non verbal , why?

[Phoenix4725]

We are due to see our paed for review and am wanting to push for more reasons why ds 3.10 does/can not talk other than the GDd which hes at 18 month or so but his speech is nothing and they seem adamnt he is not on the ASd

I am just curious howmany of us have a non verbal child and ever been given a reason why , or any tests been used to look into it

bumping for you
list any other behaviors that worry you as sometimes there just isnt enough of certain behaviors to dx anything different

my friends ds didnt display enough for a dx of ASD but at next appt she took list of all his traits and was enough to make a dx

but i do also know another lady from sn group and her ds is non verbal and has never been given a dx again he doesnt display any ASD traits at all

sorry i cant be of more help i would just say list any traits he has

xx

My ds is totally non-verbal at 6yrs. We have never been given a possible reason for why this is the case.

I haven't pushed for any explanations either because I don't think they know!

ds has never ever said any words at all, cant blow, pucker his lips or blow raspeberries , has problems with chewing but he can suck through a straw he never baby babbled either never had the ddd , gg gkkk sounds ,The thing that throws them is he wants to comunicate as produces diifernt ranges of squeals etc

salt has altered from delay to dx of sli ut even shes at lost to explain why so really just diggng see if can pick up any clues

he is signing with makton, though this will mean he has to rely on someone being there to translate.

he doesnot have to many obviou ones, was more never pointed or waved till he was almost 3 and then he had to be taught was not natrual he struggles to soically play with opther children except his sibblings, but will interact wwith adults , needs prompting to remain on tsk

i do wonder if thr hypertonia has affected his speech but that seems affectd him more physically from chest downwards

ds2 was non verbal at similar age, no animal noises, in fact no attampt at communication at all.
His dx at the time was GDD & mild CP.

He is verbal now age 6 but has communication difficulties, word finding mainly.
His dx is now ASD & mild CP.

I was told that speech & communication is one of the most difficult things to master.
It was only as ds2 got a little older that it was clear that his behaviours were ASD & could no longer be attributed to toddler behaviour & delays.

Sometimes it takes a while for them to seperate out the behaviours & give a dx, so they use the GDD in the interim.

I was also told it can be harder to dx a very passive ASD child not sure if this is the case or if they were spinnging me a load of rubbish.

Can a SALT give you a better idea of whats going on?

Phoenix, ds2 could suck through a straw but could not drinl from a cup, it all just dribbled down the sides!

Maybe they use very different muscles & actions.

ds is very passive and yep no animal noises one assemnt put his verbal skilsl on the 3 month level and his receptive around 18 months which is on par with his delay in other areas

Me thinks time to push for some more answers.

Salt is at a loss , did ask her about verbal aspraxia but she seems think not have mooted that some kinda damage to the brain at sspech area

Types this once but it disappeared!

They do sound similar in some ways.
Ds2's receptive language was always far better than his expressive.
The are more on par with each other now though.

DS1 is 10 and non-verbal. He has significant problems with language but also a very severe apraxia, so the words he does say (which is quite a lot) is totally incomprehensible.

No test ever, it took five years from me first noticing to get the diagnosis of verbal dyspraxia (apraxia).

I know someone who's son is non-verbal, makes no sound at all, but is not asd. I can see differences between him and my ds. My ds makes sounds, does not understand gestures, can not follow point. Her ds has fantastic social eye contact, and good imaginative play, and loves to communicate and is very good with makaton. My ds never really took to makaton and does better with pecs.
My ds had a dx of gdd, then gdd with asd, and then just straight forward autism, now possibly with dyspraxia/apraxia.
My ds's receptive language was barely at one word level, but now can understand two/three word sentences, which is down to pecs.
He can not use a straw, but is just beginning to drink with a cup, with help, but finds it difficult. He also has physical issues, can't climb stairs etc, pedal a trike, poor balance.

Deeja- my dd2 sounds a lot like your DS, we are expecting a dx in the next couple of weeks, dd2 makes a lot of sounds and around 5 words (one at a time), she can only understand one word level but is working on two, she can drink through a straw but not a cup, can't climb the stairs without help and has poor balance.

There are 2 boys at dd2's sn nursery that are non-verbal but not ASD (they are 4 years old), they seem to understand what people are saying and can follow commands.

ds can not climb steps either,run hop, jump can walk though not for long or far and not with a normal gait and is at one word level receptive wise , he does not do imganitce play and will only make ey contact with adults not other dc

he need signs s to understand what people are saying as well , deeja and marne how old are your dc, ours all seem very much on a par

saintlydamemrsturnip

think I shall be asking salt on weds does she feel it verbal dyspraxia (apraxia).

hi there

i was wondering if you had got any answers from bibic? wether or not they had given any clue?

DS5 hasnt said anything again yet, its wierd actually, as some months ago he managed to say "blue" (as in 'blues clues') but never said it again . we dont get any animals noises either, but doing well with Makaton. His SALT says he has Apraxia too, he cant manage a trike and needs help up stairs, I swear he could fall over the pattern on the carpet!

However he can manage to blow, suck a straw, drink from a cup (bit messy) and copy occasional facial movements - blinking, and the 'ahh' game (where you get nose to nose and just open mouthed ahhhhh as loud as you want, im not keen, but DS4&5 love it).

The closest we have come to a 'diagnosis' was on a letter about a 'communication and social interaction' meeting. Where his Paed had said that "....DS5 shows Autistic traits.."

no DS5 cant run,jump or hop either, and walks like he only learned a few weeks ago. He can now pick out a word he knows from a sentence but he doesnt understand the rest of the sentence. eg "my father bought a new CAR last week" would mean the same as "shall we get in the CAR".

hmm intresting we never had even one word and blowing is a ant do and kissing bless he looks like hes going take chunk out of you

misscutandstick
bibic was really intresting they pinpointed his verbal level at stopping around 3 months and yes I did have a cry but was not exactly unexpected , receptive around 15-18 months .his gross and fine motor were around 18 months though he was missing some of the skills inbetween

We also saw a neurolgist who rasised concerns that he has a lot of weakness from his chest downwards , but neuro also mentioned that he feels ds warrants more tests into looking at why hes having problems, paticulary with speech being so far behind hes writing to paed saying he would like to see him under his nhs pratice in London so fingers crossed ,

And i shall be rasing wih salt on weds yes ok shes said he has sli but think we need some idea why so best way to tackle it

hmm intresting we never had even one word and blowing is a ant do and kissing bless he looks like hes going take chunk out of you

misscutandstick
bibic was really intresting they pinpointed his verbal level at stopping around 3 months and yes I did have a cry but was not exactly unexpected , receptive around 15-18 months .his gross and fine motor were around 18 months though he was missing some of the skills inbetween

We also saw a neurolgist who rasised concerns that he has a lot of weakness from his chest downwards , but neuro also mentioned that he feels ds warrants more tests into looking at why hes having problems, paticulary with speech being so far behind hes writing to paed saying he would like to see him under his nhs pratice in London so fingers crossed ,

And i shall be rasing wih salt on weds yes ok shes said he has sli but think we need some idea why so best way to tackle it

Phoenix- my dd2 is 3.2 years old, she cant climb up the slide or go down it by herself, Dd1 (5.2) has only just mastered the slide (she has AS and has poor balance).

update w e just got dx of severe apraxia even before I could ask salt she told me .and been gently suggested we start looking at communication aids now