Phoenix - are you there?

[misscutandstick]

Noticed over the last couple of posts, that you seem to have a diagnosis for pickle? is that right?

DS4 has just been given a verbal diagnosis of SLI, which i was a bit surprised at to say the least! but I have been convinced more and more each day, since last July, that something is indeed 'lurking beneath'...

However DS5 (2.11y GDD) still non-verbal but doing well with Makaton. No diagnosis as yet - we have commented (as im sure you remember ) how alike your DS and mine are... makes me wonder...

when did you receive the diagnosis? how do you feel about it?

hi
the pickle has a coupleof dx and yes one of them is sLi recieved it about 6 weeks ago, was my salt who said it but i had been expecting it knew it was far more than a delay.Though she is at aloss to explain why he has it

For me was a relief that someone agreed with me that the laungage side was not just a delay was something seperate to his GDD

is ds5 at nursery yet?. we been lucky salt we have now has just gone in recently to give them some advice

And fingers crossed will get the propsed statemen throughin May am hoping get him in locan sn school as they have just employed their own salt f/t

sorry, noticed you posted ages ago - friend popped round and she is quite distressed about money, or lack thereof...

anyhoo

DS4 has a disordered delay with his speech, and he also has ASD traits but I am assured hes not on the spectrum. After reading Niko's link to Dr Greenspan the other day, think im willing to accept that now. But his regidity in life is getting worse, and worse still hes started biting at nursery. the nursery teachers say that he gets really frustrated . Been given the number to the Ed Psych, which is helpful, just not sure what i need her to do [confused icon]. Hes 4 next month, doesnt have GDD but still a 'young' 4, he doesnt get a lot of what the other boys do.

"...Though she is at aloss to explain why he has it..." i assumed it was just 'one of those things' - tho im fast coming to the conclusion that theres no such thing, and theres usually a reason. But are there reasons for having SLI? You also say "..the pickle has a couple of dx.." i was just wondering what it was?

I was chatting to DS4s new SALT and she was like "well we'll assess and see if he needs more help", when i mentioned the paed said it was SLI, she said" well usually by the time they are in full time school, we do small (5 or 6) groups at school on a regular slot", ah i thought so we are looking more long term now... dont know how 'regular' it is tho, weekly would be nice, but i feel im being over optimistic.

DS5 starts MS nursery in september - so he and DS4 will have a full term together, before DS4 goes up to Reception class. Its a good nursery, the teacher is fabby, and ive seen nothing but good results in the whole of the nursery. She has begged me to have my children there ... i feel its definately the right place to be for the time being.

Can I ask what specific reasons you have for wanting pickle to go to SN school? we are still an the fence about statementing here, i think i want to, but its the knowledge of a yearlong battle that worries me - and i know thats what they count on.

Incidentally, I was chatting to a mum of a girl with severe hypotonia/hypermobility and possibly CP the other day about our local SN school - she says the facilities are brill (pool, OT, SALT), but the children never get a chance to be kids with each other, EVERYONE gets a 1;1, and shuffled from one room to another for each lesson and she didnt like it at all, and neither did the child (4y). both are more settled with this nursery.

Does pickle say anything or sign? i cant remember . Is he already in MS nursery?

PS. Ive now had the umpteenth 'professional' ask me in a 'trying-not-to-sound-to-concerned-just-in-passing-voice': "is he always this busy?"

Oh dear lord, not sure i could cope with another ADHD, the last one nearly wiped out my sanity...

the pickles dx are ,Sli ,gdd hes about 2 years behind , hypermoblity and hypertonia and Asd traits that are defintley becoming more obvious now ..

He is totaly non verbal but he does sign.

My reasoning for wanting him to go to sn school is that in ms hes ment go this year and would only be .4.1 even then but i fee taht he is so far behind the other children and gap is growing can see it now .

he is in a ms nursery but with a f/t 1-1.but he tends to get left out of a lot of things and the others are streets ahead and theres no way he wold cope in a class of 30 kids even with support.

pickles been seing the ep since he was 2.6 so we had help in place for nursery and even she agress he needs a envioroment which is rich in signing and pecs

his provisonal statement is due by middle of May but feeling theres going be some wrangling over it

The sn school i wantfor Rio is pretty good the kids stay together for most of the day in the same class ,and they tend not to have just 1-1 as teh head chooses how to spend the budget so does not ahave spend xxx amount on a child ,it has a fantastic reputation throughout the lea.The head attitude is that he will see no child go without even if meant he had put the school into adefict infact he got so sick of te salt provison that the nhs supplied that he went and employed a f/t salt direct then looked at ways of funding it .

Also a they get older they can follow 2 options life skills or a mix of lifeskills and gcse depending on the indivuals need.

I would look at starting the staement asap sinc your ds does not talkhe will need the extra help in school and they did try to fob me of well we could give him xxx hrs on school action plus but thas so easy for them to alter as it has no legal standing

opps lol one book

thereason for the sli dx was yes he is gdd but his speech is still not happening and his receptive is really only at one word level,so it is miles behind where should beand obviously now affects his every day life at all levels