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Cerebral Palsy-Resources in London?

8 replies

Nuala73 · 12/03/2009 08:11

I have friends who moved to London 2 month ago with a child who was born at 24 weeks. Before moving he was diagnosed with CP. He is 18 months old. They have not managed to get a proper appointment through NHS yet (hopefully getting one soon).
Until this happens, would anyone be able to advise me on some options going private? In particular it would be most important to find a physiotherapist who really knows about these cases, to keep the routines of exercises. They are quite desperate. It is meant to be very important to do as much as possible before he is 2 years old, but months pass by and they feel they are not doing anything "useful"
Thank you in advance

OP posts:
TotalChaos · 12/03/2009 08:39

not in London but west country mnetters have used bibic and brainwave and think well of them.

TotalChaos · 12/03/2009 10:33

also think Mnetters have used this place:-

www.londonchildrenspractice.com/

lou33 · 12/03/2009 10:41

the bobath centre in north london is excellent

or dr nick cavanagh who is based at teh chelsea and westminster / cheyne centre for nhs but does private work as well

he is a lovely lovely man and knows his stuff

Nuala73 · 12/03/2009 10:53

Thank you very much!

OP posts:
lou33 · 12/03/2009 11:09

the bobath will do private and nhs funded cases, my son used to get funding for it once a year for 2 weeks session on full on tailor made treatment

yomellamoHelly · 12/03/2009 20:16

Depends where you are in London.
We use Kiki's in Clapham and think they've been excellent.
We also take ds2 to a conductive learning place in Putney (Small Steps).
Also travelled to Somerset to get a programme from Brainwave.
And have found a local osteopath who's worked wonders (but I suppose that depends on which type of cp your friend's son has.)

Nuala73 · 13/03/2009 06:10

Thank you too yomellamoHelly

OP posts:
lou33 · 13/03/2009 08:59

i think you also need to find out if hte physiotherapy you get on the nhs in your area is peto bobath or cheyne based

it is likely to be one of the first two, but they have very differnt approaches

personally i prefer the bobath approach, but it is worth doing some research on it if you havent already

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