hypomobile joints what have they used or treat your child with?

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we knew chloe was hypo mobile and hyptonia, was told today its causing her bad walking gait what can we do to help her ?

ds 1 , ds 3 and myself all suffer with it

It comes in various degrees

for myself i had physio as grew up and wore supports in my shoes and eventually needed surgery on my knee
but now at thirty something, np as such just achey from time to time

Ds1 15 has had physio and swims regulary and is ok just has to advoid contact sports few dislocations but otherwise fine

Ds3 3.10 wears Piedro boots , though he is getting splints as they not helping , he walks with a very odd gait cant run , climb slides tires very easily , So they just ordered him a wheelchair ,
.Was advised take him swimming as much as possiable and try soft play areas also fish oils as well .He defintley suffers pain with his joints and have be lot more carefull when he plays we first name terms with some of A and E

thanks Phoenix i suffer to have ahd loads of dislocations and have been told need surgary but am not going to unless i have to, chloe seems worse then me and i thought maybe now they do other things for children than when i was small( but i guess doing gymnastics dint help). can i ask does your ds get tired very easy? chloe as days when all she does is lay down.

yes ds does and some days he struggles to walk think its the mix of the hypemoblity and the hypertonia we are waiting on a chair from wheelchair services .

No it does not seemed to have moved on much at all in the last 20 years

and yes i did gymanstics to even now at 35 can still do spilys much to kids amusements

Just be aware surgery is not the allfix it sadly failed forme though now older not throwing myself round quiteso much

i know we have family 2 of my brother had surgery and i sister and my mother and tbh i dont want to go down that route. the genetics are looking at our family due to so many having it. chloes thumb came out a few weeks ago i just pushed it back with not much pain, shes only 2 in june. our pysio is coming tomorrow we are asking to be put forward to wheel chair services to

yeah the sn hv was like no you wont get anything and would not help but physio did referal and they was really good.Decided againsta buggy as people already treat look at ds as a baby but hes almost 4 .
Think they take referals from 2 younger if theres need for support

Its defintley genetic inour case .

Dd (12) has had physio and used insoles in the past. Now she sticks to a pacing programme, doing just enough activity, but not too much, every day. She does ballet when well enough. She uses a wheelchair for backup and gets taken to school by disabled transport. She has had surgery on her knee, but that was due to overlarge meniscus so possibly not hypermobility. She gets exhausted a lot of the time, and is very infection prone.

The best thing that ever happened to her was being seen by an occupational therapist who also came into her school and looked at the details of her school day: how she was sitting, how to write without hurting herself etc.

Ds (9) wears piedro boots and insoles. He is stronger than her and less frequently ill, but struggles with writing as his wrists are affected. Lots of things he can't do, like writing for long periods, or manipulating cutlery. Has used wheelchair once or twice, may have to in the future. Is waiting to be referred for physio and occupational therapist.