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Does your DC show signs of anxiety and if so what?

12 replies

Barmymummy · 23/04/2009 11:14

My DS is a jittery, anxious kinda guy. He looks like he is a cat on a hot tin roof when he is somewhere other than home/very familiar surroundings.

At grandparents' houses he runs about a bit but mostly goes up for a cuddle/sits on lap but has to jump up and down alot. He also does this when cuddling his friends at playschool and can sometimes cuddle a bit too hard iykwim. He also tends to become quite loud.

When we walk into playschool he follows me around quite a bit twisting, pulling or wringing his tshirt and usually is muttering some echolalia.

He is really quite poor at handling new situations and copes by hiding behind my leg. He used to shout "GO AWAY" at them but thankfully this seems to have stopped now he has alot more language. School is truly going to blow his mind but thats not til Jan 2010

I just wondered if any of your DC show signs of anxiety alot and if so how it comes out in them and do you have any helpful tips on how to help?

I am overwhelmed by this huge maternal urge to just pick him up and take him away from anything new to stop this look of pure anxiety in him and it just breaks my heart that mummy can't fix it

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curvychick · 23/04/2009 11:31

Hi there, ds1 (nearly 7) gets very anxious when out of his comfort zone. His coping strategy was finger folding ie folding all of his fingers over each other, unfolding them and then starting again, but we have moved on from that and are now onto chewing of t-shirt collars! It really depends on the situation as to what other behaviour he exhibits i.e quiet and withdrawn or tantrum/meltdown or very needy ie lots of 'i love you mummy, look at how good i am at this kind of things and the need for excessive praise and reassurance.

I dont really have any tips as we just tend to wing it! What works with ds one day doesnt the next! I just try to remain calm and dont let ds know i am feeling anxious or edgy in case he picks up on it and gets even more anxious.....its hard work and totally exhausting and i completely relate to the wanting to scoop him up and leg it away back to the comfort zone, but i know that i wont be doing DS1 any favours in the long run as he has to get used to being outside his comfort zone and its not fair on his siblings either ......oh the juggleing act that is to be a mother !lol

Barmymummy · 23/04/2009 11:36

Gosh you totally know where I am coming from don't you??!! Thank you so much. DS is exactly like you said in that he is very needy. Lots and lots of I Love You's and "Watch Me Mummy - look how fast I am" etc etc. Yes, lots of praise and reassurance needed from him.

I give lots of I Love you's back but if I am not careful this becomes an obsession and he was saying it every few minutes so had to distract in the end and that worked.

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amber32002 · 23/04/2009 11:38

Well, I battle with anxiety as an adult with an ASD, and I could write a few volumes on anxiety as a child with an ASD

It was interesting going to a recent lecture by a psychologist on anxiety and autism. The placed was filled from one end to the other with parents wanting to know that exact same set of answers: Almost no research has been done on anxiety in ASD but it's one of the huge, huge things. I read that something like 80% of us struggle with anxiety issues, unsurprisingly.

As I understand it, there's no dx for your son as yet, so you don't know what he might or might not have, but let's assume it's an ASD anyway just for the sake of something to talk about...

For us, the whole world is set up to work in ways we can't handle. We do one thing at a time, so we can either see, or hear, or walk, but not necessarily all three at once. We can look at someone's eyes, or listen. But not both. We can feel how uncomfortable our clothes are, and how hot the sun is, and hear how noisy the birds are, and smell how much perfume someone ten yards away is wearing...but be unable to switch any of it off. It's exhausting, and confusing, and often painful to have so much input all at once that just won't switch off.

Put us somewhere quiet and familiar with no socialisation required, and we're often totally happy. We can pace ourselves one thing at a time.

Put us in a noisy, bustling, indoor place with lots of people speaking at once, and we're shocked into silence or panicked into tantrums or fear.

As an adult, I've learned to control it better, but it doesn't go. I like to be places where I can cope, so I've designed my life to offer me those wherever possible.

