a risk and a step to far imo

[2shoes]

just saw this young girl on the news, she has cp and can walk(not normally ) but she can yet her parents are risking everything(and 30 thousand) I assume so she can walk "normally"
but if it goeas wrong she will be paralised..........
yet she can f$$$$ walk!!!!!!!!!!

Ds's stander lies flat, its a Leckey squiggles one, we only have hoist in bedroom and bathroom but the standers on wheels so not a problem

Swings and roundabouts...
DS has been extremely lucky in that no lower limb surgery has been necessary. (He has had a congenital scoliosis fused, and also had a tendon transfer to try to improve hand function). However, his left hip is on the move and Evelina would love to repair/pin it now.
DS refuses point blank. He has said he may consider it when he is 17/18. I believe that when he turns 18 he will begin to refuse any and all therapy/treatment.

2shoes, I've never once had a dig at you for saying anything about your dd and her level of disability, and you know that. I've also never suggested anyone should have a separate section of the site. If I rememeber rightly, my point last night was about less division, not more.

sorry i had to post and run last time.
I do believe that the op does carry a great risk, but in the 70 they have done so far, all have been successful!
would i personally consider it?
ds is only 16 months now, he doesn't walk or sit independantly, however I do believe he eventually will after a lot of hard work. the question is really in order for ds to gain a more 'normal' walking pattern would i be willing to risk his mobility and a lot of hard work? maybe i don't know and i dont think i will know until i'm in that position.
please don't have a go at each other i see this site as a tower of strength when i feel i cant cope anymore, and its the thing we have in common is what brings us together not what divids us.