Saw paed today - thanks for all your help guys!

[debs40]

Hi

Saw a lovely doctor today at school for DS.

Long chat, tests etc. She says he has poor muscle tone and is hypermobile and there are some coordination issues (although he's not necessarily dyspraxic. She says he will tire easily and find it really hard to use a pen

For this and the sensory issues which she could see are a priority she is referring us to the OT and physio dept.

She could see 'Asperger' type traits in DS who made good eye contact but insisted on speaking in the little voice he adopts when shy. She is referring him to speech therapy for this.

She is also referring to another paediatrician for the sensory issues as she wants to rule out epilepsy.

She thought he was quite a complicated chap but lovely - which is my diagnosis too!

I was really pleased that there was no rush to diagnose and stick a label on as I've heard some horror stories. I don't care about labels just reducing distress.

Thank all of you who have posted over the last few weeks offerfing advice and help. Much appreciated!!

Thats great news. It sounds like you are being referred to all the right people.

Thanks. I wanted to ask a quick question.

The doctor went through her recommendations with me and said I'd get these in the report which she would release, with my permission, to the school. However, she said that this would take a while as there is typing backlog.

I'm assuming that the school will not have any feedback from her in the meantime?

Do you think I should summarise what she said and raise it with his teacher pending the production of the report?

I don't want to seem like a fuss pot but I just don't know how these things work!

I would expect the teacher to ask how things went anyway. Ours did when we'd had our first paed appointment. You can then take the opportunity to bring her up to speed. I'm assuming the teacher was not included in the consultation, so i wouldn't expect her to have had any feedback.
All our reports are copied to school, but they often just get put on file and the class teacher doesn't see them. I often copy them straight to the teacher and my DS's TAs myself. Do not assume info is passed on unless you have done it yourself.
I hope you're not waiting too long for the next round of referrals - SALT and OT often have long waiting lists.

Thanks. I've gone through all the information with school and they have said they can start work on things straight away. They have been so understanding.

Do you have any experience of hypotonia and how this will affect ds? It was a new one on me!