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I hate it when I have high hopes for an appointment andit makes me feel worse!

5 replies

used2bthin · 28/04/2009 20:59

We saw a psychologist this time, I thought oh good I will see if I can get help with understanding DDs speech delay which is thought to be possibly due to trauma from lots of painful medical procedures. All she said was that as DD was an only child, maybe her needs get met too quickly. What a load of rubbish!

The main point to her being there seemed to be to back up the surgeon in saying that Dds op should be soon rather than waiting till she is older like we had thought of doing. It will be her third anaesthetic in two years and she is a risk for surgery due to her condition. So now I have decisions to make but tere is no real choice it seems.

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RaggedRobin · 28/04/2009 21:58

how frustrating. we have so many expectations for these appointments as we wait for them, they end up being emotionally very draining or, as in this case, a huge anti-climax.

good luck with your decisions about the surgery.

used2bthin · 28/04/2009 22:04

Thank you, I think on one level I knew they would push for more surgery soon as I was such a state before going in. I am feeling awful about the prospect of more hospital, more pain for her, to the point where I could probably hav done with a cat with the psychologist but I just didn't warm to her, they had very obviously discussed us before hand and also she sat writing notes while we spoke to the geneticist-whats that all about?! Getting an idea of family background maybe?

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tclanger · 28/04/2009 22:21

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RaggedRobin · 28/04/2009 22:22

did the psychologist speak to you first? perhaps she was just writing up what you had discussed? however, i am surprised that she didn't offer to go over what she had written. i like to ask to see what medical people are writing at an appointment, and will also ask them to reword something if i feel it doesn't reflect what i've said.

a SALT once wrote that ds was aggressive when dd was born and i asked them to change it to something like "not gentle enough" because i thought that it could be interpreted wrongly at a later date.

used2bthin · 28/04/2009 22:41

Thanks tclanger, and I know what you mean! Not good!

RaggedRobin, no she hadn't really spoken to us, it was a joint appointment though and she had been asked by the surgeon for her opinion (which they had very obviously all pre rehearsed). We were saying we wouldnt be having more children as we are not together anymore and then XP said about his rather comlicated family history and she looked interested and then wrote! I am used to being told when people write notes, they usually explain themselves so it was a bit odd but it probably was just that she was getting an overall feel for us and the condition. The first surgeon wrote something awful about why we wanted DDs op done young (her first one so a while ago now) and that has jus reminded me that I need to speak to them about getting it changed.

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