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SN children

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Original poster

Nearly the end of the summer, so how was it...?

45 replies

meltedmarsbars · 30/08/2009 12:10

Have you survived intact? Lost all sense of balance and reason? Vowed to change your plans next year?

Maybe even enjoyed it?

OP posts:

wigglybeezer · 30/08/2009 22:15

Not great here to be honest, very wet, kids watched so much TV that it actually packed in!

I cracked and went to the GP to ask to have DS1 refered (he is not in the system but I suspect he is on the spectrum like his younger brother). The problem was that he became more and more intolerant and controlling of his brothers and agressive with it. he also became more and more reluctant to leave the house and do anything.

I felt on the verge of a nervous breakdown, they went back to school two weeks ago and calm is restored!

anonandlikeit · 30/08/2009 23:25

Generally great, its been hot & sunny & the kids have been able to spend alot of time in the garden, but without his routine ds2 has become more & more difficutlt to get out of the house.
Started fighting me when dressing him etc, very clingy to dh, screaming when one of us leaves the house.
I know the next few weeks are going to be hard as he has to go out of the house every day.

2shoes · 31/08/2009 10:13

been ok here. except for dd getting a cold, and now a throat infection,
must admit I will be a bit glad when she goes back to school as she is starting to get bored, but refuses to allow me to arrange to meet up with her friends. we have had some respite and play scheme though.,

macwoozy · 31/08/2009 14:56

I enjoyed it with ds because he is so much calmer when he doesn't have to think and worry about school. It's been hard to get him out of the house at times but we have managed to go to a good few places which he's enjoyed.

Only problem is letting him know he has to go back to school this week, he is going to go ballistic and I just don't feel brave enough to let him know yet. It's going to cause such a meltdown

fatzak · 31/08/2009 15:21

We've had a varied summer with swine flu and new clusters of seizures, but I am not looking forward to tomorrow. DS is fine about going back to school, it's just me I don't think about him being any way different to other 6 year olds until I see them. It's not really his epilepsy that worries me at school, it's his dyspraxia/ADD/ASD type behaviour that makes it difficult for him.

And DS2 who was only 4 last Tuesday starts full time tomorrow

TheDMshouldbeRivened · 31/08/2009 16:15

how did the EEG results go fatzak?
dd's behaviour is appalling and I cant help but notice it says all LGS kids have behavoural issues like ADHD/ASD/Psychotic behaviour. whoopee.

lou031205 · 31/08/2009 16:37

I can't quite believe seven weeks is almost up and we are in one piece, tbh.

No respite, as SS said that 3.8 yr old DD1 sprinkling sand in her baby sister's eyes presented as "an energetic child who enjoys the company of adults"

So, 7 weeks of 3 under 4, and DD3 is a BF milk monster. But, we have survived.

Now just gearing up for the statementing fight in time for school next year....

fatzak · 31/08/2009 17:15

No news from the EEG/PET Riven. Need to get in touch with Neuro this week as meds just not giving full control and he's started having clusters of seizures in the day every three weeks or so. Manage to control them with some clobazam we have left from when he was in hospital when he went into status and epilepsy nurse suggested it as a short term thing. Really wanted to be a bit more sorted before DS went back to school Hope you are feeling a bit cheerier Riven.

TheDMshouldbeRivened · 31/08/2009 17:26

dh has taken dd out for a looooooooooooooong walk

fatzak · 31/08/2009 17:44

Some peace then

sphil · 01/09/2009 08:21

I don't like these last few days (mine go back on Thursday) - it feels as if we're just hanging about waiting (with vague feeling of dread). Will be all change for DS2 (new teacher and 1:1s, more time in specialist unit) and DS1 has his dyspraxia assessment later this month.

5inthebed · 01/09/2009 09:53

It's been up and down in this house. First week was great as we went away on holiday and had fun (mostly).

DS2 has this annoying habit of picking ds3 (9 months) up and removing from the room . Doesn't matter where we are, he won't let him in the same room. SO it's been a constant battle to get him to leave him alone. He has also been obsesively saying the word "boobies" which is really wearing me down, almost to the point of developing a tic at the very mention of the word. Its the first word that comes out his mouth in the morning, you can hear him saying it over and over again.

Not managed many days out, as he is a bolter and his behaviour is only just manageable sometimes. We don't have a garden, so the four walls are getting closer and closer every day.

DS1 has been complaining about being bored, can't have his friends over as DS2 does very inapproriate things, like stripping off and running arund naked, trying to climb on their heads, screaming in their faces
I can't wait til they go back to school!

BriocheDoree · 01/09/2009 12:47

Not too bad, here, actually . We get NINE BLOODY WEEKS which is far too long, but we actually managed three weeks away this time (one holiday, two weeks with family in the UK). Spent some time toilet training DS (have to say, NT kids are a DODDLE!) which meant a couple of weeks of staying round the flat doing not much but the forest behind our appt has been a godsend in the hot weather. Think the worst thing has been DD trying to climb out of the windows during the couple of hours we are stuck in every afternoon while DS naps. Fortunately we're ground floor, but I don't trust her not to run off having climbed out!
Slightly stressing about her going back to school, but then who isn't ?

magso · 01/09/2009 13:34

We've survived - just sane! The first couple of weeks were ok - Dh was on holiday and able to tire ds out! This is the first summer I have really seriously struggled in part because I am ill in part because ds is making the most of me not being able to catch him! Ds was excluded from the sn club ( after only half his allocation) after trying to kick and bite a member of staff. I imposed a very unwise ( for my sanity) tv restriction which left ds very truckulant. But mostly it is my health not the weather that has kept us in. I have however found an angel who seems to get on well with ds,(doing sn childcare training) who is going to help me with a belated 'spring clean' once ds is back at school and respite/baby sitting as finances allow.

Debs75 · 01/09/2009 17:52

Magso that is awful that they could exclude him. Did they not already know he had violent outbursts or was this a one off?
My DS would of been excluded on day one if he had been at the club. He split a staff member's lip last week and the bloke just shrugged it off.

IUsedToBePeachy · 01/09/2009 18:07

Debs ds1'as school is like that; they've excluded others but say they see something in him; perhaps its just that we co-operate thougha s I know one otehr Mum of an excluded child was very confrontational.

New Head tomorrow, DS1 has informed me he will be expelled by the end of this year or kill ds2's friend. Fabbo

daisy5678 · 01/09/2009 18:10

Peachy

IUsedToBePeachy · 02/09/2009 10:27

have to do the whole fiorst day thing again arrgghhhh

predictably ds1 lost it, my wrist bled..... this si getting silly

ouryve · 02/09/2009 14:16

Roll on September 7th, is all I can say.

saintlydamemrsturnip · 02/09/2009 14:32

bloody awful!

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