appt with Paed today over DD,s recurring UTI,s

[jenk1]

He is referring her for one of the two following procedures:

A catheter where radioactive liquid is placed to see if there is some returning into her kidneys

or

A radioactive liquid placed into her blood.

i dont understand either of them tbh but im glad they are doing investigations to determine why she keeps getting these UTIs, (well i not glad she will have to have one of the above treatments but you know what i mean)

and then tomorrow we are at CAMHS for the 2nd part of her ASD Assessment and next week we should get the dx (if any,there better had be or i wont be responsible for my actions) and then we are at the childrens hospital next week for her hearing,goodness its all go isnt it.

Blimey Jenk, a busy time for you but I hope you get some answers & support.

Good luck jank and minijank. Nice that they're doing something at last.

BR

e not a

jenk1 sounds like a kidney reflux test, my dd had one of these,

ah right i see. would you mind explaining what it is trace and what happens etc,i like to know things beforehand cos of my AS and also i can sort of prepare DD.

TIA

i could explain but this is better kidney reflux test
familydoctor.org/online/famdocen/home/children/parents/toilet/370.html

chloe had a few of these tests tbh chloe was only a baby and one of the tests i really didnt like i dont want top put you off butif you really want me to tell you i will

hi jenk, if you can avoid the catheter route then do. my son had a catheter when he was 2 and it was agony for him, the nurses said his bladder was not happy having a foreign object in it. he was in agony with spasms. I dont mean to scare you and perhaps it was because he was so young but i begged them to take it out in the end

no i dont want her to have a catheter,shes ASD as well with sensory issues so you can imagine what she,ll be like, thanks for providing that link,im going to have a good read of it.

hi jenk - yes, these are the kidney reflux tests my daughter had.

She had the dye into bloodstream test first, as less invasive than the catheter. Her consultant said that that is the normal way round for them - ie. if that test shows up anything - they will then do the catheter test to check how much urine is going back up and how quick etc (though he was saying this to DD, so may well have been simplifying things!)

My DD also has sensory issues (as it happens we are back seeing consultant today) and for her, the worst bit of the dye into her hand scan was the use of plasters over the magic cream, as she has such a fear of taking them off!

The catheter one she managed ok with - i noted brandy's post - maybe it is different for girls? A nurse put the catheter in on the childrens ward (separate room) and she was then wheeled upto the radiographer suite. She certainly wasnt in any pain.

We got the results a couple of months later.

Hope all is well with your DD

ok, just had a look at the link trace put up. Seems like they did the tests this way round for my DD as her first ultrasound scan showed some kidney damage, so were checking for damage first with the dye into bloodstream. As that showed up the scarring and the dead part, they then did the VCUG.

I seem to remember in your previous thread that you said your DD had had an ultrasound, which showed up as normal (could be getting you mixed up though!) so maybe they will do things the other way round with your DD?

Either way, as i keep saying to my DD, short term uncomforable (as really, she did not have pain apart from the plasters) is much better than yet another UTI.

I hope you dont have to wait too long for your scan. My DD had to be clear of infection for 2 months before they would scan her - we were so careful lol, practically wrapped her in cotton wool, as we didnt know why she was keep getting the UTI's.

thanks jetcat for your explanation,yes she had a scan last october which was clear but since then shes had about 10 UTI,s.

like your daughter my dd hates plasters,she wont have one on if she falls and cuts herself, she went ballistic over the scan as she didnt like the gel on her belly either.

mine is on long term antibitoics now, so hopefully she wont be getting any more! Mind, whenever she comes downstairs looking pale, pain in side etc. its still a nervous time.....

fingers crossed for your DD x

my son did have the catheter in for nearly 2 days jetcat, perhaps thats why he was in so much pain. glad your daughter has long term ab's, my son is on trimethorpin daily which has kept his infections away thank goodness

brandy - bless your little one - two days - wow!

Glad he in getting sorted now

unfortunately DD had an allergic reaction to trimephorpin and they wont prescribe it to her,they have said its the best as well for UTI,s.

she is on 2.5ml of nitrofurantin and that seems to be doing the trick,yesterday her sample tested negative for any infection which is a good thing.

fingers crossed

DD's kidney today seemed surprised that she wasnt on trimephorpin - she is on kefelxin(sp?)

she has took the trimemorpin in the past though, and still got an infection!

She has to come off her meds for one week now, and be tested again in a week - i do so hope she wont get another infection in the meantime!

dd as i said had all tests and on long term trimethorpin the catheter and we had trouble as i said chloe was only a baby and they could not get it up they said her hole was closed up so went and got a very experienced doctor and she did manage but chloe was in lots of pain as they made her sore i ahted holding her down while they did it, but i heard they normally very good and quick. good luck to your dd keep us informed please.