Apraxia help advice please

[Phoenix4725]

We just been givena dx of severe Apraxia and that we need to start accepting that ds is really not going to speak much if anything and that its now time to start looking at communication aids .

Anyone else got /herd dx of this kinda took wind right out my sales , guess I always speech would come

bumping for moondog total chaos,lingle anyone

Sorry Phoenix I only just read this - did the people who gave you the dx provide no guidance on communication aids at all? I know that Mrs. Turnip knows a lot about communication aids for non-verbal children, but I don't know the implications of apraxia. Sorry not to be of much help, and bump

.Thnks for the bump and the hug sorley needed she mentioned something lite ,but did not really take it in she told mego home and take some time to get used to it will see her again end of June but cant sit wait till then way I deal best is by geting a smuch knowledge as i can.

I've been told to let it all sink in as well, but find it impossible to just sit & wait.
It occurred to me that a friend back in Italy whose son with ASD is non-verbal uses a computer thing called Dynavox, a version of which is also used by Mrs. T's DS. But have no idea how difficult apraxia makes it to operate computers. If you Google Dynavox you can have a look - the Italian friend says the computer has increased her DS's (8) cool quotient in school no end

thanks trouble is ds also has GDD and problems with cordination but of to google it now

How old is he Phoenix?

We have the boardmaker activity pad.

DS1 loves it (and it's relatively cheap- we self funded) but if you have funding I would go for something better. The BAP is for work stuff as well as communication.

inclusive technology is one of the best places to look in the UK.

Although I think the tango (can't link at the moment - website is down) looks wonderful (with a price to match). They have an emulator on their website. I would LOVE to get it for ds1 (now I see how well he has taken to the BAP) but we would need to track down funding.

There must be a way of getting the money for this Tango thing, Mrs. T. Perhaps a sponsored this or that?

There are charities etc that will fund. I'm going to talk about it a bit more at the annual review.

sorry no useful thoughts only good wishes.

thank you

hes nearly 4 but with the gdd he issmore like a 18-month-2 year old.
Is due to start at ms this year butim fighting lea for place at sn school which means he wouldnot start to easter

He is trying to us a tracker ball though and loves computers .

phoenix - not got much useful to contribute I'm afraid, as we never used anything more technologically advanced than PECs - sorry that this is the dx, but I hope that at least having some sort of explanation will help you. You may find it useful to sign up to the forums here:- www.specialkidsintheuk.org/, and look at the communication board, as posters on there have experience of communication aids.

DS2 learned via a tracker. It took a while but he got there. He is a whizz on the mouse now

You can also get screen things that clip onto your computer screen to turn it into a touch screen. We used those for a bit.

ds2? ds1 I mean!