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Having a really bad day. Warning long one!

2 replies

jjones · 02/04/2009 14:35

I am new to this forum but finding it really good.

I have 2 boys, ds1, 9, has quite severe adhd, and ds2, 3, waiting for dx for asd.

ds1 is quite highly medicated for his adhd, he takes 36mg of concerta each morning, but it takes awhile for it to 'kick in' so is a nightmare in the mornings. This morning was a really bad one he just refused to do anything which was driving me mad. We had a parents open morning in his school today which is just a way of parents getting to see the kids work and teacher without having to make an appointment, well we finally got to school at 9.40 with ds2 in his major and ds1 was still like a mad man and getting in ds2's face which he doesn't like so starts with the high pitched screaming, then starts trying to climb out of the major while ds2 is sulking because I said I couldn't stay for the assembly afterwards, there was just too many people and it would have been really loud so ds2 would have just screamed the whole way through and spoiled it for the other parents, so I just left.
When I got home the postman had been and the peads report has finally arrived fro ds2, appointment was Jan, and it says he had asd traits and severe communication and language delay with hypersensitivity and is repetitive and ritual in his play, but because he young we can not have a dx. WTF

Sorry this is so long I am just feeling really low today, it doesn't help that ds2 doesn't sleep and I have exams in collage Mon and Tues this week, so totally stressed.

OP posts:
Widemouthfrog · 02/04/2009 14:49

Welcome to the forum. I have a 5 year old DS with ASD and epilepsy.
I've had the school run tantrums this morning too - DS was obsessing about the Easter bunny and just overloaded.
I'm sorry the paed report wasn't definitive, but at least the traits are acknowledged. Is DS2 at nursery and are you getting any support fwith him? Is there an early years Team involved? If not then you need to speak with the SENCO. Although a diagnosis helps, it is not essential - support should be provided on the basis of need and not a label.
I just wanted you to know that someone is reading. I am sure there will be some great advice along later.
I think the usual protocol here is to offer virtual tea, cake, chocolate or something similar .

jjones · 02/04/2009 15:46

Thank you for your reply. DS2 is in nursery and the early yoers team are involved there but it was a fight to get them. The problem is our local council is total rubbish, so support is almost none existant and over stretched. I think I am just having a bad day in my self to be honest as well, which doesn't help. Just feels like I am banging my head against a brick wall sometimes.

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