riven are you about?

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what you said i went looking at this linkwww.ich.ucl.ac.uk/gosh_families/information_sheets/alternating_hemiplegia/alternating_hemiplegia_fam ilies.html

well sounds just like chloe am going to mention it on monday thank you so much!

yes the floppiness does the stiffness is more on a episode , god so confused you should be some kind of advice for people you know so much !

shes back home had a good rest now full on it again well nearly. thank you so much for your support.

ds does this too, its dystonic spasms with him and apparently is really common.
next week and we can compare notes!

ds's arms jerk up and he draws his legs up, doc said it was persistent primitive reflexes which is very common in kids with cerebral palsy
this info is from a holistic therapy woman in your neck of the woods who deals with sensory problems apparently?

know what you mean, to be honest i looked into loads of stuff when ds was younger, now i pretty much realise he is how he is and while a lot of these things might work for some kids i have neither the time nor the money to take a chance, he is happy and thats good enough for me at the moment

you to are great mums!