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gdd

20 replies

ilovesprouts · 24/04/2009 22:58

hiya does anyone no what causers gdd or is it something that just happens when your pg sorry this sounds a silly q but dont really no much about it

OP posts:
madmouse · 24/04/2009 23:11

Hello i am no expert but gdd is a description rather than a diagnosis, it means that the child is not developing as expected in a number of areas, without saying or knowing anything about causes or reasons.

there are some parents on here with gdd kids they will no doubt have better info for you

ilovesprouts · 24/04/2009 23:29

i just wonderd as my lb has it but like i said i dont know much about it

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Phoenix4725 · 25/04/2009 02:23

I have no idea why my ds has GDD to been given the diagnosis mind they not exactly looked hard either iykwim
Gdd means that your dc has to be delayed in at least 2 areas.
seems to be a label they use when there not sure what a kids potential is for progreess or they can not fit a dc into a paticular catergory

misscutandstick · 25/04/2009 10:06

we dont know why DS5 has Global Developement Delay either - hes around 12-18mths delayed (hes 3 next month). Hes non-verbal too.

His birth was fine and hes not been in an accident, doesnt have epilepsy, all his bloods have come back fine. All of these could have been a reason for him to be delayed, but they dont seem to be. It may turn out to be Autism or a chromosome problem, dont know yet - many children have this 'label' before actual diagnosis.

MsMargotBeauregarde · 25/04/2009 22:38

My son was dxd with GDDs across the board when he was a little more than 2. He was presenting as a younger child, but I didn't feel that there was something wrong. I knew he wasn't advanced though!

Then, at just over 3 he was diagnosed with autism. (mild autism) I was really confused. I had thought that GDD was the diagnosis!! I thought we were having tests to rule out autism.

Anyway I think it can be chicken and egg. The global delays might be down to being on the autism spectrum, it might just be that your son is not on the spectrum but is a visual learner.

Have you got a big picture dictionary?? If I were you I'd go through a very good picture dictionary with him, do the normal functional words like Milk, water, coat, and so on....

What's your instinct OP? Do you feel there's something not right, or do you feel he's just a bit behind?

ilovesprouts · 26/04/2009 00:05

i know somethings not right whith my lb me and dh thinks he may have autism .. but we dont no anything for sure and for me its the not knowing whats wrong whith him

OP posts:
TinySocks · 26/04/2009 05:53

Ilovesprouts: GDD is not a diagnosis. It basically means that the child has a delayed developement in various areas (speech, social, motor, etc). It doesn't explain the reason for the delay. In my opinion it is term created to label a child when no diagnosis can yet be made reliably.

Phoenix4725 · 26/04/2009 08:06

yep thast the case here, mind paeds not exactly looking hard at why hes delayed either.

Think they like to give them time see if they catch up

Arabica · 26/04/2009 11:07

It's a bit of a catch-all diagnosis, isn't it. Every child with GDD is different. DD(3 in July) has GDD, no known cause--brain MRI showed excess fluid, so some of he connections haven't developed typically, but as for whether she'll 'catch up', it's a mystery.
Not every area of her development is equally delayed--she can move around pretty well, for example, and is very sociable and interested in people, but can't communicate in words or signs yet, and can't make as much sense of her environment.
There is a test therapists can do called a Bailey (or could be 'Bayley') Assessment which will pinpoint the areas of delay more accurately. She had it last year, just for gross and fine motor skills, and this year i think they'll be doing it for communication, too. In DD's case I think she will eventually end up with a diagnosis of larning disability, but as to the extent of it, her therapists are reluctant to comment as she is still so young.
Hope you get all the answers you need.

MsMargotBeauregarde · 26/04/2009 12:09

my son's had that. is it called the bailey-griffiths test??
My son didn't co-operate so I think he got an artificially bad result. But the ed psych. who performed the test didn't seem to factor that in, she said that inability to co-operate with a short test is indicative of being on the ASD. But I know he just couldn't be bothered to do some test that means nothing to him.

I believe that my son will catch up. I think he is finally starting to catch up now. I'm holding him back a school year (which is my choice in Ireland) and I HOPE that his being 5 and a half in a room full of 4 and half year olds will be the leg up he needs. touching wood..........

Phoenix4725 · 26/04/2009 12:40

hmm we not had mri or any anythingl ike the bailey test?.

