Pull up/bed wetting

[nicky693]

My 6 year old son has ASD and ADHD and is wetting the bed 4 times a night so have put him back in pull ups as he is just not getting enough sleep and changing the bed that many times is getting too much. They are costing a fortune at £6 a packet.

Does anyone know if i can get them from the NHS and how do i go about getting them.

I get high rate care but was told I could get them free but dont know how to do this.

Hi. My son has same dx, and was wet/soaked through every night until he hit 9yrs, then it just stopped. Hold onto that thought-one day it will stop!
You can get pull-ups from your HV-we did this,as it was costing a fortune. She may ask for proof of your ds dx, but you are definitely entitled to them. Our health board would only allow 3 packs of pullups per month plus 3 packs of nappies.(We didnt want nappies as we thought it was demeaning for our ds to be in nappies at his age, but they wouldnt budge.So,we bought pull-ups as required, but every little helps.)
Good Luck.

Our health authority will not give NHS pads/nappies for night time wetting alone. (They would of course for an adult!) However it is worth asking, especially if your dc needs (pad) changing several times a night. We had a similar situation (but ds was only dry for about 6 hours a day - his control deminished later in the day)and were eventually approved for 2 a day at age 9 via the hospital paediatric nursing service. (We never actually got them due to delays and staffing change but hey - ho). They are more likely to help if soiling is common and there are also continance issues by day so do not gloss over these needs ( if they exist) as they may be make the difference between help and no help. (Ds is 10 now and finally making progress with a mix of medication )
Some areas are much more helpful!! Good luck.

try asking your HV (if you have one) for the enuresis clinic ( probably spelt it wrong ) at your local children's ward / children's centre, health centre, or look it up on the internet ( spell check it first)

It's been a real help for us, but ask for pull up pants, not nappies. DS gets the nappies but he hates wearing them.

bloody enurisis clinic!! My 11yo DD's been top of the list for 6 months, but they've shut down our one, our PCT no longer has a clinic. She's almost 12 and she went on the waiting list when she was 4....I find pampers care mats, although eye-wateringly expensive, help her to feel much more grown-up, she's used them since she was 7, when she refused point blank to wear the pull-ups any more. Plus, on the rare occasions she doesn't wet, you can leave it on the bed rather than having to throw it away.

There's also a washable version of the pampers bed mat which we used to get from our HA, we were allowed 2 new ones a year!

Loudlass, you could ask your GP to prescribe Desmomelts. These suppress urine output overnight allowing the child longer between wees. I used these with a bed wetting alarm to get my daughter dry at night and it worked brilliantly.

Our bedwetting clinic nurse was useless so you may not have missed out on much!

Nicky it occured to me that there may be medication (as Vjg mentioned) which may help if your child is wetting 4 x a night. Ds was eventually ( at 8 after the eneurisis clinic felt we needed more specialised help) sent to a paed who specialises in continance and constipation issues ( in dcs with asds etc). Perhaps your GP could refer you? I do not know how young they will start with medication ( 6 may be too early) but there are medications that could help. Ds (now on medication) still wets most nights - but its usually just once and he is almost dry by day --life is so much better for us all!!

loud lass pampers care mats are ediculously over priced

look around online you can get them much much cheaper but reusable ones work out cheaper long term

other then that;

some trusts ownt allow the pull ups due to cost, and are very hesitent to hand out tape ups

diapers may be 'demeaning' if they need help putting em on, but there a damn site cheaper and better then waking up in a wet/soild bed

We were offered Desmopressin(sp?) but decided against as you have to prevent any liquid intake after a certain time and that was not realistic as we give DS medication in a drink. Also didn't want to give something more on top of other meds unless absolutely necessary. We were offered nappies, then pull ups, and now get bed sheets via Eneurisis Clinic, you may also have an Incontinence Nurse. As someone else said, its geared a lot to adults.
You could also look at Eric, the eneurisis charity, and Fledglings for bed products. I put at least 2 layers on the bed so I can just remove one in the night. Another suggestion that was made to me by our local (excellent) Clinical Psychologist was get a bunk bed, that way your DC can move from one bed to the other. HTH.

Nicky, I have a pad thing for ds2s bed that I bought from a SN shop (peacocks?), it is great as it draws all the liquid away once they have wee'd so no need to get up a few times a night.

I have same problem with DS2 btw, I've got to change his pull up before I go to bed, but he is still wet through in the morning.

pull ups arent much good for a heavy wetter

they will leak under pressure

You could try these waterproof underwear, astore.amazon.com/bravandgrac-20?_encoding=UTF8&node=8 and get several waterproof sheet protectors astore.amazon.com/bravandgrac-20?_encoding=UTF8&node=7 to minimize the laundry.
If you decided to try a bedwetting alarm, get the childrens book, Prince Bravery and Grace - Attack of the Wet Knights www.braveryandgrace.com its really clever, kids love it and it helps children understand and feel better about the whole process