Continence and paed rant - has anyone cut theirs out of the loop?

[LoveBuckets]

Aaaargh please send me some calming patient vibes! Am shattered and tetchy and taking it out on the kids, bit emotionally drained I think. Phoned the local continence advisory service now DS1(AS) is 4 and it turns out I'll need a referral from my paed. It was paed who mentioned them to me in the first place but no mention was made of referral - they are in the same building! She has been almost actively unhelpful with regard to DS1's chronic diarrhoea and toilet training and this news just had me bawling I was feeling so let down. Was too upset to phone her so stuck a note into the clinic asking for referral. God knows how long it will take and she'll probably phone me to try and fob me off - I think the way forward is to cry and get angry in front of her, not just after she's upset me.
TBH she's given us no help at all other than been a name on the DLA form, it was the SALT who referred us to assessment ctr. Have decided to deal with her only on paper from now on, the meetings are always just an upsetting waste of time for me and DS1.

Had exactly the same experience, ended up in tears thorough shear fustration given the run around. She sounds exactly like the continence advisory I had. She tried to fob me off saying the pead would have to refer, who i left 2 messages with his secetary- outshot didn't want to know. In the end i arranged a home visit with advisor and my health visitor who was on my wave length. Advisor not really child friendly, dd played up big time much to my amusement. We did get some help in the end, but like everything else it's an up hill struggle. Good luck

going through local nhs continence services can be a hassle esecially, as they are loath to hand out pads(nappys)

your in for an uphill strggle, and i wish you the best,

if your child is getting large or commercial baby pads theres a site i can recomend for getting them at a very resonable price

even i there websites stucture is confusing
www.gompels.co.uk/index.php/cPath/105_106?osCsid=0b454edb1ba6533a21a601d8119dd809

good luck

You have my sympathy. I agree with wraith - paed cont services are very patchy. I have asked many times for continance support over the years for my son who is 9 with LD and ASD. Locally there is no pead cont service except via the childrens ward staff in a distant town. Ds is not ill or physically disabled. We were approved by the paed nursing service for pads but still haven't got any a year later BUT I think he is nearly there now (well by day anyway baring some accidents)- it has been a long struggle (we are on our 3rd washing machine). I hope you have better sucsess! Writing to the Gp may help. If your child attends sn school ( in the future) the school nurse may be able to help.