'DS1 doesn't present as a child with ASD' said consultant

[SparklyGothKat]

This is a 12 year child who handflaps, lick his palms, bites his forearms, clicks his fingers, rubs his chest and paces the floor. He has poor social skills, and the school have picked up on the fact he has made no friends since starting in sept he is very bright too. He relates to adults better than peers. He is socially 'odd' and doesn't understand that somethings are better left unsaid, he says them anyway.
Sick of fighting now.

Sparkly - just wondering has the consultant observed him at school?

no, she sees him once a year for about 20 mins, he does use eye contact, and can hold a converation (sp?)

whi is the consultant? from CAMHS?

Oh Sparkly that sounds disapointing (to still not know). Could you ask for sensory assessment ( specialised OT) or has all that been done?

no his consultant from the hospital (he has modarate cerebral palsy) his primary school wrote a report last year, saying he was friendly, got on with peers, etc, but I had concerns then, especially the handflapping etc, but the secondary school have picked up on a lot and are willing to write a report. He spends the breaks in the library by himself

Is the consultant an ASD specialist?

she is a neuro consultant, and she said she works with children who have ASD all day. I just want a referral

NAS should be able to give you names of organisations in your area that you may be able to get a referral to for another opinion.

she is going to send a list of questions to the school, and go from there. (if she remembers to do it )

Hopefully that may trigger something then.

Would the GP refer you to CAMHS if the paed won't?

ooooo just remembered this thread. During the xmas holidays we recieved a letter from school saying they want to put Ds1 in a 'friendship and social group' every thursday to help him with his social skills. But this is a child who doesn't present as a child with ASD, remember??

That's the same thing DD's school are doing for her. Oddly hers is also a on a thursday .'friendship and social group'. If the weather sorts itself out!

What does the school think? do they think he shows signs of ASD/AS?

I would ask for the school to write a report, keep a dairy noting down any behaviour/traits etc. Take it to your GP and demand a referral to CAMHS.

Is there any chance you could go private?

Has the Ed Psych been involved? Sometimes they can be very helpful.

Pfft.

I have said this before, but a prof of neurology once told me DD1 was "neurologically faultless". Turns out that TWO THIRDS of her brain is completely duff.

It would appear that neurology is harder than it looks.

Seems to me, if it's not ASD, then it's something Hope the Ed Psych or Camhs can be more help.

It must be Thursdays - DS also has a friendship and social group on a Thursday afternoon

Hope you can get someone to refer you.

please keep fighting. have they done the adi-r test and ADOS test?????

My DS went through assessment with CAHMS and i was told he presented with no issues ASD or ADHD......i challenged this, i shouted and screamed and at times wanted to give up and even believed at some points that i was mad and that DS was just evil, aggressive, unattached to me.

Lead clinincian eventually agreed to assess and we finally got dx of ASD and ODD.

you know your child best. dont give up.

The school think he is on the mild end of ASD, so aspagers (Sp?)

I am going to fight it