havent posted in ages - what is your take on this?

[hereidrawtheline]

DS had his appointment to see the pead moved up so we saw her last week - she was brilliant we really felt she "got" what we were talking about.

I have just had the letter from her (me copied in, it was to GP) some points she made I was wondering what light you could shed on them for me

"although his language is very rich there is some articulation disorder... I feel as he matures he would correct these disorders spontaneously"

"He is a very healthy boy with normal developmental profile. However I am anxious that his emotional and behavioural issues may not all have been explicitly observed in the clinic situation"

"However I did feel that there are some emotional behavioural elements as both parents are finding it exhausting to give him attention"

Plan:

Specialist HV to attend his preschool to observe and referral to CAMHS. We will see her again after we have been seen by CAHMS and HV.

So what do you think? I have to say, I am increasingly feeling like he wont be DX with ASD though I still think there is something "wrong". Am very confused.

At any rate the appointment went well and I really trust this doctor so feel we are finally being dealt with competently.

HIDTL, I'm not sure what to make of that tbh. Why has the paed asked the HV to step in and not referred you to a developement centre? Seems a bit odd that she has asked the HV to monitor him, especially as HV are not trained on these things.

There are a few people on this board who are currently under CAHMS, so hopefully they can help you.

How is your DS at the moment? Is he still chilled with his weighted blanket?

well it is "her" specialist HV, not my HV. So that is better I assume.

DS is ok, the blanket still does a great job though he doesnt sleep through at the moment, he wakes once or twice to ask for more milk in his bottle.

He is still very very whingy and sensory issues and temper issues & habit issues. But in general he seems a bit more flexible and happy than he did before which is a good thing. But still about 175% of other children his age wrt needing constant maintenance etc.

I suppose her referring us to CAMHS is good in the sense that she wouldnt have if she didnt feel there was any problem.

Sounds like 'blame the (exhausted) parent' to me - the usual cop out from generalist paeds.

My son ws dx'd with Asperegrs at 15 - after 8 years of being told that he had 'emotional and behaviourial problems'. Especially annoying as with EBD they expect the child to recognise his own faults and be able to improve his behaviour whereas with Aspergers 'good' behaviour does not always come naturally and has to be proactively taught. So he spent 8 years being told he was naughty!!! That's why i would refute any suggestions of EBD and press for a full asessment for ASD.

Your referral to CAMHS is a step in that direction.
Best wishes

I read it as the paed listening to you & referring onwards even though he behaved "normally" during his appointment, (typical). The correcting his language spontaniously does sound a bit like a fob off without a SALT referal. If YOU have concerns regarding his speech then ask for an assessment with a SALT.
Hopefully the HV will see him in a more natural environment at pr school, make sure you ask to know when they plan to visit & get verabl feedback immediately following her observation & make sure they include you in any report back to the Paed.

How do you feel about it? Do you feel you have got what you wanted out of it?

thank you I do think he might need some sort of speech therapy. I can understand him but I appreciate other people cant enough.

On the whole I am happy with it, she was a very lovely woman who seemed truly interested so I dont think she will fob me off... but I am nervous as always!

TBH atm I am just so tired and confused myself that I dont have a clear expectation of where things should head, which may or may not be a good thing. In one sense I have an open mind but in the other I am scared to loosen the reins as I have been in charge up til now and insisted on it as he is my very main priority. So I dont know... should I try to get the energy up to take charge again or relax and trust the doctor? A very foreign concept to me as you all know from my many rants.