Microcephalyth

[morethanyoubargainfor]

Does anybody have or know of a child with the above condition?

Could you please tell me more about it, how it affects the child, impacts on family life etc.

I would be very grateful for any information shared.

Hello! Can you give us some context, is it your ds? What have the docs said?

hi, mad mouse,

the reason i ask is not directly linked with my DS but does involve another child who could be living withus. I really can't share any more info than that at this stage.

Docs haven't really said much at the moment.

the reason I asked is because the word microcephaly is quite useless (and because your initial post was so non-specific that it sounded a leeeetle like an illicit journalist's request!!)! My ds (who has brain damage and mild cerebral palsy) has a small head (which is what the word means) but the rest of him is also small and he is as bright as a button.

If you google microcephaly it tells you all sorts of scare stories, but as my ds's consultant says it is not the size of his head that matters, it is what he does with it.

thank you madmouse, thats a good point and one that i may use .

The child also has other learning disabilities but this is the only diagnosis so far, so that was what we have researched. i know what you mean about scare stories.

I am defo not a journalist, thanks for talking to me.

Hi morethan.. is he school age, is it appropriate for you to discuss with them specifically about this child or are there other professionals who you can discuss specific concerns with.
I don't know mcuh about this condition but I am guessing that as with most conditions the range of abilities/disabilities can varify hugely.
Like no 2 children are the same no 2 disabled children are the same.

Whereabouts in Suffolk are you(i'm in suffolk) I may be able to suggest some good sources of info.

Hi ahon, no he is not school age so can't discuss there.

I am west of ipswich, where abouts are you?

I am hazrding a guess that you might be looking at fostering as my parents did for years and had to be very carefull on what they said.

Do you know any of the professionals involved with the child, and how much of Ld does the child have they can be huge range,
is it just ld or is there some problesm with behaviour as that can impact more on the famly

Do you have dc yourself?depending on their ages its worth talking to them my youngest has ld but if anything it has made my older dc more aware and protectve of their brother

my own DS has hydrocelpalus, he is 6. I really don't know any more at this stage, i was just hoping to find out 'real' expierences rather than those you read on the internet.

Hi morethan, what you need to know is what problems this child actually has, rather than the size of their head, then ask us about those problems, that will be far more use to you!

Morethan, I'm near Aldeburgh so a bit of a distance from you i'm guessing, but we have had fantastic support from the CDC at Ipswich.

what size is microcephalic ?