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Hypersensitivity making life a series of screeches and wails

5 replies

hereidrawtheline · 14/03/2009 18:55

Ok I admit I am kicking ASD all over the place in the sleep arena thanks to weighted blanket.

But DS is so hypersensitive, he always has been with sound, light, taste & touch but now, the touch has gone through the roof. He is so clumsy, he doesnt ever pay attention to what he is doing or what where he is running ever and he is constantly hitting himself and us. And even when he brushes against one of us, not hard, or a wall, or anything he shrieks and is in such pain. I feel awful for him but he is so manic I really can not get him to listen and understand me enough to explain to him that he needs to slow down and be more careful. I am not sure he could even if he could understand what I was saying anyway because sometimes I think he does understand but just cant do anything about it.

What can I do to help him??? Every day we have at least a dozen major incidents with bonks or bruises or wails or something and he is so unhappy with it.

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daisy5678 · 14/03/2009 19:36

J (autism, ADHD and sensory processing disorder/ tactile defensive) loved his weighted blanket that the OT lent us to try - so Social Services bought us one and we have the same god results with sleep.

As it had worked so well, the OT gave us a 'bearhug' to try (a weighted vest) - J actually hated it because it didn't fit his definition of clothing, but it might give your boy some relief from the tactile sensitivity. It's supposed to give them a sense of physical security.

I think his was from southpaw or somewhere. Worth googling.

hereidrawtheline · 14/03/2009 19:44

Thank you. Would you mind please explaining to me more about ADHD and tactile defensive? I know a fair amount though obviously not all about ASD & SPD but especially ADHD is a real mystery to me.

My instinct tells me it must be an extremely misunderstood condition. Could you please explain it to me so I understand it properly? Sometimes I wonder if DS is ADHD but I dont really presume as I dont know much about it. He is just so manic, really truly to such an extent we are exhausted he just never ever stops. Apologies if I have misunderstood ADHD.

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daisy5678 · 14/03/2009 20:50

Core symptoms of ADHD are inattention (J's target - or one of the many - in the first year of school was to be able to concentrate on one thing for 2 minutes, and he never managed it; he's also completely oblivious to instructions in school because he's so distracted by everything around him) impulsivity (doing things without thinking first - he still shouts out all the time at school, age 7, but then so the the 15 year old kids who I teach who have ADHD!) and hyperactivity (J literally never stopped moving from the moment he could crawl unless he was strapped into a car or aeroplane or pushchair).

J's massive hyperactivity masked the autism for ages because he never stopped long enough for anyone to notice the social deficits.

J was dx ADHD at 4 officially but the paed we saw when J was 3 said he was sure it was ADHD plus something else. That paed couldn't dx as only CAMHS can here and CAMHS only take 5 year olds - we got seen early but still waited for an official dx for over a year. Didn't make any difference though tbh, as I knew it was ADHD, didn't want medication for him and he was getting a Statement anyway without a dx.

But then the hyperactivity, which had always been accompanied by very violent and dangerous behaviour, got out of control at school in his 3rd year there, so we went back to CAMHS to ask for medication. The new psychiatrist spotted the autism and said that there's a real debate about whether ADHD and autism are separate conditions, as children with autism will often have similar symptoms as part of their autism e.g. impulsive and hyperactive because they don't 'get'/ care about social norms or others' expectations of them and inattentive because of sensory issues associated with autism.

So J's dx of ADHD remains because it was there first, but the autism is the primary dx and 'trumps' the ADHD in diagnostic terms i.e. if he'd been dx'd autistic first, there would have been no additional ADHD dx because autism accounts for those symptoms too. Hope that makes sense!

Have to say, the medication trial has helped to calm him and improve his concentration and reduce his hyperactivity. Now the autism is much more obvious because he stays in one place long enough to notice! He's on Straterra which is an ADHD med which isn't a stimulant like Ritalin (which stimulates dopamine, I think), but encourages noradrenaline (I think - could be the other way round, but I know it stimulates something else and works in a different way!)

Apparently this one is very good for those with ADHD (or symptoms of it as part of autism) and the psych says her autistic patients do well on it. Helped his sleep and general calmness and I wish it wasn't necessary but it was!

Probably a longer answer than needed but HTH!

daisy5678 · 14/03/2009 20:51

Tactile defensive is just about over-reacting to touch but also seeking touch e.g. moving furniture constantly, which J does, to stimulate the muscles.

hereidrawtheline · 15/03/2009 08:42

Thank you for the explanation, it wasnt longer than needed it was really helpful! I really dont know about DS.

DS just keeps getting hit on one thing or another and screaming his head off and

WHINING so much. And screaming. We have planned a really lovely family day out today and I am tempted to cancel it simply because I feel like he is getting spoiled almost. Not with regards to the ASD stuff. And I am of the school of thought that love cant spoil etc etc. But he just will not stop whining!!! It is truly driving us crazy and I wonder if it is our fault because we give him so much. But then he is only 2.7 so logically I know he wont learn any lessons from a fun day out being cancelled. I know that. So I wont do it. I am just annoyed that we constantly go out of our way to make his life brilliant and he just whines and whines.

Ok - moan over!

He is waaaaaay too hyperactive. That is without a doubt. He never stops talking or moving or yelling or shouting or running or falling or anything. I just dont know what to make of it.

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