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Testing for Down's syndrome

85 replies

Thomcat · 25/05/2005 21:09

Does everyone get that much info on testing for Down's syndrome sent to them by the hospital when they get sent their appt letter for their 1st official scan?

Blimey

It's mentioned in my appt letter, I got another A4 sheet on info on screening for DS, a leaflet on serum screening for DS, an A5 booklet on testing for DS, and a A4 booklet which also talks about it.

Is that normal?

I'm already not really enjoying this 'you'll be seen my the head consultant', 'we'll book you into Queen Charlottes as they have the best maternity dept', 'we'll get you an early scan booked' way of dealing with me.

OP posts:
misdee · 26/05/2005 17:29

we are ok. he is having a good week, loads of energy. so we have been sorting out the pit of a place we call home lol.

so how far gone are you now?

Thomcat · 26/05/2005 17:30

Ahhhh wicked news

OP posts:
Marina · 26/05/2005 17:30

I'm another one who felt reinforced in her decision not to go for invasive testing by your posts about Lottie TC.
It's good to see this issue debated here in such a mutually supportive way. I'm with bundle on Edward's and Patau's myself and thank God that the amnio exists to enable accurate diagnosis of these chromosomal defects.
What a lovely post Dingle. I'm going knicker shopping soon you know! Will look out for cucumber green and tomato red ones perhaps...

misdee · 26/05/2005 17:33

the pics of lottie also helped me, she is sooo gorgeous. can i have her please for one day? she is just so cute and pretty.

Thomcat · 26/05/2005 17:39

If I wasn't 'up the stick', I'd have a right old drink tonight in celebration of all this!

OP posts:
Davros · 26/05/2005 19:03

Very interesting thread here! I did test for DS and would have aborted when I was having DD but now because of what is so terrible about DS, but what is so terrible about ASD and how it rules and affects our lives. Also because DS (with ASD) is so often unhappy, will never be independent, has never made a friend, has never said mummy etc (DD driving me nuts while I'm trying to post saying mummy, mummy, mummy ). That's my reason, not because of fear of DS or disrespect for people with DS but something I think is quite different. It is a shame its the main thing that people test for as there are so many other conditions/disabilities that you can't test for and have to take your chance (as I know only too well).
TC, yet again I suppose you can view it as an opportunity to educate these people, partly in how to treat someone who already has a child with DS but also how to give equal credence to either choice on screening/aborting. Your work is never done!

Toothache · 27/05/2005 08:18

TC - That's at least 4 people on this thread that didn't test because of Lottie!!

Fio2 · 27/05/2005 08:25

when it comes down to it I dont think i could ever abort (except in the case of edwards and Pataus etc) but I think it is good that people have the choice. I have found having a child with special needs very hard and I can see why people would not want all that grief in their life whether my daughter is beautiful or not.

Thomcat was pleased to see you werent being treated any differently (as blue bear confirmed) i know it must be hard when all the emphasis is put ion testing for Down Syndrome

Thomcat · 28/05/2005 08:49

Thanks girls and fwiw I think when you have a child with severe SN that take over your lives the way they do yours I understand 110percent that this is a different situation for you.
I just want to make it clear that I understand that and while I respect all wonen's decisions to do what they feel they need to do, I respect your feelings on this more than anyone's.

OP posts:
eidsvold · 28/05/2005 10:08

TC - repeat after me - NO, NO, NO. SOrry been away for the week and only just caught up with this. When I originally was getting sorted in the UK prior to coming to Aus - I was sent nothing of the sort although my GP assumed I wanted every test going from sending me to london for a fetal cardiac scan to booking an amnio etc and I just said NO thank you.

How is it all going??

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