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Confused by MRI results, I think we're no closer to knowing.

27 replies

mumgoingcrazy · 01/07/2009 19:02

We finally got our MRI results today (through the post which surprised me). "DD2 has a slightly unusual looking brain and has immaturity. This is common with children with developmental delay and doesn't tell us the underlying cause of her delay".

So that was it really, I tried to call and of course can't get hold of anyone to ask why her 'brain looks unusual' and what it means.

Has anyone else had this and been told what it means and why? Also, if a brain is immature does it eventually mature or will it always stay immature?

Probably very stupid questions, but it's just whizzing round my head and I can't speak to anyone who may know.

I'm off to babysit for a couple of hours but will check in later, thanks in advance anyone who may reply.

OP posts:
mumgoingcrazy · 06/07/2009 13:39

Well I've just spoken to the geneticist and she is meeting the radiographer on Wednesday and will send me a full report after that. In the meantime, she did try to answer my questions and her 'slightly unusual looking brain' means dysmorphic features which would have been present when the brain first formed. The immature brain meant that myelination was delayed. I've googled it and it seems it would definately explain the sensory issues and the motor. Myelination is genetically determined so nothing to do with the chicken pox she had at 6 weeks, although this might not have helped matters. She couldn't tell me what this meant for DD2's future.

Does this sound familiar to anyone? I'm in the process of claiming DLA so think the report would be useful to send with this. Hope I get it soon.

OP posts:
sarah293 · 07/07/2009 10:18

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