Today I am FED UP!!!!

[slightlycrumpled]

Hello, so today I am pissed off! DS2 has been in hospital since the weekend with a respiratory infection/ suspected pnuemonia. They have discharged him before they should really as they have a massive bed shortage. I am 20 weeks pregnant and have spent the last few nights sleep deprived and on a camp bed again!

He has missed his school nativity show this week, I doubt he will be well enough to go back before the end of term. All of this is made worse as he is on the second week of his two week trial of a dynavox communication aid. He has hardly touched it as he feels too ill, although he did manage to say he didn't like needles to the doctor through it. I have to take him into school on Friday just to see the assesor and SALT and basically beg for another trial or hope that they will award the funding anyway.

Today I just feel sorry for him (and more selfishly for myself) and today I hate di-george syndrome, I really do. He hasn't been well for weeks and had just finished a two month course of ab's on top of the ones he ususally takes and it clearly hasn't worked. His sats were still in his boots when we left hospital but tbh he could have caught anything in there it was chaos.

Sorry for self indulgent moan.

Your poor ds- I hope he is on the mend! You are entitled to feel fedup- there is nothing more exhausting (IMHO) than camping out in hospital with a very sick child. Is there anyone that can watch/ be on call tonight whilst you sleep? Hope his Sats come up.

Thanks magso. Sadly DH has had to go away tonight for work, he was meant to go on Monday but postponed untill DS2 was home. Have put him in my bed to sleep so I am at least nearby and can hear him breathing etc.

Your poor DS, and poor you
I hope the school awards the funding, it would be stupid a shame if they didn't because he didn't use it enough with him being ill.

Hope you both have a better nights sleep tonight.

I have spent weeks in hospital with my sick daughter whilst being pregnant ( a few times now as she is the eldest of 5),it is bloody awful. I've slept in the hospitals soft play area,a camp bed, a plastic chair and an old leather arm chair.
Then i've been sent home with her despite no improvement in her condition.
I don't blame you one bit for feeling sorry for your son or yourself.
I hope his sats improve soon, that the school awards funding and you get some rest at some point,take care.

Thanks for replies. We didn't have too bad a night and he seems a little better today, so will try to do some work with the communication aid.

He is just so breathless all of the time and still coughing up the most disgusting looking phlegm ever! Gross!

Jo my goodness you have slept in a lot of places. At least I have always been given a camp bed or arm chair.