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I've Been Lurking For A Year (Child With Ataxia/Co-ordination Difficulties)

7 replies

boolifooli · 13/08/2009 21:20

Hello all

My son is almost 3

this time last year, after having developed in an NT fashion, he started to lose the ability to walk. The last 12 months have seen slow progress. He walks with a wide gait. Yesterday he developed a dramatic limp. It almost feels we are back to this same time last year. I just want to know I am doing the best for my son regardless of the diagnosis that may come. I love him dearly and he is a happy, if not complicated little chap. The working diagnosis has been Cerebellitis. The worst thing is not knowing what is definitely, without doubt, 100% going on and feeling like I am letting him down by not instinctively knowing what is occuring. I know from lurking here that this is a well trodden path. I jusat wanted to say hi and make myself known

OP posts:
feelingbetter · 13/08/2009 21:39

Hello & welcome

Phoenix4725 · 14/08/2009 06:36

hi and welcome

sc13 · 14/08/2009 10:24

Welcome - I hope you get some clear answers soon

HelensMelons · 14/08/2009 11:56

Hi and welcome boolifooli!

Frasersmum123 · 14/08/2009 22:29

Welcome

boolifooli · 16/08/2009 07:52

Hello and thank you for the warm welcome. I should have jumped into the board sooner. I have got so much from just reading the posts over the last 12 months, I bet for everyone who is posting there are another 10 of us lurking.

OP posts:
troutpout · 16/08/2009 08:08

Helloooo

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