To try again or not?? Advice needed please....

[proudestmummyever]

Hi guys, well I have a 7 yr old dd, healthy from prev relationship and a ds, 2 yrs who has a genetic disorder, no name for it, but involves severe epilepsy, hypotonia, which is low muscle tone , so it may be ages until my ds walks....has moderate brain damage and global dev delay too, also I have hd 3 mc's to my partner of 6+ years(ds's daddy) saw geneticist who thinks Jack's condition has been a one off and totally unrelated to my 3 miscarriages and just bn unlucky with mc's too and tht if we tried again thn less than 1% chance the same thing happening again(jack's condition)

Still cant help but be terrified tho...wat du all think?

God.....SJisontheway, think you've convinced me more lol, I feel the same as u, I would be devastatd at having another child with SN, scared how we would cope etc....but would deal with it iyswim....and I too believe tht if baby 3 was NT then would be good for Jack, maybe even bring him on...think we will just go 4 it, had a big talk last night AGAIN, but thing is I could be pregnant anyway, not bn using protection, bn off pill for 2 mnths nw so....., and althugh vry difficult at times, Jack is such a joy that the SN is irrelevant, he is my beautiful little man and we adore him. will put new pics up

Well keep us posted and best of luck. Jack sounds lovely. He has a lot of the same problems as DD - also not walking at 2.8 and has epiliepsy too. But she is such joy and we are very proud of her. It's likely that DD2 will walk before her and I think this wil be great for DD2 as she does try to copy. She's cruising away but her balance iis not great so I'd say it could be a while before she gets there. I'd also like to think DD1 will be good for DD2. She'll learn tolerance and understanding and be a better person for it. Then again maybe I am just naive and have no idea what I'm letting myself in for!

Hey...he is a little star, I will keep u all posted... scared stiff, jus pray everythin goes ok ths time...no mc no disorders

I have put pics up SJisontheway...today bn bit of a hard day, had to give Jack midazolam, first time since Xmas eve, but thts great for Jack, he fits everyday

He's absolutely gorgeous. Poor little man with the seizures. DD's are under control for now luckily, but it really sucks

Thanku, he is soo brave, yeah his seizures are a nightmare...how long has yr dd bn under control? Thts excellent

Jack on 3 meds but still creeps bk

Never meant to put a smile on end of that oops

She hasn't had any in a couple of months now and the last few were breakthrough seizures when she was sick so not too worrying. Luckily the first medication they used seemed to do the trick so we have been very fortunate. Just took a while to get the dose right. I hope you find the right combination soon. Is the doctor still making changes to try an bring them under coltrol?