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SN children

Here are some suggested organisations that offer expert advice on special needs.

Notice how packed this forum is?

51 replies

mamadadawahwah · 03/05/2009 22:23

Either more people are becoming aware of the forum, or more kids are developing 'conditions' that bring parents to forums like this.

is this the most visited forum on mumsnet? i bet its close.

OP posts:
Deeeja · 03/05/2009 23:03

For me, this is the only place that I can really post about things that I can not talk about in rl, which would be almost everything. I come here and everything here is what I actually agree with, that 'normals' just don't get. I feel at home here. I can only guess this is how it is for everyone else. I don't have to put on a show, and no-one cares about my spelling mistakes

milou2 · 03/05/2009 23:08

I find it helpful, so I come back.

frustratedmom · 03/05/2009 23:10

I was advised to check this out by a pharmacist when i approached her for a solution to a sleep problem. i think word is out that advice is available and good. And there are other people with the same people so you don't feel alone.

maryz · 03/05/2009 23:30

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2shoes · 03/05/2009 23:32

'conditions' ?
dd has a disability

2shoes · 03/05/2009 23:34

sorry I am touchy today, yesterday db said dh was ill!!!
he has epilepsy !!

Deeeja · 03/05/2009 23:37

I have the fever of statement reviews, and am slightly hysterical,

moondog · 03/05/2009 23:38

It's fantastic, so much useful advice.I recommend it to parents and professionals as work in this field.

4nomore · 04/05/2009 10:43

Condition? When the autism advisory teacher came out to see my son he asked "Is his diagnosis Aspergers?" I replied that it is ASD and he then asked "So you don't prefer ASC? Some parents prefer condition to disorder." I told him you can call a spade whatever you like, it's still a spade...

Very good and supportive forum. Friendly but not waffly (if you know what I mean).

anonandlikeit · 04/05/2009 10:51

Because its not restricted to one condition (like many specialist/specific support group) I find it suits us best as my ds2 ahs CP & ASD.
Definately lots of advice on here - hey wouldn't have got DLA without it!

ilovepeppapig · 04/05/2009 11:10

i like how you can talk about lots of different conditions/disabilities here as my dd has 7! so she doesn't "fit" in one place.

you get brilliant support (although i am mostly a lurker)
looking forward to summer meet up in colchester to meet people who have become my "friends".

tclanger · 04/05/2009 12:24

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amber32002 · 04/05/2009 12:34

It's helped me a huge amount too

pagwatch · 04/05/2009 12:41

There are definately more children being daignosed with ASD and related stuff - which might be swelling the board.

treedelivery · 04/05/2009 13:16

Pagwatch - Riven - anyone

Have I commited a cardinal sin by asking something about living with sn on a different thread/topic?

I have just realised that it's actually a bit crappy isn't it? In my defence I wanted to know as I am tring to gain more understanding of life with sn, but I think I just tried to use Riven as a learning resource without a by your leave.

At least I know Riven will tell me where to go if she feels this is in order.

treedelivery · 04/05/2009 13:23
bubblagirl · 04/05/2009 13:33

love love love this forum best place for me kind and understanding people being able to share your feelings good and bad

ive had fab advise off fab people and have happily shared some things and hopefully helped others myself

its just full of wonderful people i feel happy to share my life struggles and achievements with xx

thank you all

sarah293 · 04/05/2009 13:35

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treedelivery · 04/05/2009 13:38

Here

solfest

sarah293 · 04/05/2009 13:48

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treedelivery · 04/05/2009 13:52

In F.A.Q is the policy. Sorry I thought it would link straight in.

I thought it was interesting by it's lack of formality, and it seems very flexible. BUt I see downsides to that, like if the things you need don't happen, and someone said they would - then so what. There is no protection iyswim?

sarah293 · 04/05/2009 13:57

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treedelivery · 04/05/2009 14:03

Go! Come! Not at all possible?

I do apologise for seeing 'Riven who knows about this stuff' instead of 'Riven on a thread'. Highly rude. At least I realise. Tut.

The organisers sound well intentioned, and it is sound that they have to provide the essentials. I think what would concern me [neurotic] is that it's all right being well intentioned, but with these things, if it' s needed it's needed. Informal arrangements might not deliver and then where are you. iyswim

Cheers for opinion.

You should go. Research and all that

sarah293 · 04/05/2009 14:07

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jabberwocky · 04/05/2009 14:11

I think the new MN format has also helped a lot. Before, special needs was the only "opt in/out" topic and maybe people opted out before giving it a good look?