Ds is delayed about all the same for most areas approx 18 months -2 years behind hes 3.9 .But his speech is way way behind that he has no speech or anything that even resembles word

me i have no doubt he has alearning disablity , just caseof how much of one

misscutandstick · 26/04/2009 16:28

MsMargot: DS1 had lots of these sorts of tests in his Multi Dis Assmt, some were designed to see what sort of attention to detail the child could manage (rather than what looks to be a test on drawing or whatever) - DS1 has ADHD and obviously didnt fair too well on those! Hes also had his IQ tested, 120, so hes a bright boy too, but hes still very 'young' for his age.

Phoenix, we have decided to ask for an MRI for DS5 at his next Paed appt. oooh update: we now almost have 2sign 'sentences'!!!yay! its usually 'where' with a noun (drink, bird, train etc) just a quick proud mummy moment! He does sign "more" but i dont think he knows what it means

Arabica! long time no see! how do you feel the signing is going?

SPOUTS: i agree its the 'limboland' of not knowing thats the worst bit - with a label at least you have some idea of where you're going, maybe a hint of prognosis, and all the analysing.. arrrgghhh, totally sympathise. How old is your DS? has he been referred anywhere?

Arabica · 26/04/2009 16:42

Hi MsC&S, we are still signing, and DD sometimes signs back 'finished', but I think she understands other signs too. She can say 'hello' and 'ok' and babbles a lot.

lou031205 · 26/04/2009 17:27

DD has a 'dx' of developmental delay, but a spiky profile. Only when I suggested ASD to the consultant did I find out she is classed as having GDD. Irrelevant, really, no help in seeing the future for her.

vjg13 · 26/04/2009 17:55

My daughter is 11 and has gdd. In her case I take it to mean an evenly delayed profile of all skills. She has no underlying cause and we followed up the metabolic tests, genetics etc when she was about 3.

Her MRI scan didn't show anything unusual either.

I found it hard when she was younger not knowing what the future held in terms of how she would develop but not so much now. As she got older the gap widened with her peers and she now operates on the level of about a 5/6 year old. I think if she had a specific diagnosis I would have driven myself crazy researching it!

ilovesprouts · 26/04/2009 18:43

hi mc&s my lb is 28months old he goes to cdu /potage/physio weekly all his basic tests have come bk fine. so going to see the gene doc in may ,he does not talk just says mmmm /ddd very rare hes got earley entry into a sn school in sept hes not 3 till dec we asked about a mri scan etc but was told its not neederd atm does not see salt yet.he also does not walk very much but can holding on to sofa etc ,but over thease last few weeks hes took a few steps ,but he gets around by bunny hopping {hes wore lots of jeans out }he also rocks all the time and shakes his head other than that i dont know whats the next thing to do [smile)

OP posts:
mumgoingcrazy · 26/04/2009 19:49

My DD2 has GDD too, she is 22 months. She has sensory processing disorder which is gradually disappearing due to sensory integration techniques. We believe her GDD is down to mild brain damage which she got at 6 weeks old due to severe chicken pox and secondary infection. We are waiting for an MRI to confirm this. We are also seeing genetics, it is possible she has a subtle chromosome abnormality but geneticist thinks the GDD is down to the chicken pox but is going ahead with the testing just to cover all angles.

It's the million dollar question, GDD is such a broad dx, and as someone else has said, I think it's just given as a dx until they really know.

Phoenix4725 · 26/04/2009 20:19

ds walked t 2.6 can remeber thinking he never will , he still needs piedro boots and his chair but hes getting there but thinkhats down to him suffering from hypertonia and hypermoblity which is gentic in our case

misscutandstick
yay on the signing its great when they do
And yep planning on pushing for mri scan to. just to see if thres a reason for no words since paed reckons hes not got asd.thator a referal to London o see a neurologist

Arabica
glad dd is comingout with few words and dont give up the signing took long time before ds signed back

Arabica · 27/04/2009 10:51

Thanks for the encouragement . DD understands so much more about her daily routine than she used to, but it's still hard that she can't tell us with a gesture or word when she is hungry, thirsty or in pain. She does bring me a random shoe (could be one of mine, DS's or DH's) when she wants to go out though!

LadyFio · 27/04/2009 16:18

Like vjg13, my 9 year old daughter still has the diagnosis moderate-severe globbal development delay but the last year this seems to have changed to moderate-severe learning disabilities (she is functioning at age 3-4 ish level) Medics cannot find a diagnosis for our daughter, which can be the case for many. Pregnancy was fine, birth was horrific tbh and i do think that has caused the main problem (call it instinct) but who knows

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