P***** off with having to be stroppy all the time

[Adelaide]

Why, why, why, why, WHY do I have to get stroppy with people everytime I go near a medical institution in order to get things done. It has been obvious to me for months now that my ds needed certain tests done to get to the bottom of an underlying health problem - NOW that it's urgent as he desperately needs to start on new drugs to try and control his ever increasing seizures (10 runs of infantile spasms yesterday) and after my getting so "assertive" that the doctor was visibly shaking things are beginning to move. If this was a one off I could handle it, but it seems to be everywhere. Recently I refused to leave a chemists until they had sorted out his medication. I am a very calm, polite, intelligent type of person normally but I, as does everyone else here, have better things to do with my time that spend hours chasing things that should be happening automatically.

There, I think I've just about vented my spleen (maybe I should call a doctor about that - or maybe not). Thanks for listening. Adelaide

Oh tell me about it Adelaide. I have been ranting about this on here over the last week or so- have a look on private vs state health care and ludicrous -rant - under health.

I think we should start a UK version of "mother's from hell" They're a US organisation- and have a website (I don't have the address). Unless you're in Aus when you could start the Aus chapter

I find dealing with the so-called professionals so much harder than dealing with my son!

Adelaide - I don't have the same issues you do but even with a simple fever and flu that can't be shaken after 6 visits to the doctor I lost the plot too. I don't know why it is but it just is. What happened to the theory that mum's know even if there doesn't appear to be anything wrong? Surely you would think that your regular doctor would be able to tell whether you were plying your children with drugs or a complete hypochondriac (there's a definition for parents that impart sypmtoms onto children but I don't know what it is) on behalf of your children but they just seem to assume that you want to give them antibiotics and other things for the sake of it.

I don't know why it is, or how to fix it but I wish I did.

I learnt that lesson when Dd had heart surgery and thanks ( not that anyone will admit it) to stuff ups Dd ended up back in intensive care TWICE. To the point that I swore at a doctor. I have learnt to value those who value and respect me and others - well they take me as they get me. I figure if that is what it takes ( as wearing and stressful as it is) then that is what I will do for the good of Dd.

BUT it is wearing and annoying and you turn into someone you aren't and it should not happen. No advice just wanted to say - I understand and feel free to vent all you like.

Don't worry maryz- I've ended up sobbing on ds1's nursery managers shoulder not once but twice!!! She's used to it though- she has quite a few special needs children at her nursery and I think all of us have ended up sobbing in her office at some stage.

Can I tell you - you are not alone - went to a meeting today re: special needs education and this sort of thing is the norm not the exception.

Hi, glad to hear I'm not alone and good news is that after my little outburst we are seeing a cardiologist today and are being admitted to Guys next week for ds to be observed by a specialist paediactric urology team - maybe then we can start the course of steriods that may just stop his seizures. Not looking forward to another stay in hospital (the chocolate machine is always far too close to the ward!) but happy things are moving again.
Take care all - Adelaide