GDD when does it stop being a delay

[Phoenix4725]

anyone know when' they' stop calling it GDD and start refering to it as learning diffculties .

Seems when i mention GDD everyone starts with the oh that means he will catch up or thats good means its not permant and not just talking joe public lot of the proffesionals seem to take that line to ,rather than looking why they just sit on fence and a well were see in 6 months a year .....
even to access some of the courses they wontif the labes your dc has GDD

No idea although DD1 is now 4 and no-one expects her to catch up now.

when ds2 was transfered from pre school to school age services his reports changed, they no longer refered to him as having GDD & cp but as having LD & CP, although this was about the same time he was dx'd with ASD. So dx is now, CP, ASD & LD

Ah, that would make sense.

Thank you

ah ds is almost 4 and just wondered ,I fully accept that he is not catching up and that as hes got older it is more obvious gap.Now just wish the proffesionals involved would acknowledge that he has Ld and realistaclly always will

As far as I was aware GDD is simply a "catch all" term for any LD that hasnt got an official dx or they cant find the genetic cause. i know a few parents who have been devastated when they have realised that their child isnt going to catch up with their peers. IMO its a very misleading term.

I wonder the same about language delay, will try and remember to ask SALT today.

misscutandstick

Just read the link in your answer ,and yep it is intresting .I accept ds will not catch up but when she says when the reason why is known can give the parents and professionals some idea of furture devlopment and help needed.That rings home like you we no reason why infact they not even looked why ,they been siting on the fence waiting to see what happens.

Total#Chaos

Would e intresting to find out when it stops being a delay ,We no shifted from delay to sli so im just curious what distungishes between the 2

GRRR doncha just hate "wait and see"... only to be told, "well its too late now". I NEED a reason, i honestly feel that "wait and see" will tell us nothing other than, "oooh you were right, he does have LD" GAHHH

Lou: are you there?

Those "slap in the face moments" you talk of ie. your DD's friend going to play with her freinds. Yep we still have stairgates too - bathroom out of bounds. tho DS5 is only 2.11y i feel his gap his getting ever so slightly wider too. I was thinking about this earlier - it occured to me at about 8wks (3wks late) old that he wasnt as 'interactive' as perhaps he should be, didnt sit unsupported until 10mths (2mths late), learned to point again 2.5y (18mths late), builds only 3 blocks at 2.11y (18mth delay) - only picked a few items here in this list, but it shows that each milestone is getting more and more delayed.

Perhaps its at a time when most major development in a childs life has reached its peak, and then they are only adding to what they already know/do, that it becomes LD and not a delay? Because at that point the child is going to have to be taught carefully rather than a natural tendency to 'pick it up'?

Hi misscutandstick, I'm here

It is good (and ) to see other people facing the same issues.

I get so confused, for example, when her 1:1 says "she's been fab". Is that 'fab for DD, as she is' or 'fab as we would expect any child of her age to be'?

I get told all term she is 'fab', then get told that she needs extra funding, because she isn't coping with the level of 1:1 support her funding provides.

I see her sister, 20 months, doing 'moves' when dancing, that DD1 can't do, and only this week DD2 started drawing rough circular shapes. DD1 only started doing this in January, and 3.1.

Nobody tells you what to expect, do they? It is just wait and see. I go from thinking that I am making it all up, and that DD1 is just headstrong, etc. To being slapped in the face by the fact that the DWP awarded her High rate DLA on first application, just with the routine paed reports as evidence.

i knew ds had problems frm 6 months but was almost 2 before I could convince someone that there might be a problem and think It was really done just to shut me up

ds only learnt to point at 3 walking happened at 2.9 remeber thinking he would never get there mind he looks like a drunk sailor though

ds has the ablity to learn know doubt about that, but what i do know i tht it will need to be delivered in a way he can understand it,otherwise he will just not learn anything

i knew ds had problems frm 6 months but was almost 2 before I could convince someone that there might be a problem and think It was really done just to shut me up

ds only learnt to point at 3 walking happened at 2.9 remeber thinking he would never get there mind he looks like a drunk sailor though

ds has the ablity to learn know doubt about that, but what i do know i tht it will need to be delivered in a way he can understand it,otherwise he will just not learn anything

My dd, 22 months, has now dev delays and sees OT, PT and soon SALT.

When she was evaluated by a psy she said she had a 25% delay. What she said, is althought it could get better, "chances" are she would not and she prepared us for a MR dx.

So for us it's dev delay until her next eval so we will know if she will go to a special school...Wait and see...

That's interesting. DD is/was 50% delayed in some areas, 33% in others, etc. But nobody has told us what that 'means'. All the SALT said, when pushed, was that DD was likely to need 'some help' at school. This was in the same session that she said DD could not be seen in her clinic room anymore, because it was too unsafe, because DD was climbing, banged her head several times, etc.

still under30: what is 'MR'?

oh, its ok - just realised

awful words those arent they?

Miss, Indeed, not fun words...

I think the reason the psy was so forward with us is because we asked for the eval, because we wanted to know where our dd stood, she told us that usually the first psych eval happens at 3.5.

Anyway right now she is with her peers at the daycare, so I just hope she can continue to follow.

And we have to remember some professionals sugarcoat because they find it hard to talk about mental issues with parents...You know, the crying stuff...

