Hello, I'm new here ^^

[beldaran]

Hi everyone,

Well after a nice welcome on another thread i thought i would pluck up the courage to post save hijacking other peoples threads and spending half the time explaining my circumstances when i could just do it in one go.

I have a 2.5 year old DD who has Athetoid Spastic Quadrapeligic (sp) Cerebral Palsy.

DD was born 4 days overdue following a failed ventouse, then forcep delivery. Everything was fine and we were discharged the next day. That night, whilst DD was feeding she stopped breathing and I had to resuscitate her which was then taken over by paramedics. They managed to get her breathing again but she began to suffer fits. She had to stay in the NNIC unit for 2 weeks and SCBU for 1 week before being discharged.

Fast forward a few years and here we are, the fits have stopped, she is not mobile as yet and she is due to start a SN nursery on May 5th.

I am training to be an Independant Parental Supporter with the Parent Partnership and i am planning on training to become a counsellor specialising in SN support.

I look forward to talking with all of you.

P.S..i am a member of bounty, but if you look for me i'm NOT the beldaran on there, someone already had that name .

Hiya and welcome again! Im jenny mum to Ben who is 3 and a half and autistic, he has major sensory issues and self harms too, his eczema is driving me potty as he wont let me put the cream on as many tiems as i should and all the gp can say is its my own fault he has it as i should try harder with the cream - if only it was that easy!! He has just been referred to physiotherapy for joint problems too but not sure when we will see them! i live in nottinghamshire where the system for everything is crap so he doesnt have a statement and is currently in a preschool with one to one support and hopefully will get statemented when they get sick of him beating the other kids as he doesnt understand and going into major meltdowns over the slightest of things!!Oh and i have clearly been very inventive in choosing my mumsnet name! I dont think i have much else to say really so thats me!

Hello nice to meet you

I see some distinct similarities!

My ds is a 14 months, was born after three day labour/indiction with forceps in theatre.

He was fine with apgars 9,10,10

After 12 hours he stopped breathing but responded to oxygen and started breathing again then did it again and again. Was rushed to NICU where he was diagnosed as having fits with apnoeas.

It took 24 hours and 5 drugs to stop them but they have not come back. He has defeated a long list of predicted problems including blindness and only has mild hemiplegic cerebral palsy. He is not mobile yet but sitting well, working on sitting up. If you want to chat I can help you find me on facebook.

Hello beldaran - just wanted to say hi, I'm relatively new too. DS (3) waiting for ASD assessment. I think it's great you're thinking of becoming a counsellor

Welcome to the Sn board I've got 3 dc's, well three boys anyway. DS2 is 3 and has ASD and dyspraxia.

welcome beldaran i have two grown up children then have ds 6y with aspergers, and dd 2 in june whos undx with seizures and posturing episodes and a feeding tube.

hello and welcome to MN
my dd is 14 and has athetoid cp, I alos have a son 17 who is just a mad teen

hello and welcome. Have had some great support / advice here.

My dd is 4 and has loads of probs as a result of rare chromo disorder, leukodystrophy and GSD type 0

HI beldaran
Hope you enjoy it on here. I have 2 boys age 9 & 6.
DS2 has mild CP, ASD, learning diffs etc. He was born at 28 wks but is also being tested for genetic disorders as his paed thinks maybe there is something else going on.

Hi beldaran
I am quite new here too and I think is great.
I have 3 boys ds, 16 undx aspergers (we think he just refuses to go for dx) he doesn't live at home anymore as he just got too hard to handle.
ds1, 9, ADHD and ds2, 3, is waiting for dx of ASD, oh and I am dyslexic.

Hi
I am new too, although my son is nearly 12! He has Down's and is on the moderate/severe learning needs side of things. I'm recognising a lot of the chat about fussy eating (we were on semolina nad yoghurt for two years), piddling (J swamps his pit in phases and is dry in others- lots of washing) and being out and about with someone who can behave v badly (am unembarrassable now). Have 2 other kids - son of 10 and daughter of 6m (haven't got the hang of the shorthand - is that ds and dd?).Hello!

Hi, welcome to the SN board. I have two boys, and DS2 has di-george syndrome.

Wow, thanks for the welcome and hello to each and everyone of you.

Lots of different diagnosises (is that a word lol), i am looking forward to chatting and being able to help as much as i can.

Best wishes

hi
welcome to the board.

i have a ds (9) and dd (7) who has Cf, epilepsy and speech and language delay

HI Beldaran,

I have a 3 1/2 year olf son who has Williams syndrome but also suffered infantile spasms at the age of 5 months so thats made things alot more complicated interesting!!!

Youll find a weath of information from these wonderful parents

I also a social worker in a disabled childrens team and am planning on doing my counselling qualification to help those parents with newly dianosed dc's

WELCOME!!!

hi Beldaran

I have ds whos 3.9 dx of GDD,SLI, hypermoblity ,hypertonia , asd traits the rest is yet unknown

Also have ds15 dx dyspria , ds 12 brittle astham and dd with whole host of medical issues

and I can not say just how much advice and support on here has helped

Hi Beldaran. This is a great board. I have 3 DCs. Ds2 has a speech disorder with autistic tendencies. He's 5.

Not too bad thank Riven. We remain seizure free without meds, IS stopped, been petrified that something else will develop but were all good ....so far!!

Heading in the right direction!

I keep up to date with your posts and see your dd has been keeping you busy, how are things?

Hi Beldaran

Welcome to the board. I have 3dc's - DS2 has a dx of asd and prob adhd also - he's 8.