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Derotation Femoral Osteotomy

11 replies

pilates · 13/11/2009 19:05

I have an 8.8 yr old daughter with cp and her ortho surgeon said she may need the above operation in a few years time to correct her foot turning in. Has any one's child had this operation or does anyone have any information on it? Thanks

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springlamb · 13/11/2009 22:00

Didn't want to leave you unanswered.
Although I'm unfamiliar with that particular operation, DS (15 and has quad cp) had an osteotomy on his arm earlier this year (and has also had some work done on his spine a few years ago).
I was amazed at how quickly he recovered from the osteotomy (once the GA had totally worn off and he was drinking/eating).
Pain control was excellent (much different to his previous experience of surgery).
He was in plaster for six weeks - this may be more a problem for you as it's a lower limb. We had one of those sleeves to cover his arm so he could still shower.
Will they be putting any metalwork in to support the femur in its new position? DS has a couple of bolts in his arm (and he also has a great big H in his back).
High protein diet if possible afterwards to help bone regenerate and fuse.
He started with a rigid splint on it and has now decreased to a soft splint, is beginning to sleep splint-free. He's had a lot of (very expensive) hand therapy to help with positioning/function/strength.

pilates · 14/11/2009 12:28

Thanks Spring Lamb for replying with your experience. Yes she will need some metal to reposition femer. Has the operation been successful for your son and did you have to pay for the therapy afterwards?

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springlamb · 16/11/2009 16:09

Sorry, dd's birthday yesterday so it's been chaos.
He's recovered very well, really so long as any pain is well controlled, it makes the world of difference (compared to his earlier surgery when pain control was an issue). The function and position of his hand is better.
The hand therapy (although you will be looking for physio) is really important afterwards, so try to have good arrangements in place.
(We have paid for our hand therapy as local OTs were quite useless, the surgeon wanted us to use a BAHT-trained therapist, our OT barely knew what that was.)

pilates · 18/11/2009 10:26

Its really wrong that you have had to pay for the therapy afterwards, it should be hand in hand with the operation. I know this may sound a bit of a strange question, but can you see the outline of the metal in his arm and how long was he off school for?

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springlamb · 18/11/2009 11:40

No, you can't see or feel a thing. If you can use a high protein diet (perhaps high in calcium too) the bone regenerates around the metalwork quickly and strengthens it even further. I think with ds's spine, the bone was well advanced about 3 months after the surgery but he does love his chicken!
With his hand, he just has a Z-shaped scar, the mark of Zorro.
Is this her first surgery? I was very lucky to get ds to 10 before he had any surgery, many of his classmates had needed corrective surgery younger and one of them has had 28 operations! The first couple of days are quite rough all round but then you will be surprised at how quickly they recover. Especially once back at home.
DS went back to school 3 weeks after his spine (although using a wheelchair part-time) and with his hand he had the op on Wednesday morning, back at school on Monday. Although he attends SN school so they were more able to facilitate him and also have a medical unit on site who could administer pain relief if necessary (never was).

pilates · 18/11/2009 11:53

No she has had two previous operations, tendon transfer on her arm in Leeds and a muscle lengthening op on her leg in London. Thanks for sharing with me, the operation isn't going to take place for another couple of years but you know how time flies and I like to feel confident that it is something that will make a difference.

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springlamb · 18/11/2009 12:01

That's OK - I'm already researching the hip operation ds will need when he's 17/18. Forewarned and all that...
Right, this decorator has finished now (lovely new wallpaper) so I can get out of the front room and into the kitchen. Coffee calls!
Happy day! (just saw that on another thread and thought, how nice)

pilates · 18/11/2009 12:12

Nice speaking to you spring lamb - think I'll join you with a cup of tea.

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Jo5677 · 18/11/2009 12:20

Hi,just saw this thread,my daughter may need this op at some point too (she's quad CP).
She had an aductor muscle release op in both legs back in April due to tight muscles in her legs and hip sublaxion.
Don't have any info,or experience unfortunately but the thread just caught my eye so thought i'd stop by.
I often research these things a few years in advance too

pilates · 18/11/2009 20:16

Hi Jo and welcome to the thread. Was the hip aductor op to correct feet turning in?

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Jo5677 · 18/11/2009 21:05

Hi,they cut muscles right at the very top of her legs,this was because her legs scissored/crossed over so severely they were difficult to uncross. Unfortunately in her case the op wasn't to sucessful. Her legs uncross easily now so in that respect it was successful but she has now been left with one leg that looks noticeably longer than the other, she now also gets a lot of leg pain and severe muscle tremors. She has also lost the ability to sit up for short periods of time that she had pre op as she has no muscle tone to draw from now. Her feet are being pulled inwards slightly and the bones in her feet are being pulled out of place also due to muscle tone,she's having some soft daffs made as she can no longer wear the hard ones.

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