I'm looking for tea and sympathy while I rant. I'll provide the tea and rant - you guys provide the sympathy and stories to make me feel not so alone.
ds1 (4) has had behavioural and emotional problems for about a year. It peaked about 3 2months ago where he would be tantruming 20-30 times a day, even in his sleep and be violent towards me or his younger brother about 5 times a day - but literally every opportunity he got. A lot of his behaviour indicated ASD. He was a child in real emotional distress. I went via HV for referal and have now been waiting for 4 months.
In the mean time I've done loads of research, reading and found some local support. I now have a special dressing routine for him, sensory toys to help him chill, a gate on his room so he has his own space (from ds2 (2)), 30 minutes 'rug time' where I have been building his concentration with games and sensory reward, and an hour a day closely supervised play where I am literally doing a running commentary to teach apporpriate behaviour. I am also much more aware of his sensory stressors and am doing my best to help him avoid / cope with these.
The change in him has been amazing- actively seeks out other children to play with, has just started imaginative play with running commentary, talks about his feelings, rituals and rules are disappearing- he is unrecgnisable from 10 weeks ago.
Luckily none of his problems occured at pre-school so his nursery workers have largely been oblivious to the problems- except when I talk to themI can tell he has displayed he sensory stuff there.
Since the preschool got asked to write a report by Ed Psych every day the preschool owner has singled me out to say 'i know you've been worried but there really isn't a problem' - this has always wound me up because I am his mum and if I say there is a problem (as does the HV and a SN behavioural specialist) then there is one.
But today she just topped it off with telling me I just needed to realise he was a lovely kind boy and I was just worried because I was so inexperienced. I was so angry I cried as I walked down the road.
Am going to kids birthday party with ds1 withg similar minded people tomorrow and dreading it - must make sure there are no sharp objects about.