Fuming about Family 'Support' worker

[TheDevilWearsPrimark]

Does anyone else have one? I don't know if I'm being ungrateful but I'm so angry right now- it isn't what I expected at all.

She has visited us at home once to get to know us and she is a really lovely woman , the DC adore her. I told her I would only really require help when taking DS to appointments, just so someone could entertain DD. I assumed this was understood and she came to our DX appt and was fab playing with DD in the garden the whole time. She's also coming to a hearing test at the other side of London next month.

Then this morning (with the DC both at preschool/ nursery) she turned up and told me she needs to see me for 2 hours every week. She'd even signed us up to a music and dance group in a nearby church hall ( which I've taken them to before and DS hated) and seemed affronted when I told her I was busy working and the DC were in school (I did tell her their schedule)

I would have assumed as they are volunteers their time is precious and so it would be a good thing I didn't need help on a regular basis. But no.

Instead I got a phonecall from her manager who told me I was clearly in denial about the support I need and if I can't commit to regular meetings they will take us off their list and report to SS. wtf?

dd1 is gf/cf according to the Sunderland Protocol

basically, there is a theory that people with ASD don't digest gluten and casein (protein found in milk) properly, causing all sorts of problems (understatement emoticon)

we had dd1 tested (a relatively simple urine test) and she scored off the scale for gluten.

dairy was inconclusive, but we took her off it as a trial, and she reacted, so she is dairy free too.

we have since (following our bibic visit ) found out that dh is dairy intolerant, and so I reckon dd1 was reacting to dairy due to this (dd2 is also dairy intolerant)

if you search the archives here, there's lots on the sunderland unit, and the whys & whereofres of it

hth

Can I just second looking into gluten casein free diet -it has had a positive definite impact on Ds1's behaviour.

My SHHV totally dismissed it. But I'm not sure why I took her word iyswim.

It's something I'll really look into. DS was toilet trained but has regressed so is still in nappies and close to school age. His poos are also very runny.

My SHHV totally dismissed it. But I'm not sure why I took her word iyswim.

It's something I'll really look into. DS was toilet trained but has regressed so is still in nappies and close to school age. His poos are also very runny.

I have yet to find a professional who will back me in it. But the difference to dd1 has been enormous. It is worth looking into IMO and the people at Sunderland are very helpful to talk to.

TDWP I would wait and see what BIBIC think, they'rewquite hot on this stuff

(assuming it ahs same manager,she is a former SALT who then trained as a dietician)

Worthmaking contact with them; they chat to you for @ an hour then tell you how and if they can help, that part is free.

Thanks I think you are right.

I'll call them tomorrow once I've go my head around (and written down) what I need to say.

It's knackring isn't it!?

Yes it is LOL

I wouldn't worry toomuch about the list- what they do is take basic details then get someone with knowledge of your area of SN to call you back as an appointment so you can make yourself free IYSWIM (or like me forget about it and get caught heading off on the school run )