Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Nappies, help!

20 replies

jjones · 28/12/2009 19:20

Ds3 is 3.6 and huge, he is on the 99 centilefor height and weight, he has asd and is still in nappies. Our local pct hae refused to fund his nappies untill he is4 in june. My problem is size nappies are only just fitting, I have tried pampers, huggies asda and boots, I cannot get hold ofany tesco ones as both tesco stores near me dont sell them and they are not on the web site so they might have stopped selling them.
Does anyone know where I can buy size 7 nappies like the continance nurse gives out?
It is getting worse by the day.

OP posts:
glittery · 28/12/2009 20:36

Libero do a size 7, 15-30kg, XL Plus, not sure where you could buy them but you could try ebay?

glittery · 28/12/2009 20:46

you can also get babystar but they are over £9 a pack!!
these curity are a wee bit cheaper at £6.75

FabHasHadALovelyXmas · 28/12/2009 20:47

You can get washable nappies in bigger sizes.

jjones · 28/12/2009 21:58

I have tried washable ones but his wee is so strong I couldn't get the smell away. Libero are the ones I was looking for but I can't find them anywhere. I realy need proper nappies as he can wee for britain.

OP posts:
glittery · 28/12/2009 22:22

found these on ebay, £2 for a 12 pack

busybeingmum · 28/12/2009 22:50

This reply has been deleted

Message withdrawn

Lauree · 30/12/2009 01:10

Same problem with my DS.

Had to get size seven pampers, they were the only ones that fitted, and i had a year of washing the bloody sheets every day before we got the bigger ones from the nurse. I think I got them in a local chemist, but not all supermarkets or boots do them, it's worth ringing around to see if they'r in stock, otherwise try huggies drynights which are bigger, but not enough for a whole night's worth of wee. I had to change DS before I went to bed sometimes, and they're 50p each.

But, since we got nappies from the nurse, (we get tena 'slips' )things have improved... immensley! and I did discover that pharamacy's can order them in... one kind place offered to do it for me. Try talking to a local chemist, who might be able to order some tena 'slips' for you - small would probably be enough, medium would fit me!

Otherwise, if you are near east london at all I have some. ([email protected]) DS is going nappy-free now because he reckons he can no piddle in the night . He suddenly decided, and so far in 6 weeks wee've had 6 dry nights, so HOORAY!! and loads of washing again, but hope is in sight!... I got so sick of heaving him around to change the nappy... back breaking work, as he's also above the lines on the chart.

But I am getting him up just before I go to bed to piddle in a bucket -- keep the bucket in his room otherwise it would all be too much... I can't actually wake him up, but I can pull him up in his sleep, get him out of bed to piddle in a bucket sitting down with me supporting him from behind. And he will actually do a wee in his sleep and then clamber back into bed all still asleep!

Maybe you could ask the nurse where you can get the nappies.... even if you have to pay it will be better than the eternal hunt for the right size, and the continual washing!

good luck! proper size nappies are a life changing find. Goodness knows how we would cope with terry nappies and a nappy pan!

I'll also pass on a tip I got from another mum which has given me the confidence to let DS go commando... put a bit of plastic sheet, or actually I use a bit of waterproof mattress cover over the child as well as under, so that the duvet doesn't get soaked every night.

And I'm putting DS in 2 pairs of pants and then pyjama's so that if he does a little piddle, his clothes will soak most of it up.

And, I know this is awful, but I've stopped washing the sheets for just little piddles... just letting them dry out. I figure he needs an incentive, and lovely clean sheets everyday are a bit of a luxury! But only if it's a small leak ...

CardyMow · 30/12/2009 02:12

When they get older, for night times (only) I have found pampers care mats to be a bloody godsend, as on the rare nights she doesn't wet, I can leave it for the next night. It also saves the ruddy sheets. The frequency I was washing sheets at, it used to put holes in them within 3 months. Now they last at least 6. And at least you'll get them from your PCT at 4, my DD is 11.10, and I still get none, and no help, as we don't have an eneuresis clinic!

CardyMow · 30/12/2009 02:13

GAH! just realised that sounded like a dig at you...it wasn't! It was a dig at my crappy useless PCT!!

meerkatsandkookaburras · 30/12/2009 07:55

we use huggies dry nights pajama pants age 4-7 5.21 for 10 but needs must its all that fits him, hes 4 but still waiting for the ones from hv!! hes size of a 5 yr old if not 6 and they fit ok not ideal though as expensive as he needs them day and night, about 6 a day!!

wraith · 31/12/2009 16:02

www.bmsupplies.co.uk/c-167-childrens-incontinence-pads-continence-care-products.aspx

for all of you with larger toddlers but too small for adult sizes that sie may be able to help as they stock libero xl

im trying to find a place who deals in xs sized adults
as that would be closer to what you need

jjones · 02/01/2010 20:49

Thanks for all your repies, I am in liverpool so no good for the kind offers
I will have a look at the links, I have used libero xl before so if all else fails I can get those.

OP posts:
jjones · 02/01/2010 21:05

I have just had a look at that site wraith and I can't elive they are about miles away from me. I am going to go there on moday thank you

OP posts:
wraith · 05/01/2010 20:27

no problem gladi could help ive used them myself theres a good site

Debs75 · 05/01/2010 22:48

We use huggies drynites Ds is 11 and we get 5 free nappies a day, he uses probably 8 a day at home, is almost dry at school.
Libero nappies are good for a 4-5 year old we had them for a couple of years before they changed to huggies now in unero, i think,
have to agree huggies are not good for incontinence as they only hold one big wee.
why don;t yhe incontinence service tell you the brands they use and how to order extra

Phoenix4725 · 06/01/2010 04:01

loudlass get back on to the pct trust as you know we share same one .Call the primary care center direct ask to be out through to the incontinance nurse we have one now called Namoi who is really nice ,know as were in contact with her ds4.7 dry mostly in the day now but had to go back as her ,he has trouble with soiling and not even tried nights

Phoenix4725 · 06/01/2010 14:54

bump for loudlass

jjones · 06/01/2010 14:59

Dry nights and pull ups are no good for ds as he can wee for britain. Havent managed to get to the nappy place as we are snowed in.

OP posts:
wraith · 06/01/2010 15:48

remember they deliver but yea pullups and dry nights arnt mcuh good for heavy wetters. they dont hold much and chafe .
not to mention are no fun to change in public restrooms
anyhow have fun with the snow

New posts on this thread. Refresh page