But life isn't set up for us. It's hard. We really do need to work and think differently, and learn gradually how to cope with the social stuff and the sensory overloads that everyone else can cope with so much more easily.

Tips? Learn what the world is like through his eyes. Maybe find good books on the subject, or have a read of my ramblings on here called A Day In the Life of Amber or Another Day in the Life of Amber. Many wise words from others with an ASD too, like Bullet123.

Plan ahead so he knows exactly what to expect that day, and try to keep to it. Explain everything you can, in pictures if that's what he'd prefer.

Be patient with him, respect his need to withdraw or do something different if it helps him.

Good luck with the dx appointments too - when are they going to be, do you think?

Davros · 23/04/2009 11:45

I agree with Amber that anxiety is one of the great, unacknowledged challenges that seems to affect a huge proportion of individuals with ASD or related disorders. I see it over and over again but it is hardly recognised or addressed. I would say it is the number 1 problem for my DS and for many other kids with ASD that I know. As usual, as parents, once we recognise the issue we accept and manage it better but professionals don't seem to have any organised approach although they will all say "ah yes, your'e right, anxiety".......
In fact, I often don't use the word "anxiety" as it comes with a lot of assumptions due to its role in our vocabulary and makes people think of worrying about something specific or feeling scared about something, I suppose "tension" may be more accuratre although "anxiety" is an easier word to use iyswim so I do use it but usually with an explanation.

cory · 23/04/2009 11:51

I used to read all those papers where dd's joint disorder was linked to anxiety disorder and the doctors speculating about why this could be.

Then I realised that for her, every day was, as another poster put it recently, like walking on ice. Walking down the corridor on an ordinary day, she feels like a novice at the ice rink- except she has to do it all the time. Thinking about how I feel on skates, I realised that a certain level of anxiety would be a fairly natural consequence.

As Amber's post makes clear, sometimes it is a very natural consequence of how we experience the world. If it appears due to autism to be a shouty scary place where inexplicable things happen, then obviously anxiety is a very logical response. It's how we all respond to scary inexplicable situations.

To my dd it is natural to be a little anxious about getting out of bed, because experience tells her that she may or may not fall head first down the stairs.

If your ds finds people and new situations scary, then it is only natural that he should react with anxiety. (I was the same, but have thankfully grown out of it)

Kind and calm goes a long way, I find.

Barmymummy · 23/04/2009 14:27

Thank you all. Could you tell me how your DC managed at school when they started if they are old enough?

This is my biggest worry. If he is anxious then he calms down by cuddling me etc, no one else can touch or calm him down once he gets going. Its so scary as I worry that the school won't be able to sort him out.

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amber32002 · 23/04/2009 15:07

Try him with the duvet trick, and the pop-up tent trick. Anxious? Wrap duvet or similar large comforting thing round himself. Does it help? It often does. Too much input? Small pop-up tent to go into with favourite things and something to hug. A school can make one of these accessible for him if they don't have a quiet corner for this purpose.

No need to have a someone to hug that way?

Sometimes even a baseball cap can help - something to do with the even pressure on our heads.

The school will hope for a diagnosis, and will work with the team to find a routine and explanations and help for a child so that they can enjoy their day and learn what they need to learn. Well, that's the theory. Most are very good. Some take a bit of hard work by parents. A few are 'orrible. If there's a choice of schools, go with the one with the truly lovely head teacher and SENCO.

anonandlikeit · 23/04/2009 16:56

ds2's ASD was originally dx's as OCD & anxiety disorder.
I feel the amjority of his routines & rituals he builds in to his daily life as his way of coping with what otherwise is a very unpredictable world full of sensory stimulation that he cannot cope with.

As for school he has coped with it much better than playgroup, DS2 LOVES rules & school is more structured than playgroup, he doesn't know how to just go & play & choose what to play with.
So having structured activities with 1 to1 support at school is so much more his thing.

