Daughter 2 and doesn't walk at all.

[oxfordemma78]

Hi our daughter is 2 in 3 weeks, she has never beared any weight on her legs, crawled or turned herself over. She can only bottom shuffle. we are seeing specialists at the JR in oxford, she has hypotonia and is hyperflexible. we have been going through physio etc and she has a rectal biopsy on the 16th to see if she has hirschsprung disease due to her bowel problems. its been very stressful and it may take her until she is 4 or later to even try to walk on her own, she has never even tried. I think it maybe due to me being hypothyroid (and I still am) during pregnancy. Has anyone else experienced this? Thanks Emma

Hi, my son who's down syndrome also has severe hypotonia among others. He was nearly 5 before he got on his feet. He was also a bottom shuffler and didn't crawl. I was told it does take bottom shufflers longer to get to the feet than crawlers something to do with position. He is now 8 and still hardly walks. Doesn't do stairs or curbs, uneven ground etc.

Hi
The fact that she is sitting independently is good news. While it IS only a guideline, many children who can sit by 2 WILL walk..but it takes time, and hypotonic hyperflexible bum shufflers really can take their time

My son is 12 now but he was hypotonic and hyperflexible and needed some support..he got Piedro boots, and then AFOs and lots of physio and that helped. Please stay positive

Whereabouts in Oxford are you? We used to attend the Ormorod preschool nursery when Charlie was little..all built in physios and speech therapists etc..it was really good for him. My son now goes to the special school in Witney(he is physically quite able now but has autism and learning diffs) and the progress he has made from when he was 2.. well I wouldn't have believed anyone if they told
me.(His story is below..feel free to ignore but it is positive)

charliesmomuk.weebly.com/index.html

It's almost impossible when children are little, and have no diagnosis, to predict the 'when will me child so X' and it is very stressful. The guys are the JR are usually pretty good tho

Hugs!

hi oxfordemma
you made it over here waves

ds walked at 2 1/2 you should herd the yells shortly followed by me crying

My daughter who has GDD walked at 26 months, having never walked more than 2 steps, she got up and walked around the sofa. It took her a long time to be steady on her feet, probably until she was 6 or 7. She still has a very unusual running style.

I have also heard that bottom shufflers take longer.

Hi , my DD was hypermobile and a bottom shuffler, did not weight bear till she was 21/2 and didn't walk till she was 3, she is 4 1/2 now and can run although it may be the strangest run you have ever seen!!
still no DS and falls frequently. please don't stress. as said by other posts it's good she is sitting and for our DD we had lots of physio and conductive education.

My daughter leans forward and does a fast walk!

My son suffers from hyptonia, thank you so much for sharing your son story Macforme I can see so much of my son there.

Thank you so much.

Helen x

Just wanted to send Emma a big hug, it is incredibly stressful I agree when you know there is a problem with your DC. I have found this board of comfort knowing that you are not alone and everyone is so supportive. Sometimes when you meet up with the other mothers you do feel completely alone.

Sorry probably haven't expressed my thoughts well - just we're here for you.

DS (7) was hypermobile and a bottom shuffler. Walked at 29 months. You would never know now.

Hi Emma, I have no advice (sorry) but am in Oxford and have got a dd who is 2.6 with a genetic condition wich affects her health, we spend a fair bit of time at the JR and I do understand how it feels to have uncertainty and worry. If you fancy getting in touch feel free to CAT me.