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Can anyone help with advice on possible Aspergers syndrome Dx and rages in 11 yr old DS.

6 replies

TheMitsubishiWarrioress · 12/05/2009 07:37

My DS (11) has just been recommended for AS Dx. (low spectrum)

He has the most awful rages and has just had one. It is mostly verbal at the moment. Does anyone experience these and just struggle sometimes to put it into perspective of their DC's problems and just want to howl?
I know he doesn't mean the things he says and try to be calm and calm him down but I just wanted to cry cos I needed a quiet day without an outburst, and where do you find the strength to keep going in circle knowing it is going to be an uphill struggle to achieve any thing close to normality?

His Dad and I are separating and I am a mess as it is. DD (6) mimicks his behaviour, but no other concerns about her.

When he calms down he will talk like a 2/3 year old that has had smarties and coca-colA.

He is excellent in new surroundings but as he starts to relax becomes more like the true self we know. For example he has started having outbursts at clubs, where before, with the novelty value, he was 'safe'.
The kids poke fun at him, get him wound up and then laugh at him. He was beyond comfort tonight.
I tried to get him help at many stages, the saddest being when we got very close, and the specialist signed him off. He was then retired due to malpractice and my Son's mentor said they were doing a lot of work now with children who had seen the man. 5 years of emotional battles because no one would listen. .

Walking away from cricket tonight with him screaming at everybody, in his own personal misery, with his 'friends' laughing at him broke my heart.

It gets broken a lot.

At least maybe now we might get the support he needs and something to work on instead of wondering what I have done wrong all the time.

Sorry, tired and emotional...but it helped to offload a little.

OP posts:
TheMitsubishiWarrioress · 12/05/2009 07:44

Oh and appropro to nothing I keep getting headaches where it feels like my head is filling up with weird pressure, I get shooting pains in my neck, feel like I am going to faint and then it passes.

Probably psychosymatic(sp) but aarrgghh!

OP posts:
mumslife · 12/05/2009 10:55

This reply has been deleted

Message withdrawn at poster's request.

TheMitsubishiWarrioress · 12/05/2009 13:28

DS has always confined them to home as he hates being stared at or laughed at but he is starting to lose that perspective.

I would appreciate advice as he is starting secondary school in septenber and it makes me feel a little sick. Although apparently the particular school is good with DC's like him.

Thanks mumslife.

OP posts:
AttilaTheMeerkat · 12/05/2009 14:03

Has anyone also suggested that you apply for a Statement for your DS re his additional educational needs?. I would seriously look into applying for such a document asap. its legally binding as well unlike other support which may be offered.

Is he on anything like School Action plus currently?.

IPSEA have lots of information re Statements and their website is detailed below:-

www.ipsea.org.uk

TheMitsubishiWarrioress · 12/05/2009 14:10

Thanks Attila, I am just getting to that stage now.

Trying to put things in place.

It is the kind of advice I need.

OP posts:
milou2 · 12/05/2009 23:40

SOS!SEN might be able to help you over the phone. 020 8538 3731.

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