Its definately better to know where you stand tho - then you know the direction you are going in, however hard it is to hear. Facts I can cope with - its just how it is, flannel, waffle, fob-offs... just dont help anyone. IME Once a person comes to terms with a Dx, they start looking forward, therapies, professionals, experiences, etc cant be sought if the parent keeps being told, ahhh we'll wait and see.

Actually its just brought to mind one of the last appts with the Paed for DS5, he said "but isnt it nice to have a baby for while?". "yes" i replied, "but its not so nice when hes 11yrs, and what if he never grows up?". The paed didnt say anything, but just looked more serious and agreed.

Dont know if that was him telling me something, or trying not to tell me anything...

Phoenix: just re-reading your post "...walking happened at 2.9 remeber thinking he would never get there mind he looks like a drunk sailor though.." DS5 walked at around 14mths - but he still looks like he learned only a couple of months ago. its very wobbly and jerky, and hes been walking for 22mths.

My son is nearly 12 now but was labled GDD from about the age of 3 months (!!) until he was about 6. It was then we noticed the reports stated 'learning difficulties' then 'complex learning difficulties and hypotonia' then 'Autism and CLD..'

I think (don't shoot me) that often the GDD IS valid because you often really cannot say how a child of say, under 3 , will progress over the next few years. I'm both a Mum to a disabled child and also an educator, and we see children make amazing progress sometimes.

My son was NON verbal at 4. Now he's 12 and never shuts up..ever .. If someone had told me when he was 4 that he would talk..well I'd never have believed them.. However on the flip side he started to walk, wobbily at 2..and if someone had told me he'd still be in AFOs and needing a wheelchair at 12..well I probably would have not believed that either..

Development is so variable and for some it is such a wait and see.
However i do think 'delay' is a loaded word.. do the docs mean delayed as is like a bus.. it'll get there eventually, or as in..there will ALWAYS be a discrepancy??

My son has always made progress, but there came a point at about 5 where I could see he was capable of progressing but would never ever by typical...

Diagnoses can change and even be rescinded over the years too..!

I can see my ds will never be a typical child,But then thats part and parcel of who he is .think paed is planning on revisting the asd dx as there are things that are seeming more obvious now but when we go back for next reviw which should be sometime next month if she still wants to wit and see ,think #I will be asking for 2nd opinon.
Know not easy to dx but he is ment o be starting schol this year and think need to start looking harder

Macforme did your ds babal as such and roughly at what point did he start with words .

Yep people tend to see and treat ds as a baby even though hes almost 4 part of is because he is on small side and uses a major to get around the other i think is in way he responds and acts he comes across as younger than the youngest children at nursery even though there 2 .

Though he does have a wicked giggle

Phoenix4725, my DS said 'Ta' at 15m. Then stopped. Then lost 'Ta' he didn't babble and was a very silent baby apart from the pitiful wailing he did for hours on end!
Then that was it it until after he turned 3.5 when I remember 'ooo' for 'juice' and then 'icci' (biscuit.. he's always been motivated by food!) He started a special needs nursery at 4 and they had a full communication approach..signing, speaking PECS.. whatever works for each child and he came on from that point on tho he was very hard to understand until he was about 8.
Now he has lots of speech..pedantic and sometimes slurred but he is very talkative in his own ASD repetitive obsessive way

Does you son have any language?? If he is nearly school age and has none I would be thinking carefully about what sort of placement would be most appropriate and don't just let the LEA decide!!

hi

yes becuase hes juLy birthday hes ment to go this year at 4 and 6 weeks

no hes has no Language at all , well not ofthe talking kind but he is doing well with makton now

hes in a ms preschool but with full 1-1, though they have no specific traing on how to work with aGDD and sli child though new salt has been in this week .Only 1 primary in our town and there intake this year is 90 kids

were waiting on propsed statemnt due this month, they been pushing for ms this September and would not even give me listof schools in area but done my own homework spoke toschool that has s&l unit but they wont take because of GDd.

But i have found a fantastic sn school that even employs a f/t speech therapist which is where i want him to go and bugger the Lea he will be going

Hold your ground
My DS has been in special school since he was 4 and it has been the best thing possible for him. He has come on so well and has been so well supported (and loved).. he would not have made such progress in mainstream I don't think because there he would have always been the one on the outside looking in..where he is he is in the hub

Good luck...

Macforme i think its very encouraging to hear that your son has found his voice. Im hoping that perhaps DS5 will eventually - he too (like phoenix DS) uses a bit of makaton really well, but is non-veral ATM. Interesting you say that your DS lost TA, my son too lost the 4words he learned (do-di {soother}, bird, daddy, and another i cant remember) and he could sign them at around 12mths too. But by 16mths he had lost them, signing, pointing, waving, and the understanding too ). I do remember tho he didnt really babble and wasnt interested in the 'chatting' that most parents and babies do.

Can i ask, did they ever find a reason for your DS's learning difficulties?

DS5 too is a 'baby', he is tiny (still in 12-18mth clothes even tho hes 3 next month, his understanding is probably around 12-18mths at a guess, theres not a chance of him understanding instructions/requests in school by september.

Its wierd, we were shopping the other day for DS4's birthday presents: a vtech camera, a hotwheels carwash and garage... meanwhile DS5's birthday next month we're looking at: cause/effect toys, rolling ball toys, basically toys aimed at 12mth babies... its wierd to think theres actually only 1yr 3wks between them.

We have just started the whole statementing process, he will be going to a MS nursery, as its a brilliant one, but i think its a 'wait and see' after that.