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Here are some suggested organisations that offer expert advice on special needs.

Have to share! (CP comment)

8 replies

laumiere · 11/07/2009 20:11

As many of you know, DS1 (3) has diplegic CP, and we've always been told if he ever has breathing problems, go straight to Casualty. Today he was struggling with a cold and his breathing got very laboured about 12 so we went to Casualty. Three hours (and one CP meltdown)later, the doc confirms DS1 has a chest infection (fair enough).

What made me smile? The doc asking me (completely seriously) 'are you sure your son actually has cerebral palsy?'

I must have looked a bit surprised as he continued, saying 'well most of the cerebral palsy kids I see are very frail and your son is really strong and alert'.....

Would anyone honestly say their kids had CP when they didn't ???? Maybe those mums who were talking about buying radar keys?

OP posts:
HecatesTwopenceworth · 11/07/2009 20:14

do you think he meant has your son been misdiagnosed rather than you were just some sort of nut, going round saying your child had cp?

well, whatever he meant, I can imagine the look on your face

Goblinchild · 11/07/2009 20:22

Well, he's a better educated doctor now he's met you and your son. Hope you opened his eyes.
I've met people who've been doubtful about G's dx of AS, but that's not uncommon.
Never heard a professional question someone with a physical needs dx.

TotalChaos · 11/07/2009 22:31

let's hope he realised how stupid a comment that was after he made it. surely he should know that the kids that attend A & E regularly would tend to be the ones more prone to illness.

WetAugust · 11/07/2009 22:42

Story of our lives unfortunatley. Doctors with unrealistic 'stereotypes' of how any illness / condition should manifest itself.

You just have to look at how many failure sto dx meninitis - "Go home and take an asprin" to see just how incompetent many doctors actually are.

Goblin - if you're still around get thee over to the dark side Really Kwikly

Goblinchild · 11/07/2009 23:05

Left a message in a bottle for you WA.

WetAugust · 11/07/2009 23:23

Bottle duly retrieved and contents digested. Thank you.

laumiere · 12/07/2009 16:15

Hecate i think he meant a misdiagnosis, as I explained that DS didn't walk til he was 3....

OP posts:
2shoes · 12/07/2009 17:02

what a knob head.
dd is not frail. tbh if a doctor used the expresion "cerebal palsey kds" I would ask for another one.

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