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what did the paed mean??? or what could he have meant?? any ideas??

13 replies

jennybensmummy · 31/03/2009 11:10

My little man, who is not so little really he is huge for his age is 3yrs 4 months. I have always thought he walks a little oddly but everyone else (family and friends) think im crazy and cant see anything different!! Well yesterday we went to the paediatrician for a routine appointment as Ben is autistic, well the appointment was mostly taken up by him talking about the way ben walks - as we arrived at the clinic the paed did too so saw ben walking and stumbling (he is very clumsy and although he is kind of quick his legs dont go as fast as his body sometimes, i just though he was so on the go - he really is anyway! that maybe he just wasnt focussing and thats why he trips sometimes etc. Well, the paediatrician yesterday referred ben to a physiotherapist as thinks he has problems with his joints or soemthing, i cant remember exactly what he was saying, something about that ben walks funny (i thought that but all friends i asked etc said i was imagining it!!) and also the reflex thing when they hit your joints (knees, ankles, elbows etc) with mini hammer thing, ben didnt respond to some of those like he should! (some of them didnt seem to feel it and react so he repeated it a few times and still nothing!) also he asked whether there was any family history of problems like this well bens dad had a frame on his leg when he was small for a while, not due to an accident i dont think though not sure what for so i mentioned that and the paed noted this down and said it may be linked but i have no idea what he really was hinting at and due to recent issues i am not ringing bens dad to ask as he wont tell me anyway - he has nothing to do with ben, doesnt pay for him or ask after him and even the csa are struggling to get money off him as he keeps trying to get the case closed by getting people to ring and write in pretending to be me asking to close the case and also keeps switching jobs and even the employers somehow are lying for him so the csa are involving their criminal compliance team, so anyway, thats why im not just asking him or his family about it as they are all the same attitude wise! I know its obviously nothing to do with the asd, unless it literally isnt a problem other than ben going so fast everywhere etc but the paed thinks this in unlikely and was very keen to refer to physio who have a long waiting list so now im wondering what he could be talking about and what the implications of a problem like this could be???? so with this basic info to go on can anyone shed any light as to what the paed could have been talking about??

OP posts:
jennybensmummy · 31/03/2009 11:10

sorry its long so thanks to anyone who has time to even read it!

OP posts:
amber32002 · 31/03/2009 11:55

Blimey, not sure at all. Some children with an ASD do end up with joint problems. Mine had very loose tendons round his bone joints so his were always popping out of place until the tendons grew enough to keep the bones steady (don't ask how long we spent in A&E over the years). Other children with ASD have dyspraxia which means we have much more difficulty with moving in a graceful and useful way anyway. Not sure that's very useful, but it's all I know

pagwatch · 31/03/2009 12:10

Many many children with ASD also have dyspraxia which is often characterised with clumsiness.
If it is dyspraxia he is talking about then the first recommendation would be for your son to see a physiotherapist and get a diagnosis.
Dyspraxia can be helped with certain excercises and some therapy

jennybensmummy · 31/03/2009 12:11

thanks amber, i have no idea what he meant at all, i just hate waiting for the physio, it may be nothing but part of me thinks it may well be linked to his dad having something wrong with his legs when he was young, guess i probably just have to wait and see what the physio says whenever we get referred! I know i should have just asked what he was on about but i didnt!

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pagwatch · 31/03/2009 12:13

You could always phone up and see if you can get a telephone appt with the paed to explain.

I am sure the paed would prefer that you understood what it is he is investiagting.

jennybensmummy · 31/03/2009 12:13

thanks pagwatch too. He did keep mentioning the joints and relfexes not working right, would that be likely in dyspraxia do you think?

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jennybensmummy · 31/03/2009 12:14

perhaps may be clear on follow up letter i guess

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jennybensmummy · 31/03/2009 12:15

plus was only yesterday i saw him so maybe best to wait and see than phone and ask when i know i should havfe just asked yesterday!!

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pagwatch · 31/03/2009 12:18

Jennybensmummy

The paeds do realise that when we go in it can be overwhelming and that we miss things and forget to ask questions. I am sure they won't mind and it would give paed a chance to explain more in follow up.
Honestly I would givethem a call - it will give you time to read up a bit if they tell you what they are looking at.

jennybensmummy · 31/03/2009 12:23

hmm perhaps, its a locum paed though so who knows who we will get next time, maybe he just saw someonething odd thats not there, noone has ever mentioned it before or anything?! very odd, i dunno will see i think if get a letter soonish then after that ring and ask maybe?! i dunno its just bugging me as i cant even dr google as not sure what to google!!

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wasuup3000 · 31/03/2009 12:24

My youngest ds is 2 and a half, we think he is NT. He has seemingly quite flexiable joints. However he kneels in the "w" position and walks with his feet facing inward and also on his toes. He also is prone to stumbling-he also has a pronounced "v" mark at the bottom of his spine. One of my other sons paed told me to make sure he sits with his legs out infront and not to let him kneel. I did ask the GP but she wasn't concerned seemed to think he would grow out of it. I was wondering if I should/could self refer him to anyone else to have a look at him. Interested in your responses to your post and try not to worry.

pagwatch · 31/03/2009 12:33

I googled dyspraxia and found this in case it is any help

dyspraxia

troutpout · 31/03/2009 14:44

My son has asd and also has a diagnosis of dyspraxia. He has hypomobility on all his joints and poor muscle tone. His joints bend the wrong way.He walks oddly too.
He also didnt respond quite right to the relflex thing.

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