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DS with ASD having problems at Preschool

8 replies

jackny · 10/11/2009 21:55

My DS (3.5yr) has been going to Preschool for just over a term and copes well with the 'free-play' aspects but can't handle 'adult-led' activities or change. When I went to pick him up from Pre-School today the class had gone to see the school pets - goats & chickens. Apparently, DS had refused to go with the other kids and then proceeded to act up for the rest of the session. DS has a 'Now and Next' board so the activity should have gone up on the board - only I think it was arranged at the last minute and DS didn't know what was happening! This isn't the first time it has happened - the other day they all went into the hall for an impromptu gym session. DS had a 'meltdown' and refused to take off his socks and shoes. Again, I don't know how much warning DS had. I have tried to hint to the staff that DS doesn't cope with last minute changes. I just don't know what to do to help him. When he gets upset at Pre-School it upsets his sleep and he becomes very anxious - keeps saying 'want to go home', 'No Pre-School, naughty Pre-School.' Any help / pointers really appreciated.

OP posts:
thederkinsdame · 10/11/2009 22:31

Hi, first of all you have my sympathy, as we have been there with DS's original pre-school setting.

Secondly, is your son on Early Years Action or Action Plus (I think he should be if he has a dx of ASD?) If so, there should be outside agencies involved with advising the pre-school.

I would ask for a meeting to reiterate how important the visual symbols are and that they will be making their day a lot harder, as well as his if they don't use them. Mention inclusion policy - as by not giving him enough notice they are not giving him chance to participate in the activities.

Hopefully someone else will come along who knows more than me and give you better advice...!

snowybun · 10/11/2009 22:40

Your situation sounds exactly the same as we had with our son when he started preschool.
Ds has epilepsy and development delays.
Even with him having 1 to 1 support at preschool the other members of staff found it really hard to understand the importance of giving Ds enough warning of activity change as he would and still does find it difficult and sends him into meltdowns.

I would suggest having a meeting with the preschool staff and making it clear about your sons needs.
Does he have 1 to 1 support? if not suggest this at the meeting and apply for sen preschool funding.

My ds is now started reception after 2 years in preschool one thing I have learnt is fight for all the support that your son needs and is entitled to and the importance of preschool/ school and yourself working together.

jackny · 11/11/2009 21:20

Thanks for your replies - DS is on School Action Plus and does get some 1 to 1 support. I will try and have a word with the staff RE. visual supports and inclusion. I think the staff are willing but just don't have the expertise to cope with an ASD child! Did you find this? Sometimes I say things to the SENCO about strategies I have found on the web and they are totally new to her! We are hoping to get a statement when he goes to school but it does worry me that DS will get untrained 1 to 1 support.

OP posts:
thederkinsdame · 12/11/2009 23:51

I agree, untrained 1-1 support can be worse than none. However, I think that you should try to ensure that they understand your son's triggers - a meeting is ideal. Write yourself a bullet point list of everything you want to cover, and talk them through visual symbols vs. no visual symbols, and the consequences. I would also atlk through any sensory issues and how even minor things may cause him to be stressed e.g. noise, smells etc.

Also, have you done the NAS Early Bird course? It's really useful, and you can usually take a person from pres-chool with you (it's free) if they can get cover. It will help them understand.

Let us know how you get on.

AttilaTheMeerkat · 13/11/2009 08:59

jackny

Would seriously consider applying for the Statement asap from your LEA. Do not leave this until he is in school, you need it in place for when your DS starts there.

IPSEA's website is very good:-

www.ipsea.org.uk

thederkinsdame · 13/11/2009 15:27

Well said, Attila. Don't wait for the pre-school panel process. It's glacially slow, and if you apply, you're in charge.

jackny · 13/11/2009 21:46

Hi,
Thanks for your replies. We have someone from the Early Years Support team who visits and she suggested going for a statement. She has asked Pre-School to do an assessment in the next two weeks. Pre-School have given me a booklet about statementing process (which I haven't had the time to read as yet.) I feel as if the 'statementing' thing has got a life of it own and I don't have any control over it!! I asked Pre-School whether I needed to do anything ie provide evidence and they said no, it was in hand. Pre-School have suggested I ring Early Years Support for an update. I am sorry if this is rambling but I don't want to tread on toes or on the other hand leave it to chance. Who are the Pre-School Panel? Are they the ones to whom Pre-School send the evidence? I don't mean to be thick but I feel out of my depth - DS was only diagnosed a month ago and I am trying to read as much material about ASD and statementing as poss. DS's behaviour is also becomimg more difficult. He has sensory issues, bangs his head and is 'mouthing' objects (I thought he had stopped this 2 years ago!)

Sorry for length - just feel very confused and isolated.

OP posts:
thederkinsdame · 14/11/2009 00:34

jackny I know what you mean, but you're not alone. We were only dx earlier this year and it is overwhelming in the first month or so. But it does get easier, but you do feel like you have to almost do a speedy degree in autism!

When you have this new diagnosis and if you don;t know any other parents with kids with ASD, and you don't really know whether the 'experts' are telling you the right thing, it is really scary and you do feel out of your depth. To reassure you, the more you read, the more empowered you will feel and you can then start to move things along in the direction you want them to go in. Can I recommend a couple of books:

How to help your Autistic Spectrum Child - this is a quick, easy read with loads of tips and links to useful websites.

Tony Attwood's Books (see which suits you best)

Also contact the NAS parent-to-Parent helpline. They were great when we were newly diagnosed. Speaking to a parent who had been through it really helped us.

To answer your question (finally!) Most LEAs have pre-school panels (i think?) and they review pre-school chidlren with SEN to see what level of suport they will need in school. They may ask an Educational psychologist (EP) to assess your child. But you don't have to wait for any of this to be done. You can apply to the LEA for what is called a statutory assessment, leading to a statement. Go to IPSEA, who can advise you on how to go about it and they even have standard letters you can use. If you apply, you have control over the process and have the right of appeal as many applications take a number of gos. (saying this, we haven't finished our application yet, so we're only in the very early stages)

If it is the pre-school panel the nursery are talking about, then you CAN Send evidence. We sent a long report to ours. But the statementing process supercedes the panel, so that's why I would contact ISEA, they are very helpful and will talk you through everything. They are independent, and on the parent's side.

I can't really advise on this further, as it's still very new to us, too and I'm hoping I haven't said anythign misleading I'm still a little woolly myself, but hopefully some of the MN who are further down the process will set you straight if I have said anything odd!

Other tips: ask your Paediatritian to refer you for Portage and also to the National Autistic Society Early Bird course,It's a good way to meet other parents in the same boat, with children of a similar age. Also ask for an occupational therapy assessment for his sensory issues (you can self-refer, I believe) and speech and language therapy (SALT) assessment, as it is likely he is frustrated by communication issues (even if he has good vocab) See if the NAS has a local branch in your area as I've met lots of parents this way.

One more thing - apply for DLA (disability Living allowance) as it will help with extra costs. You may also be elligible for Carer's allowance, too, both of which help make things easier.

Hope all that helps and it isn't too confusing. Keep in touch and remember that there is always someone on here who can help. I've found MN to be a fantastic resource for info and also for support.

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