes her to silently aspirate fluids and her salavia.

She just a hour ago started her first fluid feed she on 5ml every hour to start with then it be increaed to ten ml every hour for few hrs then upto 15 ml etc. She been in lots of pain but has got brighter towards this evening xx