Head all over place

[longagegap]

Hi not sure if this is the place to post but story is , i have a 10 month old who i was worried about because he wasnt sittin or trying to reach for anything and started sleeping all the time , there was things he could do before like drinking from a cup and now cant , he is a very smiliy and happy baby most of the time but also cries a lot . My HV sent him to a development clinic which we went to last week , they are worried cos none of his fine motor senes seem to be right for his age , and he has low muscle tone , he has to go once a month now for speech therephy , and every few weeks to a occupational therepist and a physo . They have said if he hasnt reached his 18 months milstones they want him to have an mri scan done . They told me that it was a bad sign that he lifted and held his head from he was born , he never needed his neck supported at all . I just feel like i dont know what is to come or if its nothing to worry about , i'm a single parent so didnt have the support from his dad , and feeling very angry towards him at the moment as he put me through hell while i was pregnant and after i had him , and feel it could have caused a problem with my son , sorry just need to vent , the doctor also wants my son's sight tested as he wont look at things other than people . If i find out there is a problem i'll do all i can for my child think its the waiting to find out that is the hardest bit to deal with

hi there longagegap, welcome to the SN board. Can I ask how old your ds is now? Your post says 10 mths but I'm wondering if it's a mistype as they're doing 18 month checks on him.

i think maybe the low muscle tone could be affecting his head control?
my ds has very low tone in his trunk and neck. he could hold his head up when he was younger but as he grew and his head got heavier his neck muscles couldnt support it if you know what i mean?

hope you get some answers soon

hi and welcome to the SN board. Sorry you are going through such a stressful time. painful as it is, it's good that your HV has been so proactive and set things in motion for him to get the therapies that will help him. These sort of problems really aren't due to stress in pg/unhappiness/PND etc, try not to analyse too much.

aw hun that is a lot to deal with on your own.

if he was able to do things that he no longer can I wonder if it is worth pushing that bit harder for a scan now rather than in 8 months time. 8 months is a long time looking at how much progress my son has made in physio in that time. I realise that he has physio already, but the sleeping and the losing skills may mean there are underlying problems.

agree that unless he physically severely injured your tummy this is unlikely to be related to anything you or ex did. For what it is worth I had a textbook pregnancy with a supportive husband, excercised, ate well etc and my little marvel has brain damage. These things happen.

You found the right place here - keep talking

longagegap Welcome to the SN board, I'm sorry you are having to deal with this on your own but you will get lots of support and advice on here.

It is good that you have a proactive health visitor but I would also try pushing for the scan to be done a little sooner.

I also agree that it is very unlikely to be anything to do with the pregnancy. With DS1 I was in an abusive relationship, lost way too much weight whilst pregnant and was generally a bit of a mess, he is totally fine. With DS2 I was in a much better place, happily married, ate well etc and he has a chromosome abnormality. It's just how it goes.

Do you get the support of family/friends? I can remember being a single mum with a baby being quite lonely at times.

Thanks for everyone replys They want to wait unitl he is 18 months as they would have to put him to sleep at this age (not sure if they do at 18 months either) in time the big doctors will see him again at 18 months to see if his sight test shows anything wrong with his eyes . Also my daughter had dropped him when he was 4 and a half months old on his head , at the time he calmed down and went to bed but this is when he did stop drinking from a cup and sleeping more , he is like a new born in that way , were when he gets his food he wants to sleep till next feeding time . He will laugh and play around a bit but only lasts for around 10-20 mins before getting really tired and grummpy . I know i'm lucky in they have taken this serious from the start about everything but also scares me a bit more than them telling me there is nothing to worry about . I dont get that much help from family and friends , his other side of family help out when they could be bothered ( not his dad though ) . Its just them saying it doesnt look good at the moment and then tell you they will see him again in 8 months i didnt ask many Q to them as i was in shock a bit myself ,I know he will have help before this time with the pyhsio . Its just hard not knowing what the out come will be