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Here are some suggested organisations that offer expert advice on special needs.

ASD: The Science Stuff - More Coffee Break Reading

17 replies

WednesdaysChild · 28/07/2009 11:38

This link: American Academy of Pediatrics - Management of Children With Autism Spectrum Disorders

A bit long winded, I know, but just look at the bibliography at the end - Loads of links that seem to cover so many topics to do with ASD. Hope it helps.

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cyberseraphim · 28/07/2009 11:52

I've skim read and it looks very interesting - particularly the need for better family support. If this area was better managed, some of the other issues could be better dealt with - I think now that suspicions and antagonisms can fester between parents and professionals which means that valuable time is wasted.

WednesdaysChild · 28/07/2009 11:57

There are some bits worth printing off and taking along to meetings with the professionals.

Will have to remember to repeat the recommendations about the "empiricle care" or "mum knows best", as I like to think of it. (New word to me)

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cyberseraphim · 28/07/2009 12:22

I hate being called 'Mum' though - es. in reports that say

'Mum expressed view that...'

What if mum was a Doctor or Professor? - Would they put

'Professor X expressed view that.....' or would they worry it would give the false impression that the parent knows what she is talking about. I do know Docs/Profs can be dotty but using the 'Mum' label seems designed to put you in your place.

WednesdaysChild · 28/07/2009 12:27

Yes, me too. Especially when it's done in that way - v.patronising. That's why the "Empiricle" is good, it recognises that parent-carers are the ones who have actually had more experience or observation time than any professional study.

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debs40 · 28/07/2009 12:28

cyberseraphim oooh good point! I always hate the 'hello mum' bit from teachers at school too

cyberseraphim · 28/07/2009 12:29

Shout 'Hello Teacher!' Back ? Don't know if I'll have the nerve though - DS1 starts school in 2 weeks so will watch out for that.

lingle · 28/07/2009 19:19

"I think now that suspicions and antagonisms can fester between parents and professionals which means that valuable time is wasted. "

Yep. My paediatrician and I have an entirely dysfunctional relationship.

Perhaps someone needs to publish a paper about the management of paediatricians instead.......?

StarlightMcKenzie · 28/07/2009 20:24

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StarlightMcKenzie · 28/07/2009 20:35

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lingle · 28/07/2009 20:49

Starlight- DS2 (now 3.11) was heard picking out "10 green bottles" on the piano yesterday (big brother has started piano lessons). Did a good job on that big interval half way through....
Yours still singing all day?

StarlightMcKenzie · 28/07/2009 21:01

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lingle · 28/07/2009 21:18

He's a bit young for piano playing yet!!!!

DS1's teacher comes to the house so DS2 gets to watch whilst pretending not to watch iyswim.

Plus I get to wear my dressing gown....

sc13 · 29/07/2009 11:13

On the music bit: have you tried music therapy? We had our first assessment yesterday and I was blown away. DS making eye contact with perfect strangers, banging drums on cue, changing tempo on cue - never seen anything like it.

lingle · 29/07/2009 15:38

cool.

my DS2 needed ""anti-music" therapy": He was too bloody musical to bother with meaning.....

WednesdaysChild · 29/07/2009 18:47

Mine likes to try and join in with the street entertainers/buskers & they (mostly) seem to love it.

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sc13 · 30/07/2009 15:15

Wednesday, that's SO cool!!

WednesdaysChild · 30/07/2009 16:15

Really recommend it to all parents to try... Maybe will post about it on Chat.....

The entertainers seem to absolutely love it as they get more interest from the public this way....

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