He doesn't however sope very well with school events, trips, plays etc even when we prepare them he finds it so distressing.
His teacher is very good at talking through everything with the entire class & his 1 to 1 goes over it agin with ds2.

Thye also make other adjustments, so in class & in assembly there is no loud clapping, 2 finger clapping or vigorous hand waving only!
DS2 alos has a single desk facing the wall if it all gets too much he has his own space.
We started him off part time & built up gradually to full time. His OT, Physio (he also has mild cp) & the ASD specialist teachers all have input.
With the right school it can work!

Davros · 23/04/2009 17:14

It seems to me that "anxiety" is either totally sidelined or characterised as Depression when it may or may not be OR focused on almost to the exclusion of realising that and ASD dx may be appropriate. Some professionals like those other dxs and see it as their "speciality" or even a novelty to them when 9 times out of 10 it ends up with an ASD or AS dx or, often worse still, doesn't. Either way, lots more work to be done by professionals!

goldenhair · 23/04/2009 17:22

Have you had ds's eye's tested recently?

I say this because a large proportion of my dd's anxiety stemmed from very poor eye sight which we didn't know till she was 3. She also has sensory integration difficulties e.g certain noises, touches hurt her. We are doing yoga to correct the sensory system advised by a child psychiatrist.

dd now 10 has panic disorder. But she showed signs of anxiety from an early age. Her main fear was that the house was going to fall down. ( i guess she knows my dh's diy to well!) however she would be very panicky, screaming to get out of the house, desperate to pull us all to safety outside or sometimes just downstairs. We tried very hard to resist leaving the room and have been reassured by professionals that this was the correct thing to do.

As a toddler she was clingy, tantrummy for no explicable reason, hated loud, busy places, of course now I know that she visibly couldn't make sense of them.

She is hyper mobile and couldn't walk for a long time so she couldn't explore and gain reassurance that things were ok.

I think stick to logic is a good plan. If the fear is irrational (although real to the child) then encourage facing it to experience that it's ok. But acknowledge that you understand the child's fear and respect how they feel, but point out reasons why the fear may be misguided. in my case something like, "it's very scary to feel like the house is going to fall down and i would feel scared too. however the house is safe because there are no cracks appearing, and their is nothing falling off the walls etc." Dd can now think these reassuring thoughts herself now and talk herself out of her panics very quickly. I think empathy
with the feeling is a strong link to helping .

don't feel broken hearted that you can't fix things because you can - in time, if the anxiousness persists then there are professionals out there whc can help once your child gains enough maturity to understand them, such as cognitive behaviour therapy, occupational therapists, ect and also a number of books i found in waterstones for parents of highly sensitive
children. Behaviour can change and it will. good luck and don't despair xxx

goldenhair · 23/04/2009 17:26

oh a fiddle thing is helpful if ds needs to be touching something all the time, you can get fiddle things through occupation therapists sort of plastic loops which in a chain which can be manipulated in any way and don't make a noise. also when older a lump of blue tack in the pencil case to squidge and squeeze helps.

Barmymummy · 23/04/2009 18:31

Thank you everyone, some great stuff there

I understand totally about the sensory thing to blame for the anxiety but I am confused with my DS because he doesn't really show any classic signs of a sensory disorder.

For example, a while back now he went through a blinking tic so I took him to get his eyes tested and all was fine apart from usual slight long sightedness for a 3 year old.

His hearing seems ok, he does comment on alot of noises (transport usually) but he does not react unusually to hoovers, blenders or anything that you would expect to upset him.

His eating is fine, well usual picky 3 year old habits but no worries there anyway.

Touch seems fine too, no aversion to textures or anything. Loves to get dirty and although he likes to touch things he is not having to touch everything in sight iykwim.

He loves to smell things but again not to extremes. Just soap powder and shampoo when I use it.

I dunno, all very confusing. Just wish I could figure it out then I would be able to help him a bit more....

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