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4 replies

jetcat32 · 25/04/2009 14:33

My DD has another appointment with the consultant in May, at which i really need to discuss with him the reasons for the original referral - she was diagnosed with sensory processing disorder at aged 7, but has had real problems with social skills, co-ordination etc. At the time of her first appointment with consultant she was actually in hospital with first of many kidney infections (since been diagnosed with kidney reflux).

So, now that she is on long term meds for that, and it is hopefully sorted, i am hoping that dox will focus on original referral.

Sorry for waffle, just wanted to put it in context!

Anyway, i have been compiling a list of difficulties she has, and a couple of things this morning have really got me thinking.

She was really playing up (as was little DD) and i admit to losing my temper and said (in a joking fashion) to both "go upstairs so i dont end up killing someone!"

I know that wasnt the way to handle it, and no excuses,but DD1 got really distressed and started shaking. By the time she calmed down i got the distinct impression she actually thought i meant it!!!!!!!! (def wont be saying that again!) She is 12 btw, i thought she would have just realised i was in a temper!

Second thing, trying to explain to her how/where to get the bus if she wanted to go swimming - about a 5 min bus ride away. Am trying to get her to understand her bearings a little more, but it is very hard going.

So, we figured out where to get the bus stop to get to baths, but then she simply couldnt understand that to come home, she needed to go to the bus stop on the other side of the road! She just kept saying that she would get back on bus where she got off, as it was the same number. I tried to explain that that would mean she was going the wrong way, but she really couldnt understand. We ended up going on multi-map and following the bus on its entire journey. I still dont think she has got it. WOuld other 12yr olds understand this, as i dont really know any other kids her age, so nothing to compare it to!

Is this something i should be mentioning to consultant???

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misscutandstick · 25/04/2009 15:45

I would definately mention it.

Most 12yr children (secondary school age) can manage to get to school and home again on the bus, not to mention perhaps going into town, or a bus-ride to a friends house.

Taking a phrase (which essentially it is) like "im going to kill someone" (especially when said in anger) would to most children say to them that mums in a really bad mood and best to get out of the way for a bit till everything calms down. does she take a lot of everyday use of language literally eg. stick your coat on the chair, pull your socks up, keep your eyes out/peeled, put a lid on it etc? if so it could point to other difficulties she may be having.

troutpout · 25/04/2009 15:47

yes i would mention it too

amber32002 · 25/04/2009 16:28

I don't suppose I'll cheer you up at all by mentioning that I still struggle to know which buses to get on (on the rare occasions I manage it) and I'm in my 40s? There's ones that go right past our house, and we've lived here over ten years, but I've only got on them twice, partly because I don't trust myself to know where to get off, or how to get the bus home again. Well, I know where the going-back-home bus stop is, but somehow can't make my brain accept that the bus will take me to my home from that stop. Suppose it doesn't? What would happen then??

Didn't think it'd bring a smile to your face, somehow...

Yup, do mention it.

jetcat32 · 25/04/2009 16:50

thanks guys, and thanks amber. Dyspraxia has been mentioned in the past, as well as aspergers, but no offical dx. I liked your explanation of your brain not accepting it, as that was exactly how DD seemed to be - she was listening to what i was saying, with such a puzzled look on her face!!

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