Appealing a DWP Decision

[michymama]

Hello !
My son is 5 and has Mild Cerebral Palsy. We moved to UK from Italy in November and I applied for disability. End of Feb I got a letter saying we had been awarded the highest rate of mobility but not the care and it wouldn't start until 7th May as we haven't been in the country for 26 weeks.
Last year the children and I were in the UK for 6 months before returning to Italy indefiantly. When I have added up the days we have been here 26 weeks prior to making the claim. I have called DWP and have been waiting for a call back from the Team that deals with this for about 5 weeks now. Everytime I ring they say they have a back log of calls and will get back to me.
I have also appealed the decision about the care.When I read the booklet they sent me about having a disabled child I realised my son meets everyone of the criteria apart from help needed with communication.
I sent a letter expalaining my reasons for appealing and although have recieved acknowdlegement of the letter nothing else.
Has anybody else been through this procedure ? Any Advice ?
Many Thanks

hiya, i have just rang up 4 the forms as lots of people have said we maybe entitled to it as my 6 year old son also has mild cerebral palsy.
if u dont mind me asking can ur son walk ? f yes does he need help/ splints when walking ?
i am not sure if i should apply for mobility as my son can walk howebver he does limp, i may just apply 4 care part

Ask away, happy to help with anything, I've had lots of good advice from here in the past.
My son can walk but only a very short distance. He limps too, well he actually puts the front of his foot down before his heel, the doctor said he had a gait. He cannot walk up the stairs, he crawls up and he has bad balance, he is always falling over.
We are waiting for an appointment at the Orthopedic Dept as the traige physio said he may need tubes on his legs.
I would apply for both, your son sounds like he is very similar to mine.

hiya,does he get tired wen he has walked for a while or do his feet hurt him ? my son walks tiptoe 1st on left food therefore he has his left shoes slightly raised by a 1cm, he can walk up the stairs however cant walk up 1 by 1, he got to put 1 foot on then other foot on same step then repeat on other steps, he just gets on with it. he used to fall over all the time but that seems to have stopped now, he refuses point blank to wear his day splint therefore he was given a night splint which he finds uncomfortable.
does it affect both sides in ur son? joshs [my son] is his left side,
wat r his hands/arms like? josh tends 2 keep his left hand fisted most of the time ,however when he does open his hand 2 use it he has very low muscke tone in his left fingers making them look very bent !
as bad as it may sound he just gets on with it, it worries me more than him i think.
would love 2 keep in touch and hear more about ur little boy
emma x

Hiya mamof my ds 3.8 is the same mild cp has a limp when walking has 1cm raise and keeps his left hand in a fist bur when he opens it fingers are crooked too, he too cannot walk long distance but falls alot whole body on floor he has alot of sensory issues. Do yours? we only get lower dla very interesting.

sensory issues such as what if u dont mind me asking?
josh has problems concentrating.
he has the cp due to him having a stroke when i was pregnant with him.
do u get lower mobility or care?
would love 2 hear back from u
emma x
also can ur son ride a bike without stabilizers? josh cant do this yet but would love 2 x

we too have problems in concentrating and behaviour problems he is actually right handed but because his right hand is affected he is forced to use left hand which brings out him not being able to feed himself properlly or use certain items e.g. can not manage for long time pencil or spoon told OT she brought him special spoons but because it was different he did not accept to use them. when I say sensory he wont eat certain food only dry crunchy, he hates noise does not like mess on hands and face, will only wear certain clothes and wants routine e.g if go to granddads house only granddad should open door anyone else has meltdowns
he has only recently learned to ride a bike wtih stabilizers couldnt keep his feet on
but Ive just noticed that he has problems walking and focusing at the same time e.g. Walking and eating ice cream did it but found it very difficult was walking like he was on cloud no.9 bless

we get lower mobility no carers

i dont think josh would qualify for the mobility part therefore im going to apply for the care component only.josh has poor concentration and his behaviour is appauling at times {only at home though}he is an angel at school !
surely if ur son needs help with feeding etc he will qualify for the care component
x