Nuchal update

[Thomcat]

Ugggggggggghhhhhhhhhhh, BORRRRINGGGGGGGGGGGGGG.
Still kind of inconclusive.
4 hours later.
My blood tests = excellent
Nasal bone = present and correct
nuchal translucency = 3.2mm = quote "doeswn't look good I'm afraid" unquote.
So risk, without Lottie being in the equation at at maternal age at 33yrs and being 13 weeks + 5 days = 1 in 707.
Which in itself isn't bad but the lady doing the scan is concerned abo9ut that neck measurement and says it could mean DS but could be heart problems.
So as it was all a bit grey she has made an appt for me to see the professor himself tomorrow - Professor Nicolaides.
So, it drags on. I'm trying very hard to bond with baby still but fear is making that a bit tricky. I had a few tears today but haven't actually cried, I'm fighting em down inside and trying just to be 'normal'.
More news tomorrow then I guess.
Ta ta for now, TC x

Havre been thinking of you all day and am so sorry that this is ongoing. I hope that tomorrow brings good news for all of you.

TC, I hope your meeting tomorrow will help you shed some light on this.

Just ignore me if it's totally inappropriate - but if you would like to chat about having CVS please CAT me - I know it's an unpleasant thought but at least it gives a definite, fast answer.

prof nicolaides once told me that he found a good nasal bone an excellent indicator that there was NO DS. This was in the context of scanning my dd who had a nose (in the scan) like barry manilow but who wasn't being kind enough to show us her neck. He basically said "with a nose like that we don't have anything to worry about" but sent me for a long walk to get a better position for the nuchal anyway. Anyway I'm delighted you are seeing him and keeping my fingers crossed that I read a relieved and happy posting from you tomorrow xxxxx

I've been thinking of you TC and will continue to do so. I'm so sorry that today's result wasn't conclusive. I hope that all goes well tomorrow. I'll have everything crossed for you.

Fingers, toes and eyes crossed for you.

TC, I'm so sorry you are having to go through all this. From seeing him on TV, Prof N. seems a lovely man. Will be thinking of you tomorrow.

Thomcat,

You, your DH and Lottie are in my thoughts. You are a strong lady and you will get through these days.

I'll say a prayer for you.

love
dejags
xx

Hi Thomcat, hope you are OK - it's so unfair, having to go through all this. Sending you lots of love and keeping my fingers crossed for you tomorrow.

Message withdrawn

OH TC - sorry to hear the worry continues - as everyone else has said Prof Nic is THE man.... even here in Aus they take direction from him regarding amnios, scans etc. They were a little funny when I said I did not want an amnio with dd2 when they found the cyst in her heart.... they asked me a second time and I got all snooty and said I would not have one with Prof Nic who was the guru of amnios - why would I have one from a lesser person!! (very cheeky I know - but hey I said NO!)

With regards to the heart worry - when the local hospital found the heart defect in dd1 - they actually 'provisionally' diagnosed something much worse with a worse prognosis than what she actually had.

We were sent to Kings hospital for the fetal cardiac scan( part of the fetal medicine centre where Prof Nic is)......... the cardiologist was FAB. He was able to see exactly what dd1 had and it was such a 'good' diagnosis - compared to what we thought we were dealing with - that we almost laughed with relief. He was a little puzzled til he checked my notes and saw what the local hospital thought it was. He then told us that Dd1 would probably - about 99.9% have Down syndrome given the type of heart defect BUT he was not allowed to say for sure - we could have an amnio if we wanted. I was gearing up to argue for not having one - so I said no.... waiting for him to push me - he was fab - he simply said if it would not change the outcome for us then there was no point in putting ourselves through it.

So I am hoping you have no worries BUT if something does come up - no doubt they will be able to give you a fetal cardiac scan to see what -if anything- is an issue.

Those sort of measurements can still be fuzzy - we had a very detailed anomaly scan after the fetal cardiac scan and they detected no physical markers other than the heart defect ( in terms of ds) for dd1. At that stage they were still perfecting ( i think) the nasal bone check as they did not do that.

SO will be thinking of you and D and sending love and prayers. Hope all goes well tomorrow.

TC - ran the hill for you again last night .

Lots of love. Thinking of you today. x

Oh bloody hell, bloody tests. Thinking of you TC. I'm so sorry you are going through all this...
JakBX

Sending you all the positive vibes I can for today TC.

TC only just seen this.
I don't know anything about nuchal folds etc but I do know that I had a figure of 1 in 685 (from afp blood tests) for dd.
They weren't going to tell me because it was so low risk but I sneaked a look at my notes.
So yes, agree with others that 1 in 707 is good, isn't it?
Hope the prof can give you some more help about that neck measurement.
Good luck for today.
Cx

Even if he can't give you definite answers, i really hope that todays appointment will be a positive one for you Thomcat. x

good luck TC - jeez, you really are getting put through the mill aren't you. At least you are seeing a leading expert who will be able to tell you once and for all.

Good luck TC - I really hope that you get some clearer answers today.

What a tough time you are having with all of this

oh TC thinking of you today. friend had "good" nuchal at the royal free and they said her baby had the nasal bone too (though they said even that can be muddied by ethnic grps - eg afro carib father might mean no nasal bone at that stage but nothing to worry about ..aggghh)
xxxxx

My dd also had a clear corker of a nose in her scan. I thought more Erin O'Connor than Barry Manilow though. Was also told it was an excellent sign.

love the sound of aloha and pph's babies' profiles in utero!

TC just to add my sympathies that you are still going through this. I really hope you can get off the damned testing conveyor belt soon. All this coming up with different odds doesn't seem to be helping, does it? Even pretty good odds are now somehow being dismissed - fwiw I think you do need the conversation with D about whether you need to know for sure now or not. Because if you don't want to terminate and don't want to put your baby at risk of miscarriage then that is decision made. But if it has become a need to know with certainty, then I'm not sure any of the non-invasive tests are going to give you that.

Sorry if I've said too much. I do really feel for you but obviously I can't imagine how it is from your perspective. I hope the prof is helpful and you and D can see a path out together.

I had a 1:110 statistic which was miles lower than age alone - bloods ok, nasal bone fine but nuchal fold big. DD just had a fat neck. Still does actually. Good luck.

i'm so sorry you're having to go through more of this, but really glad that you're seeing the man himself. you couldn't be in better hands...hateful process but if you're going to go through it, at least you know the people you're with know what they're doing...really thinking of you today.

any news from TC?